Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Problems


PreOptMegs

Recommended Posts

munchkinette Collaborator

Does the "normal" range vary depending on your hospital? I'm just curious. I got all my test results back yesterday. I'm still really tired even though my iron levels are improving.

My TSH is 1.32, and the normal range says 0.49 - 4.67. I looked back at my tests from the past three years, and it looks like my tests are all 1.2 - 1.8.

My free T4 is 0.90, but I've never had this test before so I don't know what it means.

In fact, most of my tests (thyroid tests, iron and bloodcount tests) are in the "normal" range, but in the really low end.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 81
  • Created
  • Last Reply
PreOptMegs Explorer

TSH of 1.32 is pretty good. I also do no know about Free T3/4 and what is a good level for them. You say that you still don't have energy?

munchkinette Collaborator

OK, just wondering. My gran had to take thyroid supplements although I don't know at what age she started. She had problems with wheat too, so that's why I was curious. I have more of her problems (and looks!) than from any other family member.

Yeah, I'm still always tired. My ferritin test came back yesterday though. It's still very low, but it's in the normal range for the first time in three years!

My doctor kinda ticked me off though. I gained about 5 lbs since last time, which barely puts me into the overweight category. (Total BS, since my frame is so large.) Um yeah, NO kidding I should lose some weight. How about she help me figure out why I'm so freakin' tired all the time? Then maybe I could exercise more. It's not like I'm lazy. I used to be able to run 3-6 miles!

Lymetoo Contributor
Yeah, the damn TSH. Doctors think this is just the best thing in the world.... I hate it. "Normal" range is rediciulous --- from 0.3-5 or something. If my TSH is even around 2, I don't lose weight. It is so hard trying to get the right synthroid dose so I can actually lose weight.

My dr started me on Armour Thyroid several months ago. Can't say I've lost weight yet, but I'm still in the process of finding the correct dosage for me. My TSH is also within normal range. I think some people are unable to convert T3 to T4 or something like that.

I'm also in Missouri if you'd like to know who my dr is. He's awesome!

PS...Carrots contain alot of sugar and are fairly high on the glycemic index. This could be the problem.

ms-sillyak-screwed Enthusiast

I'm leaving in a few days to go to Boston / Havard to see a specialist in celiac disease. Before I go, I'm going to have my blood drawn and this time I'm going to have them test my T3 along with the thyroid panel they do. I have kept a chart of levels.

I also wonder if it has something to do with T4 converting to T3??? I don't know that difference in FREE T3 or FREE 4 ???

I will say this - alternating my doseage of medication has helped with my symptons. 75 mcg - 88 mcg - 75 mcg and so on.

munchkinette -- Yes, I have noticce that the number range are different if I go to the lab, or dr's office... I wish they would get it right... And the other thing one of my doc's brought up (my neurogist). The time of day you have the test done has something to the results. Like if you took your medication 12 hours before or 2 hour before... follow me?

jennifervan -- I looked up what was in those rice products you are eating. They don't list their ingredients. But say they are free of the deadly 8 allergens.

I know that after several years gluten and dairy free, around the time the hyper-nodule came about I was no longer able to eat, legume = soy, corn, potatos, rice, and night shade veggies. I since removed them from my diet and body from everything - my mouthwash, toothpaste, hair shampoo, make up, to the soap I wash my body with. You have no idea how hard it is to find a body soap that doesn't contain coconut or soy. Both effect the thyroid. Anyway, what I'm getting at - is - you might have a problem with a secondary food intolerance and not know it. Maybe it's rice? Or corn? Or the soy? Soy is hidden in almost everything. And they can call it natural flavoring, or etc. I have been working very hard at the rotation diet. I will say this, it is helping, slowly, but it is helping.

Lymetoo -- You are right about the carrots. They are also on my 3 day rotation now.

I have been able to eat, small amounts of rice and potato skins on my rotation of 5 days out...

Keep a food/body journal. I do. It is amazing what you learn.

zip2play Apprentice

Add me to the list of people who have WHEAT issues and Thyroid issues. After a year of testing, they finally found the problem. My numbers have always been in the normal range, although in the low end of normal. They did a sonogram last week, I have several nodules on my thyroid and a fairly good sized cyst. I am scheduled for a needle biopsy on July 26th. Hope to know more then.

So, is wheat issues and thyroid issue related?

MOnica

lindalee Enthusiast
I once read that going prematurely grey is a symptom of thyroid disease. Has anyone else read this? Has anyone else experienced this? I went totally grey in my early 20's (thank God for L'Oreal Preference!)

Karen

execellence is gluten-free too, right? Sorry, can't miss an opportunity :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.