Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr Not Knowlegable


jinches

Recommended Posts

jinches Rookie

I'm totally understandable on that. My son was just diagonased gluten intollerant, he has been very sick for quite some time. They kept putting him thru the ringer running all kinds of tests without any answers. I kept telling them that evertime he ate it didn't matter what it was he got very ill. So they assumed it was his gallbladder and they removed it but that still didn't help. All they had to do was some blood work to test him for this and it wasn't done. When I brought to my sons Dr. attention that Eric could possibly have Celiac and I wanted him tested for it, it was like pulling teeth. I was ready to walk out of the office before he decided to call my sons GI an do the blood work that needed to be done. He was in such denial that Eric could have this cause he kept saying it was all in Eric's head he needed to see a therapist. Needless to say the test came back positive ( he did it twice cause he said it could be a false positive yea right). He made the remark that this was beyond his expertise. I wonder where he got his degree. I'll be looking for a new Dr. too but just don't know where. Good Drs. are hard to find anymore. I feel for you totally. Lots of luck...

Jan

I'm totally understandable on that. My son was just diagonased gluten intollerant, he has been very sick for quite some time. They kept putting him thru the ringer running all kinds of tests without any answers. I kept telling them that evertime he ate it didn't matter what it was he got very ill. So they assumed it was his gallbladder and they removed it but that still didn't help. All they had to do was some blood work to test him for this and it wasn't done. When I brought to my sons Dr. attention that Eric could possibly have Celiac and I wanted him tested for it, it was like pulling teeth. I was ready to walk out of the office before he decided to call my sons GI an do the blood work that needed to be done. He was in such denial that Eric could have this cause he kept saying it was all in Eric's head he needed to see a therapist. Needless to say the test came back positive ( he did it twice cause he said it could be a false positive yea right). He made the remark that this was beyond his expertise. I wonder where he got his degree. I'll be looking for a new Dr. too but just don't know where. Good Drs. are hard to find anymore. I feel for you totally. Lots of luck...

Jan

oops I put this in the wrong spot. I was commenting on someones post. I'm trying to learn how to use this forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

Many doctors are not knowledgable and it is like pulling teeth to get them to do the test. Then they do it wrong by not giving you the information you need to do the test. Of course they don't give you the information because they know nothing about it. It is one big vicious circle.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.