Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reflux Discussion


Jnkmnky

Recommended Posts

ebrbetty Rising Star
my reflux is getting so bad---i am having trouble swallowing my food down. i'm going to have to go see a gi---i've just put it off for so long. sometimes when i burp, my food comes upt to the back of my throat.

christine

christine, do you have acid/burning too? if nothing else works, try baking soda..it will calm it down!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

i don't get alot of burning---unless something gets stuck. i once had food stuck in my esophagus for 30-45 min. it was awful and hurt so bad. i couldn't swallow anything. i'd throw up fluid from my esophagus,(nothing from my stomach, since it was blocked) get a little relief, and then the pain would start up again. i am wondering if i have a stricture. i also feel like i have something caught in there sometimes. i used to get horrible chest pains that would hurt all the way to my teeth. my husband loves to use baking soda for heartburn.

christine

Jnkmnky Collaborator
i don't get alot of burning---unless something gets stuck. i once had food stuck in my esophagus for 30-45 min. it was awful and hurt so bad. i couldn't swallow anything. i'd throw up fluid from my esophagus,(nothing from my stomach, since it was blocked) get a little relief, and then the pain would start up again. i am wondering if i have a stricture. i also feel like i have something caught in there sometimes. i used to get horrible chest pains that would hurt all the way to my teeth. my husband loves to use baking soda for heartburn.

christine

I don't know what your insurance looks like, but for me, I'd rather try one of the procedures rather than live with the symptoms of reflux. For me, anyway, it's all I can focus on when it gets going. It rules my life. I haven't gone off the prilosec today because I didn't want to be in the throws of fiery agony for easter baskets and hunting.. That would be a bummer. So, I'll go off the meds when my kids go back to school on Monday... I have to say, I'm scared of how it's going to go! :mellow:

chrissy Collaborator

the meds are so darn expensive---even with insurance. i would like to do a fundo on one of my twins. my baby has had a fundo. i think i need an endo done----then i can decide what to do from there. right now i am taking nexium---my doc gave me a months worth of samples.

christine

key Contributor

JnkMnky,

I have the burning in my throat when I get heartburn. I don't have the actual food coming back up in my mouth or anything. I went off prilosec for a month without a problem. Then got careless about caffeine, mainly had coffee two days in a row and I was miserable. So this is my worst trigger. I am on prilosec again for three days, but gave up the coffee again and so I am hoping to go off the prilosec tomorrow again. I just need to follow the diet that is best for me.

Hope you get some relief. I can feel your pain. It is a miserable thing to have.

Monica

Jnkmnky Collaborator
JnkMnky,

I have the burning in my throat when I get heartburn. I don't have the actual food coming back up in my mouth or anything. I went off prilosec for a month without a problem. Then got careless about caffeine, mainly had coffee two days in a row and I was miserable. So this is my worst trigger. I am on prilosec again for three days, but gave up the coffee again and so I am hoping to go off the prilosec tomorrow again. I just need to follow the diet that is best for me.

Hope you get some relief. I can feel your pain. It is a miserable thing to have.

Monica

My problem is that I've been on the prilosec for so long( 2 1/2 months ), that a rebound effect is very likely. I tried to go off it while my husband was home and WHOA! I couldn't take the pain. I took a pill by 1pm on the second day. Plus, I burped constantly. I opened my mouth to talk and burps came out. It wasn't a small deal. It was like constant. So, I am off coffee, past the headache stage, and ready to go tomorrow for the big quit. I'm really nervous about how bad it will be because I was hunched over, gripping my chest after only one day off the prilosec! :unsure: I relate to that "heart attack" feeling.

Fiddle-Faddle Community Regular
My problem is that I've been on the prilosec for so long( 2 1/2 months ), that a rebound effect is very likely. I tried to go off it while my husband was home and WHOA! I couldn't take the pain. I took a pill by 1pm on the second day. Plus, I burped constantly. I opened my mouth to talk and burps came out. It wasn't a small deal. It was like constant. So, I am off coffee, past the headache stage, and ready to go tomorrow for the big quit. I'm really nervous about how bad it will be because I was hunched over, gripping my chest after only one day off the prilosec! :unsure: I relate to that "heart attack" feeling.

Can you take Tums? Do they contain gluten? Or Mylanta?

Maybe the baby reflux diet (half as much twice as often) might help?

And stay away from citrus , tomato sauce, and other acidic or spicy foods for a while! I wonder if rice can help with the acid?

Good luck--let us know how it's going!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

Thanks fiddle... the GI told me to get a few bottles of mylanta and prepare for the worst. Tums doesn't help me much at all. He said to expect it to be pretty bad for at least the couple first days... by the FIFTH :o day to expect it to be better IF it's going to get better!!! double yikes! :o:o

key Contributor

Jnkmnky,

I don't know why, but Tums and Rolaids makes mine worse, I believe. I don't understand it at all. I think I do need to stay away from high fat, dairy and mainly coffee and diet soda. I don't know why Mt. Dew doesn't bother me. So strange. I don't like all the sugar in them though, so I really just need to give all my addictions up. I was on Prilosec for a month and tried to go off of it once or twice in there, but couldn't. THen I quit it after a month and I wasn't drinking coffee and I was fine for like three weeks. Drank coffee two days and it was back again. Very annoying. I don't have it as bad as you do I guess. I have been on Prilosec for four days again, but I am planning on going off now that I quit coffee.

I really believe though that not eating the foods that give us troubles can help it, if not cure it. Just being committed to it is hard for me. There are already so many things I can't have.

Monica

Jnkmnky Collaborator

Well, I'm commited to going coffee free. I did it once for like three years, so I know I can do it. I AM doing it right now... just that I really like the stuff. Well, it's no longer a choice when the consequence is inability to function, I guess. Being gluten free, mostly dairy free, coffee and soda free... well, it's all for the best. The burps have already started. Everytime I MOVE.. seriously. :( At least it hasn't started hurting! :)

Fiddle-Faddle Community Regular

Could exercise help? Maybe it would help foods--and acid-- move faster through the system?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.