Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Here


gf4life

Recommended Posts

gf4life Enthusiast

Is there anyone here who would consider being my gluten free/dairy (casein) free online buddy. I need support for it because my kids are not planning on being dairy free again anytime in the future and so the cheese/ice cream/milk will still be in the house. So far I haven't been able to stick to it. I reduced my consumption, but have not stuck to eliminating it altogether.

When I was off dairy for over a year I felt great and lost over 25 lbs. I went back on dairy slowly and felt fine with it for about 6 months. Then my health started slowly going downhill and my weight started to creep back up! I have now gained back about 20lbs. :( I really need to lose about 50-60 lbs to be at my ideal weight. I was so happy to have been about half way there.

I just really need someone who will support me. Someone who will check in with me every few days and see how I am doing, who will listen to me rant about how crazy it is making me to not be able to eat cheese (the only thing I cannot replace with a good substitute), and who will yell at me (loud enough to be heard through the computer!) if I feel like giving up and just dealing with the reduced health and excess weight...

Please PM or email me if you are willing to help. If you are in the same boat as me I would be more than happy to support you back! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

Hi gf4life,

I hope you found a casein-free support buddy! I would offer to help but I have such an awful reaction to casein (exactly like my gluten reaction - knocks me out for 10+ days) that I had NO problem at all giving it up! It's a double-edged sword I guess - I have zero urge to 'cheat' because those foods to me now seem like poison, but then again I can very easily get sick from the most minute amount of the 6 food groups I react to, that I can no longer eat out. I miss that aspect of my life more than the foods themselves. And I miss coffee and wine (yeast allergy) MUCH more than cheese!

I also couldn't find a good cheese substitute because I'm also allergic to soy, which is in all the casein-free fake cheeses. I just try and focus on the good stuff I CAN eat, and on how great not feeling sick all the time feels. Cheese is tasty, but I ask myself what would I miss more, cheese or strawberries? Cheese or (dairy-free/soy-free) chocolate? It makes me thankful for the delicious stuff I still can eat. And more than that, thankful for my health, at last. :)

gf4life Enthusiast

Yes I did find some support "buddies".

I am on my 4th day now Gluten-free Casein-free. I am doing fine. My belly is quiet again.

Today for lunch I had chicken tacos with avocado instead of cheese. It is a similar texture to melted cheese and so it fits the bill for most foods, except italian. Pasta and pizza are just not the same without cheese. I can do pizza with lots of toppings and not miss the cheese too much, but I can't eat it that way very often. What do I use to substitute cheese in lasagna??

Anyhow, I know what you mean about the soy cheese. It doesn't taste very good anyhow, but I am also allergic to soy. The first time I had the soy cheese I just had a little and took some benadryl. I still got itchy and had to take more. The second time I had some soy cheese I had problems breathing and figured I shouldn't try it a third time or else I might have a worse reaction! I took my soy allergy a lot more serious after that experience. :blink:

Guest jhmom

Hi Mariann,

Good to hear from you, I haven't seen you in awhile! I am glad you have found a CF buddy to help you through this, I know it must be hard! Take care :)

gf4life Enthusiast
Good to hear from you, I haven't seen you in awhile!

Hi Stacie,

I was just thinking the same about you. I've been here, but just not having the time to post very often. It has been crazy this year.

I'm doing well on the Gluten-free Casein-free diet. This is the first week in the past 6 months that my tummy has been calm and I haven't hardly needed the digestive enzymes. I do miss cheese the most, and it is taking a lot of thought to get through each meal, but I am getting there. There is just so much in the house with dairy in it...

Hope all is well for you.

God bless you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...