How long does it take to gain weight?

[petitojou]

Hi! I was diagnosed as Celiac three months ago and I’m on a gluten-free diet for the same period. I experienced severe weight loss while intoxicated. It’s been only 1 month since my diarrhea stopped (I had them everyday, 3-4 times a day) so I know it’s too early to see crazy results, but I really wanted to hear from other Celiacs who suffered from weight loss, how long did it take to get back to a healthy weight? I have very petit frame but once weighed 50kg (110lb). Right now I’m stuck at 35kg (77lb)! Honestly quite hard because I have no strength. But thankfully my tests showed no signs of malnutrition or bad vitamin deficiency. 

I had both a gastroenterologist and a endocrinologist looking at my tests for possible thyroid problems (making it possible harder to gain weight) but both said everything was ok- even tho in two of my tests the TSH levels were significantly high and just one test with stable numbers. But T4 and T3 were normal. 

I’m trying my best to remain optimistic and consistent, but also can’t wait to see myself with a healthier figure! 

Thank you for reading and helping  

[knitty kitty]

 Welcome to the forum, @petitojou!

I lost a lot of weight, too.  I found that I was low in the B vitamins and other essential nutrients.  Vitamin B 1, Thiamine, is not usually tested, because blood tests are so inaccurate.  Doctors are not familiar with vitamin deficiency symptoms any more.  

Low thiamine can cause fatigue, muscle weakness, nausea, reflux, abdominal pain, and diarrhea or constipation.  In a state of low thiamine, the body burns stored fat and muscle, so unintentional weight loss and muscle weakness occurs.  The inability to put on weight occurs during low thiamine.  Low thiamine can affect the thyroid as well, causing higher TSH.  

I supplemented with a B Complex and additional Thiamine in the form Benfotiamine which has been shown to promote intestinal healing.  Diarrhea for so long affects the absorption of essential nutrients especially the eight B vitamins because they are water soluble and easily lost.  Thiamine and the B vitamins work together.  Thiamine needs magnesium to make life sustaining enzymes.  

Talk to a nutritionist or dietician about supplementing with essential nutrients and following the Autoimmune Protocol diet.  

Following the low histamine version of the Autoimmune Protocol diet is beneficial and promotes healing.  The AIP diet cuts out grains and other foods that can irritate the digestive tract.  After your digestive system heals you'll be able to add other foods back in.  For right now, focus on easy to digest meals.  

Hope this helps!

Edited 3 hours ago by knitty kitty
Typo correction

[petitojou]

5 minutes ago, knitty kitty said:

 Welcome to the forum, @petitojou!

I lost a lot of weight, too.  I found that I was low in the B vitamins and other essential nutrients.  Vitamin B 1, Thiamine, is not usually tested, because blood tests are so inaccurate.  Doctors are not familiar with vitamin deficiency symptoms any more.  

Low thiamine can cause fatigue, muscle weakness, nausea, reflux, abdominal pain, and diarrhea or constipation.  In a state of low thiamine, the body burns stored fat and muscle, so unintentional weight loss and muscle weakness occurs.  The inability to put on weight occurs during low thiamine.  Low thiamine can affect the thyroid as well, causing higher TSH.  

I supplemented with a B Complex and additional Thiamine in the form Benfotiamine which has been shown to promote intestinal healing.  Diarrhea for so long affects the absorption of essential nutrients especially the eight B vitamins because they are water soluble and easily lost.  Thiamine and the B vitamins work together.  Thiamine needs magnesium to make life sustaining enzymes.  

Talk to a nutritionist or dietician about supplementing with essential nutrients and following the Autoimmune Protocol diet.  

Following the low histamine version of the Autoimmune Protocol diet is beneficial and promotes healing.  The AIP diet cuts out grains and other foods that can irritate the digestive tract.  After your digestive system heals you'll be able to add other foods back in.  For right now, focus on easy to digest meals.  

Hope this helps!

Hi! Thank you so much! This was truly helpful. Most doctors I went to were absolutely uninformed and unprepared to treat a celiac patient. I will check for all the things you shared and focus on healing first! Really really thank you! Have a blessed day. 

[knitty kitty]

Yes, I agree, most doctors miss the subtleties of Celiac disease.  

The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne.  Her book The Paleo Approach is most helpful.  

The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track.  It eliminates processed gluten-free foods.  These processed foods are not enriched with vitamins and minerals like their gluten containing counterparts are.  They are usually full of saturated fats and excess fiber, not something healthy one would choose to eat anyway.  Stick with meat and veggies and some low histamine fruits.  Supplement with Benfotiamine and a B Complex to ensure your body has an opportunity to absorb these essential nutrients.

You have a blessed day, too, sweetie.

[Scott Adams]

First, it's fantastic news that your diarrhea has resolved after a month—that is a huge and critical sign of healing, confirming that the gluten-free diet is starting to work. While it feels slow, this stabilization of your digestive system is the essential foundation upon which weight gain is built. Given the severity of your weight loss, dropping from 50kg to 35kg, it is very normal for the body to need a significant amount of time to recover. The fact that your vitamin levels are stable is a positive sign that your body is now absorbing nutrients, which is the first step. Many people in the Celiac community report that noticeable, consistent weight gain often doesn't begin until several months after their digestive symptoms have fully settled, as the intestines need that time to repair the villi responsible for absorption. It sounds like you are doing everything right by working with your specialists and ruling out other issues like thyroid complications, which, despite the fluctuating TSH, your doctors have confirmed are not a primary concern. Please be gentle with yourself; your body has been through a major trauma. The lack of strength you feel is a direct result of such a low body weight, and as you slowly and consistently nourish yourself with safe, calorie-dense gluten-free foods, that strength will return. Stay the course with your optimism and consistency—you are on the right path, and a healthier figure is absolutely ahead.

Are you taking vitamin and mineral supplements? The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

 

 

[cristiana]

Not a scientific reply, but I thought I'd just chime in to reply the first part of your question: how long?   Before I started to have gastric symptoms, I weighed about 66 kilos, and in the course of the following months, I seem to recall I lost about 6 kilos.  From memory the last 2 or 3 kilos dropped off even when I was beginning to eat gluten free, from May to September, but then, finally, the weight returned again, in the run up to Christmas 2013.  The loss after I gave up gluten was, I think, in part because in those early months I didn't know what I was allowed to eat, so wasn't eating very much. 

But the good news is the weight in the end returned so successfully that I'm actually on a diet now, trying to lose it!😊  

It can be scary losing a lot of weight when you are trying not to, but the advice above is great, and before long you should start to put on the weight again.  It might be worth keeping a food diary to see what healthy calorie rich food you can tolerate, and try to incorporate more of that into your diet at this time.