Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Here


gf4life

Recommended Posts

gf4life Enthusiast

Is there anyone here who would consider being my gluten free/dairy (casein) free online buddy. I need support for it because my kids are not planning on being dairy free again anytime in the future and so the cheese/ice cream/milk will still be in the house. So far I haven't been able to stick to it. I reduced my consumption, but have not stuck to eliminating it altogether.

When I was off dairy for over a year I felt great and lost over 25 lbs. I went back on dairy slowly and felt fine with it for about 6 months. Then my health started slowly going downhill and my weight started to creep back up! I have now gained back about 20lbs. :( I really need to lose about 50-60 lbs to be at my ideal weight. I was so happy to have been about half way there.

I just really need someone who will support me. Someone who will check in with me every few days and see how I am doing, who will listen to me rant about how crazy it is making me to not be able to eat cheese (the only thing I cannot replace with a good substitute), and who will yell at me (loud enough to be heard through the computer!) if I feel like giving up and just dealing with the reduced health and excess weight...

Please PM or email me if you are willing to help. If you are in the same boat as me I would be more than happy to support you back! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

Hi gf4life,

I hope you found a casein-free support buddy! I would offer to help but I have such an awful reaction to casein (exactly like my gluten reaction - knocks me out for 10+ days) that I had NO problem at all giving it up! It's a double-edged sword I guess - I have zero urge to 'cheat' because those foods to me now seem like poison, but then again I can very easily get sick from the most minute amount of the 6 food groups I react to, that I can no longer eat out. I miss that aspect of my life more than the foods themselves. And I miss coffee and wine (yeast allergy) MUCH more than cheese!

I also couldn't find a good cheese substitute because I'm also allergic to soy, which is in all the casein-free fake cheeses. I just try and focus on the good stuff I CAN eat, and on how great not feeling sick all the time feels. Cheese is tasty, but I ask myself what would I miss more, cheese or strawberries? Cheese or (dairy-free/soy-free) chocolate? It makes me thankful for the delicious stuff I still can eat. And more than that, thankful for my health, at last. :)

gf4life Enthusiast

Yes I did find some support "buddies".

I am on my 4th day now Gluten-free Casein-free. I am doing fine. My belly is quiet again.

Today for lunch I had chicken tacos with avocado instead of cheese. It is a similar texture to melted cheese and so it fits the bill for most foods, except italian. Pasta and pizza are just not the same without cheese. I can do pizza with lots of toppings and not miss the cheese too much, but I can't eat it that way very often. What do I use to substitute cheese in lasagna??

Anyhow, I know what you mean about the soy cheese. It doesn't taste very good anyhow, but I am also allergic to soy. The first time I had the soy cheese I just had a little and took some benadryl. I still got itchy and had to take more. The second time I had some soy cheese I had problems breathing and figured I shouldn't try it a third time or else I might have a worse reaction! I took my soy allergy a lot more serious after that experience. :blink:

Guest jhmom

Hi Mariann,

Good to hear from you, I haven't seen you in awhile! I am glad you have found a CF buddy to help you through this, I know it must be hard! Take care :)

gf4life Enthusiast
Good to hear from you, I haven't seen you in awhile!

Hi Stacie,

I was just thinking the same about you. I've been here, but just not having the time to post very often. It has been crazy this year.

I'm doing well on the Gluten-free Casein-free diet. This is the first week in the past 6 months that my tummy has been calm and I haven't hardly needed the digestive enzymes. I do miss cheese the most, and it is taking a lot of thought to get through each meal, but I am getting there. There is just so much in the house with dairy in it...

Hope all is well for you.

God bless you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.