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Omg...i Might Be On To Something


Rachel--24

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Daxin Explorer

Andrea -- Sorry to hear about the kids...I am so afraid of bees it's not even funny. I got stung in the tongue a few years a go and it was horrible....although between them ud, tobacco, and onions, they may have to live outside :P

Susan -- Sorry you aren't feeling well. I hope it passes quickly.

Rachel -- My dx included a loss in excess of 50 pounds. I would be cheering to gain some back as well. My poor wife thinks I am too skinny now.

Vincent -- Keep those updates coming.

I just heard my darling daughter in her crib. Time to go!


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AndreaB Contributor
Andrea -- Sorry to hear about the kids...I am so afraid of bees it's not even funny. I got stung in the tongue a few years a go and it was horrible....although between them ud, tobacco, and onions, they may have to live outside :P

Ryan,

OUCH. I can't imagine being stung on the tongue! I've only been stung on the foot three times and I am afraid of the buzzing critters that fly and sting. They are all doing better now. We just used baking soda for a few minutes and have been ice packing it as needed.

jerseyangel Proficient

Hi everyone--I'm up to my wazoo in paint, but needed to check in :D

Andrea, I hope everyone is recovering nicely from the bee stings :)

Susan, you poor little thing--switch to Dove! Hershey does me in, too. The little "Treasures" come in Dark, Milk or Caramel--and they are better than Hershey! No need for a girl to give up her chocolate :D

Celia--How did the move go? Everyone ok? B)

Talk to ya all later.

CarlaB Enthusiast
Carla,

My hair is driving me nuts... I'm going to shave it all off like that singer - what's her name O'Connor?

Sinead? Is that how you spell her name?

No one likes their own hair. Mine drives me crazy, it's best just to ignore it!

Daxin Explorer

Celia, I'm fine. Thanks for asking....feeling great today. Just discovered this new carbonated pomegranite drink at the store....awesome.

Kids are great. Our daughter (Tasmin) is just a big ham. ANything for a laugh. our son is much better. I am beginning to suspect that MIL was taking him off his meds at randon to sabotage our efforts. We talked to my FIL's girlfriend, a psych nurse, who said Blake appeared to her to be going through withdrawl symptoms while he was there. That could explin the events from earlier this week.

Well, off to bask in the sun before the storms come back.

miamia Rookie
Hi Patti!

I was just thinking about you.... the spooky thing again :ph34r: I bet you're getting really close to being done.

Yep we're all fine.... we had to move their furniture into storage until the closing on the house... so we'll have to do all the moving again in a little while... good googly moogly :blink:

Andrea,

Glad the kids seem better... I hate to get stung... ouch!!

The weight thing... so, so hard for everyone no matter which side your on... when I put my jeans on and they don't stay up I get scared to death.... I try so hard to gain.... I did gain 1/2 pound!!! YAY

Daxin,

How have you been feeling and how are the kids?

Susan,

My little dingo buddy... you must not be sick... I am so lonely without a 1/3 of the comedy club missing :unsure:

Miamia,

I've been thinking of you also... I worry about you so much!

Carla,

My hair is driving me nuts... I'm going to shave it all off like that singer - what's her name O'Connor?

You are so sweet- I am trying my hardest and even though I am going through a rough patch (ok have been for3 years) I am still fighting to figure it all out- and this thread has helped me so much!!!

Miamia

VydorScope Proficient

:( My 1 and a half quarts of fresh homemade ice cream is all gone....

Ah well I'll just make more ! :lol::P


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tiredofdoctors Enthusiast

Oh my . . . . things have been quite busy in Rachelville since this morning!!!!

I don't know the joke behind the ice cream . . . but Dave brought home the ingredients for Blueberry Ice Cream (my favorite) and had that . . . if it's a I haven't caught, like the cops are men, then, well, BOHICA :lol::lol::lol:

Don't have much to say, except Nikki -- YOU should be put in charge of infiltrating the Altoids factory . . . are you sneaky??? Think you would have to be sneaky to slither in there!!!!!

Had a good day . . . spent it in the bookstore with my DH!!!! Found GREAT books in the $1.00 and $2.00 section!! There were a lot about how to stay positive with a chronic illness -- they were good ones, too. There were also two books (same title) about how to help your child with chronic pain . . . so if you guys have any children with difficulty, e-mail me (bodyworxinc@hotmail.com) and I'll buy it and send it to you.

Nothing much else to report -- hope you guys have a good night! If I'm plagued with insomnia again (mostly it is because the dog INSISTS on lying beside me (not little Destiny, the big one, Lucky) -- he puts his head at my knees, which makes his BUTT about 12 inches from my face. Doesn't matter how I move, he arranges himself so that he's in that position. Then, as he relaxes, he passes the most obnoxious, horrible gas I have ever smelled in my LIFE. Being 12 inches from my face, you can imagine the effect. So, after two or three of his little "stink bombs", I have to get up until his flatulence is gone!!!!! Have tried everything . . . meds from the vet, chlorophyll breath tablets, you name it . . . nothing works for this guy.) So, should his flatulence occur again tonight, I'll talke with you then!!!!!

Hugs to all in Rachelville,

Lynne

miamia Rookie
Miamia!!! We finally get to see you.... you're such a pretty, pretty girl!! I knew you looked this that!

I worry about your weight, I think you are the smallest of us all, I pray for you alot!

How's good ol' NY? I was just thinking of you yesturday and thinking about the time you were standing in the street with brain fog, I've been in that situation and it's scary.

It's so nice to see everyone in their pictures!

Aren't you getting tired of all the icecream? :lol: Good gaawwwddd your mouth must be frozen :o:lol:

I am just proud i figured out how to put up a picture!!! I have been meaning to do it for so long. New York is HOT- we are in the middle of a heat wave. Its gonna reach 100 on wednesday. And new york heat is horrible because of the humidity.

I think I am the smallest - I swear it is part of what keeps me from getting better but I can't gain weight no matter what I do.

I should be the official town weight taker- I can take all the extra weight people want to lose-

Miamia

AndreaB Contributor

Miamia,

What a nice picture! How's the keto going? Glad you're starting to post more and hope your over the cucumber induced sickness.

miamia Rookie
Miamia,

What a nice picture! How's the keto going? Glad you're starting to post more and hope your over the cucumber induced sickness.

Andrea-

I'm mostly over it- the problem with me is when I ahve a reaction my system goes into hypersensitive mode and I start to react to everything. I'm going to this health center tomorrow though and I am hoping that I will feel bettter after that

Miamia

VydorScope Proficient

Oh dont worry Im gonna pay for all this ice cream... thats why I only bought enough stuff to make one batch (well... messed up and over bought.. BUT that was the plan :lol: ) All this fruit is realy bad for me :lol:

BUUUUUUT SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO YUMMMY!

Daxin Explorer

Lynne -- be careful...not too many people may know what BOHICA means. Unless I have the meaning wrong. I've been known to do that from time to time.

All this talk of ice cream makes we wish our son was home so I could take him out to DQ. He loves it, and the one here by our place is so good to wipe down everything and make me one of the many flavours of gluten-free blizzards they have (peanut butter cups are my favorite).

:blink::huh::blink::huh:

My mind just went totally blank...

Guess that means I should sign off for now.

miamia Rookie
I know how you feel.... in 3 months I've only been able to gain 1/2 pound.... that's why I think of you so often because I know how it feels to be so terrified... so scared for yourself, I don't want to end up in the hospital either.

I had gained like 3 pounds and was so excited and then I weighed myself the other night and it was back to the old weight. Its so weird becaus eI have a set image of what I look like and I don't understand why people look at me all the time and then I look in the mirror and it really is scary. I went to florida last weekend- your neck of the woods and trying to figure out what to wear to the beach was so hard I tried on a bathing suit for my mother and we were both in good moods and when I came out we just both started to cry and tried to hide it from eachother. I really really feel for you!!!

Miamia

AndreaB Contributor
I am truely LOVING everyone's job positions on their signatures... I laugh everytime!!!

Ok.....I updated mine. :P

AndreaB Contributor

Hi Meredith!!! :P:D:)

Do we get you for more than 30 seconds tonight?

Hope you are having a great time. Have you found a job yet?

miamia Rookie
I wish you could have visited me.... I would have loved that... and I would have cried along with you.... ahhh but not for long...because basically most of the time I make fun of what I look like.. :)

People are always making remarks to me too, I try to shrug it off but when I'm feeling vunerable it hurts.

HA.. Andrea :lol:

I am the same way- most of the time I don't let it get to me I have grown thick skin and I know I ma doing everything I can to change things. Its just everyonce in a while it gets to me if I am already upset or something. I am way to happy of a person so I really don't spend most of my time down. I go to bed everynight thinking I'll probably be better tomorrow- A bit naive

Miamia

AndreaB Contributor

A positive attitude is one of the keys to healing.

Lisa Mentor
:( My 1 and a half quarts of fresh homemade ice cream is all gone....

Ah well I'll just make more ! :lol::P

Vincent: to you ship. (ice cream, I mean)

VydorScope Proficient
Vincent: to you ship. (ice cream, I mean)

heheh... I dont think Ice Cream would ship well...

evie Rookie

'AndreaB' date='Jul 30 2006, 08:48 PM' ]

A positive attitude is one of the keys to healing.

Rikki Tikki Explorer
I know how you feel.... in 3 months I've only been able to gain 1/2 pound.... that's why I think of you so often because I know how it feels to be so terrified... so scared for yourself, I don't want to end up in the hospital either.

Celia:

I quit smoking six months ago and the pounds are just coming on! :angry::angry::angry:

Green12 Enthusiast

Mia Mia, your picture is absolutely gorgeous!!!!!

We almost have everyone with pictures now! Evie and Cissie, I hope you get yours up soon, and Robbin too. And everyone else, even if it's a cat or a dog, something to distinguish you by. :lol:

I haven't been able to post, I have missed so much already, just wanted to pop in and say hello and hope everyone is doing well.

Just a quick update, so far my diet continues to go pretty well. I am even eating nuts now, which is a big help. :)

Tavi, we can have a whole squad of shirtless single cops just for the single ladies :lol::lol:

Have a good evening everyone :)

DingoGirl Enthusiast

premature posting but I had an idea,

GIRLS, we need to get MANGO to bring us some Aussies!!!

MANGO - - - BRING US SOME MEN!!!!!

okay now reading again.....came home to find that clever Annie dog, with her little racoon hands, had eaten the other half :ph34r: (yes I ate half) of the bag of nuggets, AND the rest of the Lays....also came home to see her welcoming pile of

POOP

in the living room.....just SUPER!!!

Ryan is that the carbonated pomegranite juice from TArget? I got some last night, it's my new pretend sparkly wine beverage :blink:

okay reading again.....

AndreaB Contributor

Julie,

Does that meann you can blend up your own nut milks? I have recipes.

Evie,

I'm soy intolerant so I can't eat any mainline chocolate. I've been buying enjoy life chocolate chips.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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