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Hi - Questions Before...

AmandaD

By AmandaD
in Coping with Celiac Disease

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AmandaD Community Regular
AmandaD
Posted

Hi again,

All right - so tomorrow's my 6-month re-check. My D has left me and I seem to be doing fine. What should I be talking to about with the doctor tomorrow? Do I have to have more tests?

I'm kind of nervous - I keep having this image of them pulling out a "surprise" endoscopy tomorrow while I'm sitting there...hee, hee...

Amanda :D

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dlp252 Apprentice
dlp252
Posted

Ha, well, you might be safe on the surprise thing unless you have an emergency...I think they usually like to have the stomach empty before they do it. By-the-way, I had one last Monday and it was just fine...I slept through it...had it at the same time as my colonoscopy, and whatever sedative they gave me, just made me sleep through the whole thing. I do have lovely pictures though. :lol:

Can't help with questions though since I'm just now going through the first round with this doctor. I see him tomorrow for the results of my scope and I'll ask him about retesting.

jerseyangel Proficient
jerseyangel
Posted

At my 6 month, the doctor asked me how I was doing with the diet, and if the D was improving. He asked if I needed any meds for cramping and told me to come back in a year. Short and sweet :D Hope your appt goes well!

AmandaD Community Regular
AmandaD
Posted
  • Author

Thanks Guys.

Actually an endoscopy doesn't sound so bad. 3 hours of uninterrupted sleep with noone screaming for milk or a diaper...if you know what I mean...

JessicaB Explorer
JessicaB
Posted

Hello.

I have been gluten-free since december. My fup is in may. They told me they would redo the blood work, to make sure all of my levels are ok. Nutrients etc. Also they will look at the testing of the intolerance that originally diagnosed me. Maybe they will just talk to you, maybe they will also do the bloodwork> Good luck!

AmandaD Community Regular
AmandaD
Posted
  • Author

Jessica - I'm looking at your signature - jeesh - you had to go through 2 biopsies? That sucks! And they ended up diagnosing you because of your bloodwork? What were your levels - was it the TTG...that sounds like quite an experience!!!!!!!!!

Hello.

I have been gluten-free since december. My fup is in may. They told me they would redo the blood work, to make sure all of my levels are ok. Nutrients etc. Also they will look at the testing of the intolerance that originally diagnosed me. Maybe they will just talk to you, maybe they will also do the bloodwork> Good luck!

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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