Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Here

gf4life

By gf4life
in Related Issues & Disorders

Recommended Posts

gf4life Enthusiast
gf4life
Posted

Is there anyone here who would consider being my gluten free/dairy (casein) free online buddy. I need support for it because my kids are not planning on being dairy free again anytime in the future and so the cheese/ice cream/milk will still be in the house. So far I haven't been able to stick to it. I reduced my consumption, but have not stuck to eliminating it altogether.

When I was off dairy for over a year I felt great and lost over 25 lbs. I went back on dairy slowly and felt fine with it for about 6 months. Then my health started slowly going downhill and my weight started to creep back up! I have now gained back about 20lbs. :( I really need to lose about 50-60 lbs to be at my ideal weight. I was so happy to have been about half way there.

I just really need someone who will support me. Someone who will check in with me every few days and see how I am doing, who will listen to me rant about how crazy it is making me to not be able to eat cheese (the only thing I cannot replace with a good substitute), and who will yell at me (loud enough to be heard through the computer!) if I feel like giving up and just dealing with the reduced health and excess weight...

Please PM or email me if you are willing to help. If you are in the same boat as me I would be more than happy to support you back! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cornbread Explorer
cornbread
Posted

Hi gf4life,

I hope you found a casein-free support buddy! I would offer to help but I have such an awful reaction to casein (exactly like my gluten reaction - knocks me out for 10+ days) that I had NO problem at all giving it up! It's a double-edged sword I guess - I have zero urge to 'cheat' because those foods to me now seem like poison, but then again I can very easily get sick from the most minute amount of the 6 food groups I react to, that I can no longer eat out. I miss that aspect of my life more than the foods themselves. And I miss coffee and wine (yeast allergy) MUCH more than cheese!

I also couldn't find a good cheese substitute because I'm also allergic to soy, which is in all the casein-free fake cheeses. I just try and focus on the good stuff I CAN eat, and on how great not feeling sick all the time feels. Cheese is tasty, but I ask myself what would I miss more, cheese or strawberries? Cheese or (dairy-free/soy-free) chocolate? It makes me thankful for the delicious stuff I still can eat. And more than that, thankful for my health, at last. :)

gf4life Enthusiast
gf4life
Posted
  • Author

Yes I did find some support "buddies".

I am on my 4th day now Gluten-free Casein-free. I am doing fine. My belly is quiet again.

Today for lunch I had chicken tacos with avocado instead of cheese. It is a similar texture to melted cheese and so it fits the bill for most foods, except italian. Pasta and pizza are just not the same without cheese. I can do pizza with lots of toppings and not miss the cheese too much, but I can't eat it that way very often. What do I use to substitute cheese in lasagna??

Anyhow, I know what you mean about the soy cheese. It doesn't taste very good anyhow, but I am also allergic to soy. The first time I had the soy cheese I just had a little and took some benadryl. I still got itchy and had to take more. The second time I had some soy cheese I had problems breathing and figured I shouldn't try it a third time or else I might have a worse reaction! I took my soy allergy a lot more serious after that experience. :blink:

Guest jhmom
Guest jhmom
Posted

Hi Mariann,

Good to hear from you, I haven't seen you in awhile! I am glad you have found a CF buddy to help you through this, I know it must be hard! Take care :)

gf4life Enthusiast
gf4life
Posted
  • Author
Good to hear from you, I haven't seen you in awhile!

Hi Stacie,

I was just thinking the same about you. I've been here, but just not having the time to post very often. It has been crazy this year.

I'm doing well on the Gluten-free Casein-free diet. This is the first week in the past 6 months that my tummy has been calm and I haven't hardly needed the digestive enzymes. I do miss cheese the most, and it is taking a lot of thought to get through each meal, but I am getting there. There is just so much in the house with dairy in it...

Hope all is well for you.

God bless you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal...
    2. trents
      - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated...
    3. Scott Adams
      0

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Have I got coeliac disease

      Vitamin D status in the UK is even worse than the US. vitamin D is essential for fighting bone loss and dental health and resistance to infection. Mental health and depression can also be affected by vitamin D deficiency. Perhaps low D is the reason that some suffer from multiple autoimmune diseases. In studies, low D is a factor in almost all of the...
    5. mike101020
      - mike101020 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

      Hi, I recently was informed by my doctor that I had scored 9.8 on my ttgl blood test and a follow up EMA test was positive. I am no waiting for a biopsy but have read online that if your EMA is positive then that pretty much confirms celiac. However is this actually true because if it it is what is the point of the biopsy? Thanks for...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,161
    • Most Online (within 30 mins)
      7,748
    Cynthia Louise Kennedy
    Newest Member
    Cynthia Louise Kennedy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      EMA Result

      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
    • trents
      EMA Result

      By trents · Posted

      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated celiac blood antibodies in some individuals. The most likely explanation is celiac disease but it is not quite a slam dunk. The endoscopy/biopsy is considered the gold standard for celiac disease diagnosis and serves as confirmation of elevated blood antibody levels from the blood testing.
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      Vitamin D status in the UK is even worse than the US.  vitamin D is essential for fighting bone loss and dental health and resistance to infection.  Mental health and depression can also be affected by vitamin D deficiency.  Perhaps low D is the reason that some suffer from multiple autoimmune diseases.  In studies, low D is a factor in almost all of the autoimmune diseases that it has been studied in. Even while searching for your diagnosis, testing your 25(OH)D status and improving it my help your general wellness. Vitamin D Deficiency Affects 60% in Britain: How to Fix It?    
    • mike101020
      EMA Result

      By mike101020 · Posted

      Hi, I recently was informed by my doctor that I had scored 9.8 on my ttgl blood test and a follow up EMA test was positive.   I am no waiting for a biopsy but have read online that if your EMA is positive then that pretty much confirms celiac. However is this actually true because if it it is what is the point of the biopsy?   Thanks for any help 
    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.