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New to gluten-free


QueenBorg
Go to solution Solved by Scott Adams,

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QueenBorg Newbie

Hi. I’m new to the Gluten Free lifestyle. Only 3 weeks in. I was diagnosed with Fibromyalgia in June and a friend suggested I try going gluten free for 2 months to see if it helped with the inflammation and pain. Amazingly it has. I have been trying very hard to figure things out and thought I was doing well until I accidentally forgot on a trip and ordered something that was not gluten free. Lesson learned to be more careful.

My question is, is there a list of common foods/ spices that are safe to start with? Or at least a complete list of what to avoid? TIA


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  • Solution
Scott Adams Grand Master

Welcome to the gluten-free lifestyle! It’s great to hear that eliminating gluten has already helped with your fibromyalgia symptoms—that’s a huge win in just three weeks. Mistakes happen (especially when traveling!), so don’t be too hard on yourself. Each slip-up is a learning experience.

The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping.

It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.

 

 

 

QueenBorg Newbie

Thanks for the information. I will definitely be doing a lot more investigating in the future!

trents Grand Master

Welcome to the forum, @QueenBorg!

Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct?

QueenBorg Newbie

Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 

trents Grand Master

Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.

Scott Adams Grand Master

Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy:

Quote

"...in order to properly diagnose celiac disease based on serology and duodenal histology, doctors need patients to be on gluten-containing diets, even if they are causing symptoms, and this is called a "gluten challenge."

  • Eat gluten prior to celiac disease blood tests: The amount and length of time can vary, but is somewhere between 2 slices of wheat bread daily for 6-8 weeks and 1/2 slice of wheat bread or 1 wheat cracker for 12 weeks 12 weeks;
  • Eat gluten prior to the endoscopic biopsy procedure: 2 slices of wheat bread daily for at least 2 weeks;

and this recent study recommends 4-6 slices of wheat bread per day:

 

 


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      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
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    • Scott Adams
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