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Is Anyone Concerned About Colon Cancer?

sillyyak

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sillyyak Enthusiast
sillyyak
Posted

Is anyone concerned about their risk for getting colon cancer having celiac sprue? And also is anyone concerned about getting a diagnosis of refractory sprue?

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Rusla Enthusiast
Rusla
Posted

I worry about it but I will not obsess about them. If you obsess you can defeat yourself and end up with what you don't want.

nikki-uk Enthusiast
nikki-uk
Posted

Well my husband has got a dx of refractory coeliac.

A biopsy after 6 months showed no progress-so the gastro put him on steroids.

A biopsy after the steroids showed a miniscule improvement of his villi-*sigh*

Having said that,-he's now putting on weight and feels alot better than he did at time of dx(Sept 04)

Due to see doc again in July-I expect he'll schedule another biopsy.

So,up to now-no cancer found :)

Just gotta get on with life,god knows worrying about it ain't gonna help!

jerseyangel Proficient
jerseyangel
Posted

I am a bit concerned about colon cancer, but it's because my dad had it. Luckily, it was caught very early (my dad is good about checkups and screenings) and he's still doing well after 25 years. My colonoscopy was normal last year, so that was a big relief!

Canadian Karen Community Regular
Canadian Karen
Posted

Refractory - already got that diagnosis, but don't really believe it....

Cancer? Yep, you bet your bippies I worry about it, especially with four young children to worry about....

Went to see the GI on Wednesday, he is scheduling another upper GI series - says he wants to look for

Ulcerative jejunoileitis

Karen

nikki-uk Enthusiast
nikki-uk
Posted

Hey Karen,let's hope it's not another condition you can add to your signiture!

Keep us updated.

BTW has your gastro ever discussed Azathioprine treatment?

Keep well-Nikki

brenp Newbie
brenp
Posted
Refractory - already got that diagnosis, but don't really believe it....

Cancer? Yep, you bet your bippies I worry about it, especially with four young children to worry about....

Went to see the GI on Wednesday, he is scheduling another upper GI series - says he wants to look for

Ulcerative jejunoileitis

Karen

Hey everyone (from above messages). I too was worried about the higher risks of colon cancer for those of us that have celiac disease, as I too was diagnosed 23 years ago and I have three kids to care for. I haven't dwelled on the fact our risk was higher than the "non celiac" population, but it did bother me. Then about a year ago I heard that the colon cancer risk wasn't any different for those on a high fiber diet to those not on a high fiber diet as originally thought all those years ago. Remember for years all the ads in magazines, on tv etc and from your doctor - eat a high fiber diet and it will significantly reduce your chances of colon cancer? Wrong! There is no difference what-so-ever between the two diets! Those who got colon cancer were exactly the same on both diets. Interesting! As far as I'm concerned, we are better off then the general public as we are forced to watch our diet, can't eat from fast food places like the rest of them, watch the fat intake etc. As long as we stick to our diets, don't cheat, make sure we arent' constipated, don't strain and exercise, we are ahead of the game!

All the best to you all.

BrenP

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radman Newbie
radman
Posted

There is no significant increased risk of colon cancer with celiac.

The risk is for small intestinal cancers, primarily lymphoma and to a lesser extent adenocarcinomas.

Both of these are extremely rare.

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    • AlwaysLearning
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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