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Just Diagnosed With Celiac

odcdinah

By odcdinah
in Coping with Celiac Disease

Recommended Posts

odcdinah Contributor
odcdinah
Posted

Hi everyone,

I've just been diagnosed with celiac and feel completely overwhelmed, so I'm glad to see this board.

I'd like to know how long it took folks to start feeling better after beginning a gluten-free diet?? Thanks!

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RoseNNJ Apprentice
RoseNNJ
Posted

Welcome! Theres a lot of great people here with tons of support. I think everyone is different in how long it takes to feel better. I have been gluten-free since January. I no longer have to run to the bathroom. I hope you feel better soon :)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I have been gluten free since Oct 2005. It took a while to be able to digest even the simpliest of foods. I think everyone is different. The one thing that this board helped me get thru and remind me time after time, is that it does get better. It may take some time.. but you will feel better.

Welcome! Any questions you may have, just post them here and they will be answered. The people here are great!

Tinkerbell

kessea Newbie
kessea
Posted

Hi I am new too, and I agree it is very overwhelming! No Beer? Oh no :unsure:

francelajoie Explorer
francelajoie
Posted
Hi I am new too, and I agree it is very overwhelming! No Beer? Oh no :unsure:

There are a couple beers out there for you...thank god!!

New Grists, Rampo Valley, La Messagere (Canadian)

Search the board and you will find info on them.

carriecraig Enthusiast
carriecraig
Posted

Hi and welcome to you too! It is very overwhelming at first, and this messageboard can help answer a lot of your questions.

I started feeling better after a couple of months on the gluten-free diet. I'd say by a year, I will be completely healed, and feeling like I did before my Celiac diagnosis.

Rusla Enthusiast
Rusla
Posted

Welcome to the board. I have been gluten-free since Nov 28,2005 and without this board I don't know how I would have ever survived. We are like one extended family, so like a family sometimes we debate things and have different opinions. However, we all basically get along and you can learn more here than anywhere else. There are no stupid questions here. Everyone has different lengths of time it takes them to get better. So although some things changed within the first week for me there are still things that are not all super duper. I certainly know when I have been glutened and I can tell within five minutes.

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KaitiUSA Enthusiast
KaitiUSA
Posted

Hang in there guys...it does get easier. Things won't tempt you as much and you will know what to look for as time goes on. It becomes like a natural part of life for you and you will learn there is so much we can still hanve and good replacements for the stuff we can't have. Email me if you need any help at all.

kessea Newbie
kessea
Posted
There are a couple beers out there for you...thank god!!

New Grists, Rampo Valley, La Messagere (Canadian)

Search the board and you will find info on them.

whew! thanks for the info and i will search the board!

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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