Giving up grains entirely

[V.Beth]

I was diagnosed after forty years of misdiagnosis about 15 years ago. 
In the last 10 years I’ve found I really can’t tolerate rice,corn, quinoa, millet or anything bordering on a grain without joint inflammation and brain fog (same symptoms as with celiac).

I nearly died from celiac, with iron infusions monthly, B12 shots, I had premature babies with badly formed placentas and lost a child, I had advanced osteoporosis at 42, a diagnosis of early onset Alzheimer’s at 48.

im not likely to try reintroducing any grains at this point, but I’d like to know how damaging these other grains are to intestines?

 

 

[Scott Adams]

The vast majority of people with celiac disease can eat the grains you mentioned, unless those grains happen to be cross-contaminated with wheat, however, some celiacs report not getting better until they eliminate all grains, and/or other foods such as milk/dairy, oats, eggs, etc.

This article may be helpful:

 

 

[trents]

Grains are high in plant defense chemicals known as lectins. Lectins are not well-tolerated by many in the celiac community.

[Scott Adams]

Yes, and we've done some articles on this which could be helpful:

 

 

[Wheatwacked]

Hi @V.Beth

Are you taking any vitamins?

[V.Beth]

Yes, I take several vitamins and supplements but I watch fillers there and in medications.

[Wheatwacked]

No problem not eating grains, but I would look for vitamin and mineral deficiencies given your history.  Gluten Free Diet with adequate vitamins and minerals, you should be healthier than your friends.

[Eldene]

Millet, yellow maize, chick pea flour, brown rice etc, are naturally gluten free (bar contamination). Many of these are called pseudo-grains.

[jwoolman]

I love millet and rice (together or separately), and millet whole grain but as easy to cook as white rice (same directions). But I always think of those as grains.

Rice is one grain that doesn't result in gas. I can eat it in any form with no problems. But I don't have celiac, just a pesky wheat intolerance. Not a gluten problem, something else in the wheat. 

 

[mariliabertin]

On 10/1/2024 at 7:00 PM, V.Beth said:

I was diagnosed after forty years of misdiagnosis about 15 years ago. 
In the last 10 years I’ve found I really can’t tolerate rice,corn, quinoa, millet or anything bordering on a grain without joint inflammation and brain fog (same symptoms as with celiac).

I nearly died from celiac, with iron infusions monthly, B12 shots, I had premature babies with badly formed placentas and lost a child, I had advanced osteoporosis at 42, a diagnosis of early onset Alzheimer’s at 48.

im not likely to try reintroducing any grains at this point, but I’d like to know how damaging these other grains are to intestines?

 

 

Hi! I can't eat oat and quinoa too. I am having reactions right now and searched about quinoa.

I only knew about oats. Three weeks later I have changed oats to painco and quinoa. Painco was a great option, but all 4 times i ate quinoa, it was painfull.

I feel hopeless everytime I undestand how deeper celiac disease is. 

[trents]

Quinoa is high in lectins. Try rinsing it thoroughly before cooking and consuming it.

[knitty kitty]

Lectins are broken down by cooking.  Using a pressure cooker is recommended for breaking down lectins in beans.  Cooking all alternative grains and rice thoroughly should help.

[trents]

2 minutes ago, knitty kitty said:

Lectins are broken down by cooking.  Using a pressure cooker is recommended for breaking down lectins in beans.  Cooking all alternative grains and rice thoroughly should help.

Good point. But I have been made very ill by eating unwashed quinoa that was not cooked but used in a side salad.

[knitty kitty]

I didn't want anyone to think rinsing quinoa would get rid of lectins.  

Terribly sorry, read your post too fast.  

Rinsing rice isn't recommended because rinsing rice will dissolve the added vitamins (they look like grains of rice).  

Edited October 28, 2024 by knitty kitty
Typo correction

[trents]

My bad. The reason it is important to rinse quinoa is because of saponins, not lectins. Some people, and I am one of them, get very ill from the saponins. Like lectins, saponins are part of the natural defense mechanism of some plants.

https://www.allrecipes.com/article/should-you-rinse-quinoa/