Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Issues - Your Experience Please?


Mongoose

Recommended Posts

Mongoose Rookie

I'm hoping someone here can let me know if they've had a similar experience with dairy and behavior ...

I went gluten-free 3-1/2 years ago (self-diagnosed), and my companion went gluten-free 7 months after I did (also self-diagnosed). We both figured out eventually that we get mood swings (rage and depression, and very vocal about it) on the 4th day after we've been glutened. We eventually found that 50 mg daily of vitamin B6 helps stop this (Open Original Shared Link for example). Before going gluten-free we were pretty cranky and nasty tempered and depressed. After going gluten-free life was incredibly better on both the physical and emotional levels.

Now the kicker. I cut way back on dairy shortly after going gluten-free, but my companion didn't. Slowly, over a year or more, he started getting cranky, ill-tempered and withdrawn again. Then he realized that milk was making him cough after dinner so he quit drinking it, and within a few days he was just so sweet and social again it was almost like living with a totally different person. But he was still eating cheese, and slowly over several months he got cranky, withdrawn and ill-tempered again. Now from my side of it, when he's like that it seems very much like a gluten rage. But internally we can both feel and recognize the gluten rage and cope with it. He says he doesn't recognize the dairy rage. And the vitamin B6 that stops the gluten rage obviously doesn't do anything at all for the dairy rage. Anyway, we're both dairy free now. Once again he is social and sweet natured. And now he's experiencing some of the changes that I noticed when going gluten-free but he didn't, like the loss/absence of anger. He kind of feels like part of him is missing.

Has anyone else been through this with dairy? Does anyone know of a particular vitamin deficiency associated with behavior problems due to casein-intolerance, which is what I'm assuming the problem is? Most margarines seem to have whey in them -- will this also turn out to be a problem? I've read that sometimes soy will affect behavior. Does anyone have any experience with that? I'm wondering if I also need to take soy out of our diet just in case.

Thanks so much for any input!

Mongoose


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Wow, you're lucky your partner is receptive to changing his diet to restore his good nature.

I think with a food intolerance it is as likely to be some partially digested peptide that slips into the blood stream that causes the mood funkiness. I doubt it is something you can control with supplements, unfortunately.

kabowman Explorer

I have noticed that my youngest son (lactose intolerance only) had mood issues when he has lactose. Now, we limit/control the lactose in our house-meaning he only has it occasionnaly and with pills. However, he has it a limited amount at school (he avoids it if at all possible) and at his fathers (who says they rarely have milk in their foods--well, he comes home with D and cramping every time I guess cheese and waffles with butter don't count--sorry). He takes calcium suppliments in the evening, lactaid milk (which has calcium added) with cereal in the morning.

The problem is: I don't know if the mood issues, which are gone when he is lactose free, are more to do with the discomfort of gas, cramps, D, interrupted sleep, or if it is a lactose issue. BUT either way, they are there.

Most margarines have dairy but not all - all margarines have soy. If you are not sure about the mood with soy, you may want to get the dairy free margarines for now and watch for behavior issues - especially if you use it sparingly. I don't use any margarines and make due with nut butters and/or honey.

Soy is in everything! Worse than gluten...watch what you buy.

Jnkmnky Collaborator

Great info about dairy is on the Gluten-free Casein-free website for autism. Their explanations are very thorough.

cornbread Explorer

Mongoose, it sounds like casein intolerance. I found I had that a few months after going gluten free (both things give me that depressed/angry/irritable thing, amoung other symptoms). Casein is the protein in dairy and it's VERY similar structurally to gluten, about 70% of gluten intolerant people also react to casein.

You can have a simple test done for $99 at Open Original Shared Link.

Good work so far btw! :)

Mongoose Rookie
The problem is: I don't know if the mood issues, which are gone when he is lactose free, are more to do with the discomfort of gas, cramps, D, interrupted sleep, or if it is a lactose issue. BUT either way, they are there.

Most margarines have dairy but not all - all margarines have soy. If you are not sure about the mood with soy, you may want to get the dairy free margarines for now and watch for behavior issues - especially if you use it sparingly. I don't use any margarines and make due with nut butters and/or honey.

Soy is in everything! Worse than gluten...watch what you buy.

Thanks for the suggestion on the nut butters. I'll start looking into that.

Does your son sleep restlessly? My companion was extremely restless at night before we went gluten-free. Now that he's quit with dairy too he's sleeping so sound and quiet it's amazing. He doesn't even snore now. I wonder if you could switch to an alternate milk for a couple of days to find out if the moodiness and interrupted sleep would ease up? Best of luck!

Mongoose

You can have a simple test done for $99 at Open Original Shared Link.

Good work so far btw! :)

Thanks :) That's a good suggestion to have testing done. I didn't know that a test was available for casein intolerance. Enterolab does gene testing too, I think, and I've always wanted to have that done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.