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- itsdunerie replied to Ben98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Potential celiac need advice
Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu -
- itsdunerie replied to Ben98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Potential celiac need advice
15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y -
- Hopeful1950 commented on Scott Adams's article in Autumn 2025 Issue1Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
Great information in this article. Chicory root and inulin are the absolute worst! One Kind Bar will put me in misery for sure. Xanthan gum and maltitol also not good. I have been strictly gluten free for a very long time, but still cannot tolerate these ingredients.- additives
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- Scott Adams replied to Ben98's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Potential celiac need advice
It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks...
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By itsdunerie · Posted
Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu -
By itsdunerie · Posted
15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y -
By Scott Adams · Posted
It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist. More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider. -
By Wheatwacked · Posted
Yes. Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again? You have identified a direct connection between gluten and pain. Gluten is your hammer. Now you have to decide if you need a medical diagnosis. Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity both cause multiple vitamin and mineral deficiency. Dealing with that should help your recovery, even while eating gluten. Phosphatidyl Choline supplements can help your gut if digesting fats is a problem, Consider that any medications you take could be causing some of the symptoms, aside from gluten. -
Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease.
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