Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone's Celiac Been Constantly Sick?


Nic

Recommended Posts

Nic Collaborator

I am just curious. My Celiac son seems to always be the one to bring home "sickness" to our house. Whether it be a cold or a viral infection with high fever, he is always the one to get sick first (I am home from work today because he has fifths disease but his fever has been up aroung 104). I'm just curious, is there any corrilation to the Celiac? I am wondering if the immune system gets compromised due to all the malabsorption that occured while actively sick with Celiac. Just a thought. Anyone know for sure?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

He may be more susceptable to illness during the first year or so on the gluten-free diet. Garlic and onions can help fight bacteria and viruses. Maybe try putting those foods in some of his meals?

key Contributor

My celiac son had more ear infections and finally tubes in his ears, but since he hasn't been any sicker then the other kids. Actually I think this is a very bad year for illness. Someone has been sick in my house for almost two months now. I have had it!!! I am hoping we have had everything by now. I have three kids and stay home with them all the time. I don't even know where they get stuff. I guess parks or restaurants. Anyway, a ton of my friends kids have been the same way.

Is your son in daycare?

My kids all just had rotavirus and had diarhea for five days with no appetite. It is not fun at all.

Monica

mart Contributor

My celiac son also had to have ear tubes put in when he was 2. He had 9 ear infections in 1 year...I kept telling his doctor that he needed to see a specialist and he thought he didnt, so he wouldn't refer him. Finally, he ended up in the ER with 105 degree fever. When I told the ENT specialist at the hospital he'd had 9 ear infections in one year, he asked "why didn't you take him to a specialist...you're supposed to after 4 or so." ??? Then I read in some celiac information site that celiac children are more susceptable to ear infections.

So don't feel bad. My kids, no matter how well I take care of them, always seem to have some cold, virus, etc. Of course, I was like that as a child too, and I don't have celiac. I don't know for sure if celiac suppresses the immune system, but I would tend to think that it must to some degree, because ear infections tend to be "secondary infections," meaning they started out as something like a cold and then moved into the ear . It's not the only cause of ear infection, but I think it's the primary one (i.e., child can also get ear infections from drinking from a bottle in the wrong position.)

2Boys4Me Enthusiast

No. We are a family that rarely (touch wood) gets sick. The occasional cold or sniffles. A 24 hour upset stomach/vomity kind of day - gone the next day only once in a while. Once every couple of years my husband gets a flu that morphs into bronchitis that lasts for a month or two, but it's a pretty mild bronchitis compared to my Mom.

It's peculiar to me, because I BF'd my boys for 8 months and then 5 months for the younger one, and my identical twin sister BF'd her older boy about 14 months or so and still is with her 6 month old, and those kids are sick all the time. Go figure.

No ear problems here either, other than not listening. We know they can HEAR, but they can't LISTEN. In fact, my younger son, the celiac, was part of a hearing study on newborns. They did three different kinds of tests and he passed with flying colours. I don't think he's ever had an ear infection either, although my older son has had 2 or 3.

Nic Collaborator
My celiac son had more ear infections and finally tubes in his ears, but since he hasn't been any sicker then the other kids. Actually I think this is a very bad year for illness. Someone has been sick in my house for almost two months now. I have had it!!! I am hoping we have had everything by now. I have three kids and stay home with them all the time. I don't even know where they get stuff. I guess parks or restaurants. Anyway, a ton of my friends kids have been the same way.

Is your son in daycare?

My kids all just had rotavirus and had diarhea for five days with no appetite. It is not fun at all.

Monica

He actuallly goes to preschool. It has been one viral infection after the next.

rache Apprentice

i had asked a similar question before about myself (although im an adult and not a child) and i think people had me feeling like i was nuts- saying that youre supposed to be healthier after going gluten free. unlike me who was more sick in the last year (my first gluten free year!). i just had a 5 weeks long sinus infection - w/ bronchitis. still not feeling too great after 3 antibiotics. im glad im not alone with this. i think b/c of this being an immune disorder and throws your body so out of whack, that until my body gets fully healed and back in order, that i am going to have a harder time fighting off illness. it seems to make sense to me. in the mean time, ive started taking vitamins and staying away from everyone else thats sick- although i always seem to watch something! hopefully this will get easier and us sick people can get through this!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

I was like that when I was a kid. Strep throat a couple of times a year, bronchitis, tonsilitis, you name it. I was out sick so much that they once sent a social worker to talk to my mom because they thought she was doing something to me. I wasn't diagnosed until I was 27 though, so I don't know if it would be related.

Nic Collaborator

Thanks for the replies. It very well could be a bad year for viruses. But like I have said, he is always the one that gets sick first (I have one other son and he spends his days with my sister who has 3 while I work). And not only does he get sick first, he always gets hit the hardest. For example, he is sick now and so is my nephew. My nephews temp. has been around 101., my son's on the other hand, was up over 104 yesterday. Everytime he gets sick, he gets these rediculously high fevers. When he was first diagnosed with Celiac, I was told that it takes about 1 year for a Celiac to fully recover from damages done. Wouldn't it make sense that during that year the immune system may be out of wack? Just a thought.

Niole

ladyx Newbie
Thanks for the replies. It very well could be a bad year for viruses. But like I have said, he is always the one that gets sick first (I have one other son and he spends his days with my sister who has 3 while I work). And not only does he get sick first, he always gets hit the hardest. For example, he is sick now and so is my nephew. My nephews temp. has been around 101., my son's on the other hand, was up over 104 yesterday. Everytime he gets sick, he gets these rediculously high fevers. When he was first diagnosed with Celiac, I was told that it takes about 1 year for a Celiac to fully recover from damages done. Wouldn't it make sense that during that year the immune system may be out of wack? Just a thought.

Niole

One more possibility for you....my son was sick all the time before he was diagnosed with celiac disease...when we were trying to figure out what was wrong with him my family doctor sent him to an allergist and a GI the same week...The allergist found a cronic sinius infection.. my son wasn't stopped up and seemed to breath fine except for his asthma problem but he was sick constantly...even if my other two weren't. He had all that infection stuffed up in his head but you couldn't tell cause he didn't have a runny nose or anything. He had to be on antibotics for a month but until we got him off gluten and cleared up the sinus infection he didn't improve...sometimes being on gluten cause secondary problems that just getting off gluten won't fix...also your son just might be a kid who gets sick more or like with me....I was sick all the time as a kid and my brother never was. My mom couldn't figure it out. When we got older and I got in college I hardley ever got sick except of course for my so called IBS. Then when my brother got a bunch of tests before he went overseas he found out he was a germ carrier...he was not getting sick...he was just giving me all the germs and i was getting sick. It has been a really bad winter as well so maybe it is just that. My kids and I all had Phenomena at Christmas time for over a month. I thought maybe it was because of the celiac but when I went back to work (I worked in a portrait studio) I had a lot of parents coming in for Christmas pictures in January because there kids had Phenomena or some other bad flu through December. Anyway my point is something might be wrong...listen to your motherly gut and if it is telling you something is wrong...don't give up. My pediatrican gave up on figuring out what was wrong with my son and I had to take him to my family doctor who sent him to specialists until the problem was discovered. Sometimes pediatricans get lazy because they see so many new moms who worried about the littlest runny nose...find you a doctor that is not willing to give up until they figure out what is wrong. I have had more luck with interns, clinical doctors and family doctors cause they don't have a chip on there sholder and think they know it all...a lot of times they aren't afriad to say I don't know but we will figure it out together. I know it might sound a little crazy but I had a nefew that was sick constatly and the kid practically lived on over the counter meds. My sister-in-law finally took him to the ciropractor and found out he had pretty severe scoliosis and after only a few adjustments he begin to get better. Just some ideas for you. Good luck

  • 4 years later...
Mama Melissa Enthusiast

thats soo weird you guys are talking about sickness when i was little i always got ear infections,i had the fifth disease as well and i have had chicken pox 2 times... i am now 27 and just diagnosed celiac after stomach problems they seem to think i just developed it by my biopsy but i beg to differ:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.