Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Issues - Your Experience Please?


Mongoose

Recommended Posts

Mongoose Rookie

I'm hoping someone here can let me know if they've had a similar experience with dairy and behavior ...

I went gluten-free 3-1/2 years ago (self-diagnosed), and my companion went gluten-free 7 months after I did (also self-diagnosed). We both figured out eventually that we get mood swings (rage and depression, and very vocal about it) on the 4th day after we've been glutened. We eventually found that 50 mg daily of vitamin B6 helps stop this (Open Original Shared Link for example). Before going gluten-free we were pretty cranky and nasty tempered and depressed. After going gluten-free life was incredibly better on both the physical and emotional levels.

Now the kicker. I cut way back on dairy shortly after going gluten-free, but my companion didn't. Slowly, over a year or more, he started getting cranky, ill-tempered and withdrawn again. Then he realized that milk was making him cough after dinner so he quit drinking it, and within a few days he was just so sweet and social again it was almost like living with a totally different person. But he was still eating cheese, and slowly over several months he got cranky, withdrawn and ill-tempered again. Now from my side of it, when he's like that it seems very much like a gluten rage. But internally we can both feel and recognize the gluten rage and cope with it. He says he doesn't recognize the dairy rage. And the vitamin B6 that stops the gluten rage obviously doesn't do anything at all for the dairy rage. Anyway, we're both dairy free now. Once again he is social and sweet natured. And now he's experiencing some of the changes that I noticed when going gluten-free but he didn't, like the loss/absence of anger. He kind of feels like part of him is missing.

Has anyone else been through this with dairy? Does anyone know of a particular vitamin deficiency associated with behavior problems due to casein-intolerance, which is what I'm assuming the problem is? Most margarines seem to have whey in them -- will this also turn out to be a problem? I've read that sometimes soy will affect behavior. Does anyone have any experience with that? I'm wondering if I also need to take soy out of our diet just in case.

Thanks so much for any input!

Mongoose


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Wow, you're lucky your partner is receptive to changing his diet to restore his good nature.

I think with a food intolerance it is as likely to be some partially digested peptide that slips into the blood stream that causes the mood funkiness. I doubt it is something you can control with supplements, unfortunately.

kabowman Explorer

I have noticed that my youngest son (lactose intolerance only) had mood issues when he has lactose. Now, we limit/control the lactose in our house-meaning he only has it occasionnaly and with pills. However, he has it a limited amount at school (he avoids it if at all possible) and at his fathers (who says they rarely have milk in their foods--well, he comes home with D and cramping every time I guess cheese and waffles with butter don't count--sorry). He takes calcium suppliments in the evening, lactaid milk (which has calcium added) with cereal in the morning.

The problem is: I don't know if the mood issues, which are gone when he is lactose free, are more to do with the discomfort of gas, cramps, D, interrupted sleep, or if it is a lactose issue. BUT either way, they are there.

Most margarines have dairy but not all - all margarines have soy. If you are not sure about the mood with soy, you may want to get the dairy free margarines for now and watch for behavior issues - especially if you use it sparingly. I don't use any margarines and make due with nut butters and/or honey.

Soy is in everything! Worse than gluten...watch what you buy.

Jnkmnky Collaborator

Great info about dairy is on the Gluten-free Casein-free website for autism. Their explanations are very thorough.

cornbread Explorer

Mongoose, it sounds like casein intolerance. I found I had that a few months after going gluten free (both things give me that depressed/angry/irritable thing, amoung other symptoms). Casein is the protein in dairy and it's VERY similar structurally to gluten, about 70% of gluten intolerant people also react to casein.

You can have a simple test done for $99 at Open Original Shared Link.

Good work so far btw! :)

Mongoose Rookie
The problem is: I don't know if the mood issues, which are gone when he is lactose free, are more to do with the discomfort of gas, cramps, D, interrupted sleep, or if it is a lactose issue. BUT either way, they are there.

Most margarines have dairy but not all - all margarines have soy. If you are not sure about the mood with soy, you may want to get the dairy free margarines for now and watch for behavior issues - especially if you use it sparingly. I don't use any margarines and make due with nut butters and/or honey.

Soy is in everything! Worse than gluten...watch what you buy.

Thanks for the suggestion on the nut butters. I'll start looking into that.

Does your son sleep restlessly? My companion was extremely restless at night before we went gluten-free. Now that he's quit with dairy too he's sleeping so sound and quiet it's amazing. He doesn't even snore now. I wonder if you could switch to an alternate milk for a couple of days to find out if the moodiness and interrupted sleep would ease up? Best of luck!

Mongoose

You can have a simple test done for $99 at Open Original Shared Link.

Good work so far btw! :)

Thanks :) That's a good suggestion to have testing done. I didn't know that a test was available for casein intolerance. Enterolab does gene testing too, I think, and I've always wanted to have that done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748

    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.