Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors-worth It?


Idahogirl

Recommended Posts

Idahogirl Apprentice

It seems like I am constantly being told by other doctors (ob/gyn, dermatologist) that I should be seeing a GI doctor, or in the case of my pregnancy, they recommended a nutritionist. I've been down this road, and it seems like a waste of time and money. If I'm doing the diet, why do I need to pay money to go tell a guy that everything's going fine. Shouldn't doctors be there for when there is something wrong and you need help?

Has anyone that has been doing the gluten free diet benefited from seeing a nutritionist? My preg. doctor keeps mentioning it, but I have a feeling that they are going to tell me what I already know, and give me lists I already have. When I first got diagnosed, my GI sent me to one, and she knew nothing. I hadn't even started the diet, and I could walk circles around her with all my knowledge.

It seems to me like doctors sometimes have an overinflated sense of self-importance. Like we need them in order to survive properly. What is the benefit in an appointment where the doctor just wants to make sure everything is still going okay? How about I'll call him if everything ISN'T going okay???

Agree? Disagree?

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debbiewil Rookie

Well, one thing you DON'T want to do when you are sick is find a new doctor. You should have one or two that you like, and checked out when you were feeling well. For instance, if you think you may need a GI, say to do an endo in a couple of years to make sure everything looks well healed and there's no villi damage, then now or some other time when you are feeling good is the time to check one out, meet with him and make sure his manner and attitude work for you, that he's knowledgeable about celiac, etc. If you do have problems, maybe develop other food intollerances or something, you don't want to have to start searching and take the first doctor who can fit you in, who may know nothing about you or your disease. Like you wouldn't want to look in the phone book for a pediatritian when the baby's sick, you should have a doctor or two that you've established relationships with while you are feeling great, just in case you do need them someday. And you probably don't need EVERY kind a doctor, just a GP and maybe another that you like and trust who understands your needs.

Debbie

cornbread Explorer

I think in general there's a grave misconception amoung the gluten-eating public (including doctors) that a gluten-free diet must be somehow unbalanced, or at least unhealthily restrictive. I honestly don't think anything could be further from the truth! I've had people suggest nutritionists to me, and I find it quite insulting because my diet (Paleolithic - just fresh organic meat, fish, fruit, veggies and nuts) is WAY healthier than their typical modern diets. Bar special occasions, I eat zero junk food and provided I don't get cross-contaminated I am way healthier than they are too with more energy. Maybe they're just jealous because they're addicted to gluten and sugar? :ph34r:

Anyway, I think you are giving your baby a great start in life and you're right, doctors really don't like it when we diagnose or fix ourselves! A good doctor would tell you to just keep doing what you're doing.

StrongerToday Enthusiast

I saw a nutrionist, she's a good friend of my mom. Her daughter also has Celiac so she was very helpful and gave me lots of newbie info. If your insurnace would pay for it, then I'd say it couldn't hurt!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,508
    • Most Online (within 30 mins)
      7,748

    CarleneKelly
    Newest Member
    CarleneKelly
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, I use Aveeno Moisturizing Body Lotion with prebiotic oat, unscented. I really only use it on my hands and not every day. Haven't noticed it any problems. I don't have dermatitis herpetiformis. 
    • NicoleSR
      Hi there, was wondering if anyone with celiac disease use Aveeno products? 
    • knitty kitty
      Having a RAVENOUS appetite (or conversely no appetite at all - anorexia) and unintended weight loss are symptoms of early thiamine deficiency.   People who are physically active, athletes, physical laborers, those who exercise outside regularly have a higher metabolic need for thiamine.  Exercising outside regularly can cause more thiamine loss because sunlight breaks down thiamine.  (This is why people with heat stroke are administered thiamine.)  More thiamine is lost through the kidneys in those who exercise regularly.  Because blood tests for thiamine deficiency is so inaccurate, the World Health Organization suggests, if thiamine deficiency is suspected, give thiamine and look for health improvement.   Do not take Thiamine Mononitrate as this form is not well absorbed nor utilized in the body.  It is frequently found in foods, and multivitamins and B1 supplements because it will not break down with exposure to light while sitting on a shelf at the store.  Thiamine Mononitrate is shelf stable - it won't break down with light exposure - and this makes it not bioavailable.  The body only absorbs about 30% and utilizes less than that because it's so hard to break down.   Benfotiamine and the form of thiamine called TTFD (Tetrahydrofurfuryl Disulfide) and thiamine hydrochloride are wonderful forms to take.   I'm familiar with these symptoms because I dropped sixty pounds in a month because I had developed thiamine deficiency.  I ate well, exercised, and took a multivitamin (with thiamine Mononitrate), but the metabolic needs of my body demanded more.  The years of poor absorption due to undiagnosed Celiac disease had depleted my stores of thiamine.  My doctors did not recognize thiamine deficiency symptoms, even when they progressed to Wernicke's Encephalopathy.  They said I was making things up and sent me home. With nothing else to lose (I could feel myself dying), I took high dose thiamine hydrochloride as the WHO suggested and had improvement within the hour.   I also tried Benfotiamine and TTFD in the months that followed and had even more significant health improvement. Please don't wait until your brain starts malfunctioning or other organs start failing.  Please take thiamine soon.  It's nontoxic and safe even in high doses.  Thiamine works with other B vitamins, especially Riboflavin and Pyridoxine, so supplementing with a B Complex is essential as well.  Magnesium is needed as well to make life sustaining enzymes. There's no harm, no foul in trying Thiamine.  If for no other reason than to prove it is not thiamine deficiency.   P. S.  Thiamine is needed to turn on Vitamin D, turning it into its active form.  Otherwise  Vitamin D can't be utilized and just builds up in the system.
    • Celiac50
      In fact, funny idea, my partner suggested I shld model for the over 50s section, and do it now b4 I start piling on the pounds - if only that would happen! It is over a year now... I am 48kg and should be 54-55, that was my wooonderful Perfect weight before....:( Nothing lasts for ever, as the song goes... To those out there who have a little more rather then less fat on them - celebrate it! Is Healthy!  
    • Celiac50
      Oh and yes, thanks, other than being permanently RAVENOUS and not yet putting on weight, I am feeling pretty good. I jog, do yoga, today cycled 12km to a food market then to another place to get my fish, then my gluten-free bread... My life is All about food!;( But I shld prob. be less active as obv is keeping the pounds off... And having some muscle makes me feel less depressed with my skeletal appearance.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.