Sore mouth lining and Coeliac Disease.

[Farralley]

Hi all I was diagnosed wuth Coeliac Disease about 9 months ago after my GP was investigating chronic anaemia.

I had an endoscopy and 'total atrophy of the villa' was observed. I have recently had test to check fir other nutrient deficiencies. The test resilts will be shared with me soon during a visit to the Gastro Entrologist. 

My concern is a sore mouth lining. I'm not certain but thought that consumption of a gluten free Granola which contained freeze dried berries seems to coincide with the soreness.. it's taken weeks and a range of over-the-counter remedied to reduce the soreness. 

I've also been casting around for a remedy and a genuine cause. Perhaps foolishly I  purchased another similar product ( no frozen berries) and my mouth has become a lot sorer almost immediately. 

No doubt my doctor will have some ideas. Just wondering if 

1. Others had mouth soreness

2. Others had difficulty with gluten-free Granola-like cereal.

TThans in advance. Farralley

 

 

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[cristiana]

Hi @Farralley and welcome to the form

I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp.  Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I had so many, even eating toast and marmalade made me think I was chewing glass.

In your case, what you are describing could well be due to a reaction to cross contamination, or perhaps even a sensitivity to oats?  Are you consuming gluten free oats - i.e. certified pure oats, free from contamination?  You will probably know that coeliacs cannot eat standard oats, they have to be oats that are grown and processed separately from gluten containing grains, and certified as such. 

But even then, a small percentage of coeliacs cannot tolerate pure oats, in the short term while they are recovering, or even in the longer term, unfortunately.  It took me eight years before I stopped reacting to even pure oats and now eat them with no issues, but for some a reaction to the protein avenin in oats can be either a temporary or long term issue.

Another issue is you may be short of iron or B12 and other B vitamins, which can leave your mouth sore and prone to ulcers.  Have you had these levels tested recently?  If the burning continues, I'd definitely ask your doctors to do another blood test.

Lastly - you may have burning mouth syndrome, do have a look into that, which could just be a temporary reaction to something - food, a new toothpaste, reflux?

For now, in your shoes I'd probably keep an eye on any recurrences and perhaps keep a food diary to see if there is a pattern.  Have the blood test to check for deficiencies, and try to eat soft, bland food for a few days to help recovery along.

Hope this helps,

Cristiana

 

[Farralley]

Thanks Christina. 

The Granola products I tried were marked Gluten Free so supposed to be suitable. 

I've had many tests done but no results yet but I get the results in next day or so.  

I may well have these issues due to deficiencies. Just wanted to get some anecdotal feedback about the issue before I see the GE specialist  

If and wwhenI get an answer, I'll post it her. Cheers!! Carmel

 

[cristiana]

A pleasure.   It could just be the oats (even pure ones can cause problems for some coeliacs, as I mentioned) but don't be discouraged if that is the issue, as for most of us that passes.  Very odd, really, as before going on a gluten free diet, they had no effect on  me at all!
 

 

[trents]

Please list the ingredients of the granola. It may have nothing to do with gluten but an allergy or sensitivity to some ingredient.

[Farralley]

It could be. Think I'll just have to avoid that cereal. Thank for suggestion..