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Just Diagnosed With Celiac


odcdinah

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odcdinah Contributor

Hi everyone,

I've just been diagnosed with celiac and feel completely overwhelmed, so I'm glad to see this board.

I'd like to know how long it took folks to start feeling better after beginning a gluten-free diet?? Thanks!


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RoseNNJ Apprentice

Welcome! Theres a lot of great people here with tons of support. I think everyone is different in how long it takes to feel better. I have been gluten-free since January. I no longer have to run to the bathroom. I hope you feel better soon :)

TinkerbellSwt Collaborator

I have been gluten free since Oct 2005. It took a while to be able to digest even the simpliest of foods. I think everyone is different. The one thing that this board helped me get thru and remind me time after time, is that it does get better. It may take some time.. but you will feel better.

Welcome! Any questions you may have, just post them here and they will be answered. The people here are great!

Tinkerbell

kessea Newbie

Hi I am new too, and I agree it is very overwhelming! No Beer? Oh no :unsure:

francelajoie Explorer
Hi I am new too, and I agree it is very overwhelming! No Beer? Oh no :unsure:

There are a couple beers out there for you...thank god!!

New Grists, Rampo Valley, La Messagere (Canadian)

Search the board and you will find info on them.

carriecraig Enthusiast

Hi and welcome to you too! It is very overwhelming at first, and this messageboard can help answer a lot of your questions.

I started feeling better after a couple of months on the gluten-free diet. I'd say by a year, I will be completely healed, and feeling like I did before my Celiac diagnosis.

Rusla Enthusiast

Welcome to the board. I have been gluten-free since Nov 28,2005 and without this board I don't know how I would have ever survived. We are like one extended family, so like a family sometimes we debate things and have different opinions. However, we all basically get along and you can learn more here than anywhere else. There are no stupid questions here. Everyone has different lengths of time it takes them to get better. So although some things changed within the first week for me there are still things that are not all super duper. I certainly know when I have been glutened and I can tell within five minutes.


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KaitiUSA Enthusiast

Hang in there guys...it does get easier. Things won't tempt you as much and you will know what to look for as time goes on. It becomes like a natural part of life for you and you will learn there is so much we can still hanve and good replacements for the stuff we can't have. Email me if you need any help at all.

kessea Newbie
There are a couple beers out there for you...thank god!!

New Grists, Rampo Valley, La Messagere (Canadian)

Search the board and you will find info on them.

whew! thanks for the info and i will search the board!

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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