Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Here

gf4life

By gf4life
in Related Issues & Disorders

Recommended Posts

gf4life Enthusiast
gf4life
Posted

Is there anyone here who would consider being my gluten free/dairy (casein) free online buddy. I need support for it because my kids are not planning on being dairy free again anytime in the future and so the cheese/ice cream/milk will still be in the house. So far I haven't been able to stick to it. I reduced my consumption, but have not stuck to eliminating it altogether.

When I was off dairy for over a year I felt great and lost over 25 lbs. I went back on dairy slowly and felt fine with it for about 6 months. Then my health started slowly going downhill and my weight started to creep back up! I have now gained back about 20lbs. :( I really need to lose about 50-60 lbs to be at my ideal weight. I was so happy to have been about half way there.

I just really need someone who will support me. Someone who will check in with me every few days and see how I am doing, who will listen to me rant about how crazy it is making me to not be able to eat cheese (the only thing I cannot replace with a good substitute), and who will yell at me (loud enough to be heard through the computer!) if I feel like giving up and just dealing with the reduced health and excess weight...

Please PM or email me if you are willing to help. If you are in the same boat as me I would be more than happy to support you back! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cornbread Explorer
cornbread
Posted

Hi gf4life,

I hope you found a casein-free support buddy! I would offer to help but I have such an awful reaction to casein (exactly like my gluten reaction - knocks me out for 10+ days) that I had NO problem at all giving it up! It's a double-edged sword I guess - I have zero urge to 'cheat' because those foods to me now seem like poison, but then again I can very easily get sick from the most minute amount of the 6 food groups I react to, that I can no longer eat out. I miss that aspect of my life more than the foods themselves. And I miss coffee and wine (yeast allergy) MUCH more than cheese!

I also couldn't find a good cheese substitute because I'm also allergic to soy, which is in all the casein-free fake cheeses. I just try and focus on the good stuff I CAN eat, and on how great not feeling sick all the time feels. Cheese is tasty, but I ask myself what would I miss more, cheese or strawberries? Cheese or (dairy-free/soy-free) chocolate? It makes me thankful for the delicious stuff I still can eat. And more than that, thankful for my health, at last. :)

gf4life Enthusiast
gf4life
Posted
  • Author

Yes I did find some support "buddies".

I am on my 4th day now Gluten-free Casein-free. I am doing fine. My belly is quiet again.

Today for lunch I had chicken tacos with avocado instead of cheese. It is a similar texture to melted cheese and so it fits the bill for most foods, except italian. Pasta and pizza are just not the same without cheese. I can do pizza with lots of toppings and not miss the cheese too much, but I can't eat it that way very often. What do I use to substitute cheese in lasagna??

Anyhow, I know what you mean about the soy cheese. It doesn't taste very good anyhow, but I am also allergic to soy. The first time I had the soy cheese I just had a little and took some benadryl. I still got itchy and had to take more. The second time I had some soy cheese I had problems breathing and figured I shouldn't try it a third time or else I might have a worse reaction! I took my soy allergy a lot more serious after that experience. :blink:

Guest jhmom
Guest jhmom
Posted

Hi Mariann,

Good to hear from you, I haven't seen you in awhile! I am glad you have found a CF buddy to help you through this, I know it must be hard! Take care :)

gf4life Enthusiast
gf4life
Posted
  • Author
Good to hear from you, I haven't seen you in awhile!

Hi Stacie,

I was just thinking the same about you. I've been here, but just not having the time to post very often. It has been crazy this year.

I'm doing well on the Gluten-free Casein-free diet. This is the first week in the past 6 months that my tummy has been calm and I haven't hardly needed the digestive enzymes. I do miss cheese the most, and it is taking a lot of thought to get through each meal, but I am getting there. There is just so much in the house with dairy in it...

Hope all is well for you.

God bless you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748
    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      EMA Result

      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      Violent reaction to gluten after going gluten-free?

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • Scott Adams
      Seeking advice on potential gluten challenge

      By Scott Adams · Posted

      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      Violent reaction to gluten after going gluten-free?

      By Greymo · Posted

      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      EMA Result

      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.