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Getting Tests Back...

AmandaD

By AmandaD
in Coping with Celiac Disease

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AmandaD Community Regular
AmandaD
Posted

All right...so I know this is the millionth time I've written about this.

Have any of you who've been diagnosed by your doc with Celiac, gone through a re-check and seen how you're responding...by this I mean getting the TTG done again and then comparing it with your first test.

I'm waiting for mine to come back and I'd like to know if people have seen theirs stay the same, drop or go up higher? Or have some of you not been re-checked by your doc...your feelings on this?

Thanks.

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VydorScope Proficient
VydorScope
Posted

My sons pedi gi wants too but we are still undecided so I would too be intrested in hearing replies here...

AmandaD Community Regular
AmandaD
Posted
  • Author

Thanks for the response Vincent...do you mean your son's ped gi wants to do follow-up testing or the actual celiac test? he's already been diagnosed, right?

Thanks for the response Vincent...do you mean your son's ped gi wants to do follow-up testing or the actual celiac test? he's already been diagnosed, right?

Woops! I see you mean the follow-up...

VydorScope Proficient
VydorScope
Posted
Thanks for the response Vincent...do you mean your son's ped gi wants to do follow-up testing or the actual celiac test? he's already been diagnosed, right?

Well he has the postive blood test, but the doc wants to re-test after he has been gluten-free for a while to confirm the dx.

AmandaD Community Regular
AmandaD
Posted
  • Author
Well he has the postive blood test, but the doc wants to re-test after he has been gluten-free for a while to confirm the dx.

You also have Celiac too, right?

VydorScope Proficient
VydorScope
Posted
You also have Celiac too, right?

Nope, though I might for a while, but does not look like I do, but I think it runs in my faimly as oposed to my wife's so I likly carry the gene.

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    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      Typical, I suppose. 
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
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      Terrible Neurological Symptoms

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    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      @jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread) for several weeks leading up to the day of the blood draw.
    • trents
      How much gluten do I need to eat prior to testing?

      By trents · Posted

      Yes, that might work as well.
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