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Can anyone offer any advice/help please!

Sammy Web

By Sammy Web
in Related Issues & Disorders

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cristiana Veteran
cristiana
Posted
(edited)
17 hours ago, Sammy Web said:

Thought i was on a celiac forum not taking my high school English exam, that sentence makes perfect sense to anyone in the UK thank you.

You seem to be pushing the agenda of a celiac diagnosis, according to this thread it seems to be hard to spot and mostly asymptomatic. So I'm not sure why the hard push, avoiding and/or lowering gluten seems to be a suitable option.

Hi Sammy

I was going out for a meeting when I wrote my last post, and wanted to add something to your second comment, but didn't want to rush the post in case it came out wrong.

The push for a diagnosis tends to be because it is worth finding out for sure if one has coeliac disease or not if one has been experiencing gastric symptoms.  Coeliacs have to take their diet very seriously indeed - something that doesn't apply to someone without the condition, like my friend, for example, who has not got coeliac disease but occasionally feels bloated and tired when she eats wheat.  She occasionally consumes gluten if nothing else is available at a restaurant, something a coeliac mustn't do.

Also, here in the UK,  it is worth noting that if someone is formally diagnosed with coeliac disease the NHS takes it very seriously and puts in place a lot of support: annual blood tests for dietary compliance and to rule out complications, such as other autoimmune conditions to which coeliacs can be prone;  annual reviews with a gastroenterologist, DEXA scans to check for bone density (coeliacs can suffer from osteoporosis); additional vaccinations where medically indicated and also, in some areas, prescription gluten free staples such as bread.  

Although you have had some symptoms you may of course not have coeliac disease, but it would be good to be sure one way or another.  Should you decide to one day to reconsider testing, making sure enough gluten is consumed before the test is vital. 

I hope that helps a bit, and I am sorry for any confusion caused.

Cristiana

Edited by cristiana
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