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Omg...i Might Be On To Something

Rachel--24

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CarlaB Enthusiast
CarlaB
Posted
The supplements are expensive, but probably not as expensive as IVs and antibiotics, lol.

Except the antibiotics are covered by insurance. :) I don't see why you would need IV's if I don't. My doc doesn't typically do IV's. I think they're a red flag to the insurance company, so I'd bet a lot of LLMD's try orals first.

I pay either $10 or $25 (if it's not generic) per medicine.

It would be nice if yours was knocked down enough to not need conventional medicine, but don't be disappointed if it does. If it's your primary problem, then you might need it.

I'll look forward to seeing your Western Blot. Any way you can have that done prior to your LLMD appt? That save me a lot of time by having that done while I was waiting.

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dlp252 Apprentice
dlp252
Posted
Except the antibiotics are covered by insurance. :) I don't see why you would need IV's if I don't. My doc doesn't typically do IV's. I think they're a red flag to the insurance company, so I'd bet a lot of LLMD's try orals first.

I pay either $10 or $25 (if it's not generic) per medicine.

It would be nice if yours was knocked down enough to not need conventional medicine, but don't be disappointed if it does. If it's your primary problem, then you might need it.

I'll look forward to seeing your Western Blot. Any way you can have that done prior to your LLMD appt? That save me a lot of time by having that done while I was waiting.

Oh yah, the insurance thing...okay, maybe antibiotics aren't the worst thing that could happen. :lol: Still hoping it isn't necessary though. Some of those rounds of antibiotics I was on were for 30 days at a time and one of the last ones was 60 days. At the very end I was taking 4000 mg per day of augmentin!

:o Look at my antibiotic history:

May 2002 Augmentin 875, Prednisone

October 29, 2002 Augmentin 875 (8 days), ended 11-7-02, Prednisone, ended 11-5-02

January 28, 2003 Augmentin 1000, ended 2-5-03, Prednisone

March 10, 2003 Augmentin 875, ended 3-18-03, Prednisone

May 12, 2003 Augmentin 875, ended 5-20-03, Prednisone

Note: During May and July was following a meat/veggie only diet.

July 3, 2003 Zithromax 250, ended 7-8-03 (saw Dr. Smith instead of Dr. Evans)

October 16, 2003 Augmentin 1000 (Rosemary) Note: Rosemary gave me office samples because this was on a Thursday and I was leaving for vacation so wasn

CarlaB Enthusiast
CarlaB
Posted

That is a lot! I've never heard of Augmentin, I wonder if it touches the Lyme???

dlp252 Apprentice
dlp252
Posted

augmentin is amoxycilin and something else...can never remember the name of the second thing though.

dlp252 Apprentice
dlp252
Posted

clavulanate...that's the second thing...don't know what it is, but it's in there :lol:

ETA: Found this on it--still don't know what it is, but maybe you will know, lol:

Clavulanic acid is produced by the fermentation of Streptomyces clavuligerus. It is a

diamondheart Newbie
diamondheart
Posted
:o I think I may have dodged a bullet today, lol. I can't do a search right now cuz I'm downloading an update from McAfee which is going to take 2 hours...can you say SLOW computer, lol. Did we talk about tetinus shots on this thread, or was it just other types of shots. Anyway, my doctor did the exam and asked when was the last time I had a tetinus shot. I couldn't remember so she wanted to give me one today. I don't know whether she forgot to write it on the lab slip or the lab just didn't see it, but I totally forgot and didn't remember until I got home. One I remembered, I suddenly had the thought about thimerasol...do tetinus shots contain thimerasol??? If so, all I can say is phew! :lol:

Hi Donna, well, as you know by now, tetanus shots do contain thimerisol. For me, it's worth getting a tetanus booster because I am constantly getting scratched by barbed wire or other rusty metal in my job. Once, I was pulling weeds, and this rusty piece of barbed wire that was hidden under the weeds flew up and scratched my eye underneath my sunglasses. Talk about weird. So, I just cannot take a chance to go without a tetanus shot. I can pass on flu shots though.

Very interesting about the blood vial in BioSET. I'll have to ask Dr. F about it. I'm going to see him in about 15 minutes. We aren't really focusing on BioSET at the moment though. I guessed right, and something is out of whack with my thyroid. Dr. F put me on one supplement, then I went to my chiropractor, and it tested poorly. So, he put me on another supplement that has helped my thyroid in the past, Thyrosol by Metagenics. I don't know if it's the fertility hormones that are causing my thyroid to be off, but that's my theory right now.

I also had my chiropractor test some wheat pasta on me, and it was a loser. So, I don't know what's up with that, cuz on BioSET, I'm showing clear for gluten. I've mostly been eliminating gluten, except for a couple of tests here and there. Last time I ate a piece of regular cake, I got really sick. I thought it was the sugar, but maybe the gluten was a problem too? I don't know. It's all very mysterious to me.

Oh, I better get back to work! It's Friday, so it's hard to concentrate!

Claire

CarlaB Enthusiast
CarlaB
Posted

Claire, you are one person who does need a tetanus shot! I knew that the person who needed it existed! LOL :lol: I just don't think it's wise to immunize everyone across the board.

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Rachel--24 Collaborator
Rachel--24
Posted
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About rosecea sp? I get this after I take a shower or after I eat. Is this normal? This started happening also with the bladder and bowel stuff. Is this a neurotoxin happening. I was always wondering about this. My face gets blotchy red after shower and just red after I eat. Sometimes my neck and chest as well.

Lisa

Hmm..I dont think it would be rosacea if its also on your neck and chest?? What kinds of foods are you eating when your face gets red? Some foods can trigger rosacea as well as hot showers.

I had mostly burning on my skin....they called it rosacea but it was actually my body reacting to the chemicals and other toxins. My skin gets really red after a shower if I've got alot of imflammation in my body....and fluid retention....the more fluid...the more my skin gets red.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Donna.....if you dont test clearly positive with the Western Blots I seriously doubt that Dr. S. will put you on antibiotics....most likely he would start you on the Cats Claw like he did with me.

He's not really gung-ho on antibiotics.....the very expensive LLMD is alot more aggressive with antibiotics from what I understand....whereas Dr. S. is more conservative about using them.

I'm wondering if he'll be more agressive with how he wants to treat you since you dont have MCS. With me he is always very serious and I usually sort of feel like one of the sickest people EVER...he definately does not try to convince me that I'm gonna be fine and that this is gonna be easy for me at all.

Not that I want him to lie....but sheeesh. :P

I dont know if its just his nature....or maybe I'm just one of the sickest people??? :unsure:

I hope it isnt the latter. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Carla...its good that you're gonna see if there is anything going on with Chloe. :)

I'm not sure what it is that the lady is using...but I'm curious now. :P

Yeah....I would like to try one of those infrared saunas...maybe Scott knows where I can try one. Do they have them anywhere for the public or are they just for home use?? :unsure:

dlp252 Apprentice
dlp252
Posted
That is a lot!

Yes, and this is just what I have a written journal for. There were many times before that first entry when I had bronchitis and was given antibiotics. This was all after my hiking trip to Vermont. :(

Hi Donna, well, as you know by now, tetanus shots do contain thimerisol. For me, it's worth getting a tetanus booster because I am constantly getting scratched by barbed wire or other rusty metal in my job. Once, I was pulling weeds, and this rusty piece of barbed wire that was hidden under the weeds flew up and scratched my eye underneath my sunglasses. Talk about weird. So, I just cannot take a chance to go without a tetanus shot. I can pass on flu shots though.

Well, I'm sort of a danger to myself most times, but don't come into contact with metals much...just the ocassional cut from my kitchen knife and mostly paper cuts, lol.

Donna.....if you dont test clearly positive with the Western Blots I seriously doubt that Dr. S. will put you on antibiotics....most likely he would start you on the Cats Claw like he did with me.

He's not really gung-ho on antibiotics.....the very expensive LLMD is alot more aggressive with antibiotics from what I understand....whereas Dr. S. is more conservative about using them.

I'm wondering if he'll be more agressive with how he wants to treat you since you dont have MCS. With me he is always very serious and I usually sort of feel like one of the sickest people EVER...he definately does not try to convince me that I'm gonna be fine and that this is gonna be easy for me at all.

Not that I want him to lie....but sheeesh. :P

I dont know if its just his nature....or maybe I'm just one of the sickest people??? :unsure:

I hope it isnt the latter. :P

Well, we'll see if he is a serious with me, lol. Cat's claw would be good. I wonder why Scott didn't test that one on me. :unsure:

Yeah....I would like to try one of those infrared saunas...maybe Scott knows where I can try one. Do they have them anywhere for the public or are they just for home use?? :unsure:

Ask at BioSET. I see a pamphlet there for saunas, but can't remember if its FAR or FIR sauna...it's one of those.

CarlaB Enthusiast
CarlaB
Posted

Rachel, I think some chiropractors and naturopaths, etc. have infrared saunas for public use. No telling where there's one near you ... if you want to visit Cincinnati, you're welcome to try mine. ;)

I'm curious what she's using, too. I also think I'll have Chloe tested for heavy metals.

Chloe had meconium stained fluid (she pooped in the womb ... like any gluten sensitive person would LOL). They didn't let her breath until they aspirated her lungs. It seemed like forever, but it was a short time. There was a large team of physicians and nurses in the delivery room and they practically ignored me. I've always thought this could also be the cause of her learning problems, but it will be nice to at least rule the other things out.

She is very smart, so she won't have trouble in life ... she just can't do the schoolwork. Different methods work for different kids, and the school method doesn't work for her. I think she'd make a very compassionate elementary school teacher after all her difficulties. :)

AndreaB Contributor
AndreaB
Posted

Rachel,

I tried one of your links last night and it didn't work for me. Haven't tried the other one.

Carla,

Keep us posted on Chloe's tests. That must have been tramatic for you when she was born. :(

Donna,

After Vermont you got sick.......could that have been lyme? I'm thinking so, but I'm not you and I'm not a knowledgable doctor.

NoGluGirl,

Hope Dart is doing ok now. It would be nice if he could get the testing you want him to have. Keep us posted on your appointment as well.

Claire,

I don't know what to say about the differences between Dr. F and your chiropractor with the food intolerances. Maybe it has to do with the vial of blood?

AndreaB Contributor
AndreaB
Posted
Hi,

i come and go if hubby is here or away, thanks for your patience, what

dlp252 Apprentice
dlp252
Posted
Hi,

i come and go if hubby is here or away, thanks for your patience, what

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Ask at BioSET. I see a pamphlet there for saunas, but can't remember if its FAR or FIR sauna...it's one of those.

Ummm....DUH....they have a Far Infrared Sauna at BioSET :o ....I totally forgot about this!! :ph34r:

Open Original Shared Link

And I think I've read that there at least 5 times since I started going to BioSET.

Good thing I didnt go and ask Anna where I could find one. :ph34r:

Sheeesh...what is wrong with my brain. :blink:

Donna.....what would I do without you! :P

See...this is a perfect example of my problem....if I *look* at something...or read it....I do not absorb it at all unless its something I'm specifically *wanting* to learn about at that time. It just evaporates from my mind or something. :huh:

Anyways the good news is that this might mean I could cancel my gym membership that I've been wasting money on for 2 years now. :rolleyes:

I didnt want to cancel it cuz HEY...when I get better I might wanna actually learn how to use the equipment and I might wanna actually WORK OUT or something. :o

Yeah....like thats really gonna happen...I've never worked out in my life. :lol:

So I give them $40 a month "just in case". :unsure:

So I could actually get something out of the 40 bucks if I do 2 saunas a month at BioSET.....since I GO THERE ANYWAY. :blink:

OMG....Can you say Dumba**?? :lol:

So Carla....what do you think? Should I trade my gym sauna for BioSET??

How do I know the gym sauna isnt a Far Infrared?? Are they just standard at the gym??

Anyways...I'd rather go to BioSET for the convenience obviously.....but I was just curious how you can tell which is infrared or not?? :unsure:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Donna...I will try to re-post what I learned at BioSET last night about why things werent showing up the same in the two different tests.

What makes me mad is that...last night I had the clearest mind I've had in a LONG time. I was astonished at how I rememebred everything from my appt. and it just flowed out of me. :blink:

Its usually much more of a struggle for me to recall everything or to explain it in a way that makes sense....yesterday everything made sense...but now its all jumbled. :(

Of all posts to get "lost".....why did it have to be that one?? When I had all of my faculties and actually made good sense. :angry:

I guess today is just not a good day as far as remembering things. My friend called awhile ago and I told her I'd call her right back...and then 20 minutes later she called back saying WTH??? :blink:

I totally forgot. :ph34r:

AndreaB Contributor
AndreaB
Posted
Ummm....DUH....they have a Far Infrared Sauna at BioSET :o ....I totally forgot about this!! :ph34r:

:P

I would assume the gym has regular sauna's. I think the BioSET ones would be good. Cancel that memebership. ;)

What makes me mad is that...last night I had the clearest mind I've had in a LONG time. I was astonished at how I rememebred everything from my appt. and it just flowed out of me. :blink:

I'm sorry. :( I hope you can get the thoughts unjumbled enough for the gist of it.

If you were me going through what you're going through I'd order a nice, relaxing weekend. Maybe that would still be a good thing though. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Ok...now I remember why I lost interest in the BioSET Infrared sauna when I'd read about it before.

What can I expect?

You will be given towels to lay on in the unit. The unit is pre-programmed to warm up & cool down for a 30 minute session. After the session, take a few minutes to refresh yourself with a cold hand towel & then be sure to shower upon returning home to wash off the toxins excreted from your skin. Be sure to drink plenty of water

diamondheart Newbie
diamondheart
Posted

I saw Dr. F today and asked him about the blood sample and BioSET. He said he used to take blood samples all the time, but since he was treating a lot of children and they didn't like to be pricked, he stopped. So he said, yeah, I should start doing blood samples again, that's a good idea! He said you have to take a new sample everytime because the blood changes so rapidly. Do you BioSET Babes have to give a new blood sample everytime you have BioSET done? Otherwise, how would it work? I would like him to do some of that on me, but it will have to wait. I gotta focus all my energy on trying to get pregnant.

BTW, I had him retest the thyroid supplements, and he came up with the same results as my chiropractor. The thing I like about Dr. F is he is ok when I see other people and challenge him. He doesn't get all offended, like other health care practitioners I've been to. I guess my body changed in such a short period of time that the one thyroid supplement only helped for maybe a couple of days.

I'm not much on cavitations, so don't have much to say about that, but it's interesting stuff. If I ever was tested for Lyme or Rocky Mountain Spotted Fever, I wouldn't be surprised if I had one of them. I've been exposed to ticks all over the world. The weirded tick I had imbedded in me was in Kenya. I was staying at a youth hostel, and I woke up in the middle of the night to find a tick imbedded in my bellybutton :o ! I was so mad, I yanked that thing clean out. I don't even want to tell you the horror stories of all the ticks my dog used to get in Senegal. NOT pretty.

Rachel, my brain doesn't work very well either. I did that "call you right back" thing last week, and totally forgot to call someone at work back :ph34r: . But the thing that I like about not having a good memory is I don't mind when people tell me the same stories over and over again, cuz it's like hearing it new everytime :lol: . It's a benefit! My Dad tells the same stories and jokes all the time, but it's all new to me!

Claire

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
If you were me going through what you're going through I'd order a nice, relaxing weekend. Maybe that would still be a good thing though. :)

Andrea...a relaxing weekend sounds nice...but even better would be a blazing hot weekend with me working in the yard......playing with Bear and sweating out toxins. B)

Oh.....and eating plenty of ice cream. :P

I dont think it will be hot enough though...I'm still wearing turtlenecks to work. :(

dlp252 Apprentice
dlp252
Posted
i LOVE THAT YOU UYS STILL ANSWER!!! WHAT
dlp252 Apprentice
dlp252
Posted
I saw Dr. F today and asked him about the blood sample and BioSET. He said he used to take blood samples all the time, but since he was treating a lot of children and they didn't like to be pricked, he stopped. So he said, yeah, I should start doing blood samples again, that's a good idea! He said you have to take a new sample everytime because the blood changes so rapidly. Do you BioSET Babes have to give a new blood sample everytime you have BioSET done? Otherwise, how would it work? I would like him to do some of that on me, but it will have to wait. I gotta focus all my energy on trying to get pregnant.

No, they don't do a new blood draw each time. They check it though to make sure it's still okay...not sure how THAT works, lol, but I know they just checked my sample to make sure it was still okay and it was.

I meet so many people in the waiting area at BioSET, lol. Last week there was a first time person there...for her son. She had a big bag of supplements and I had a big bag of supplements (because of ART) and so she asked if it was my first time. We started talking like we'd known each other for a while, lol. Anyway, it was her son that she was having tested and when the receptionist said okay I'll need to get a blood sample now, the lady looked like a deer in the headlights. Her son was very brave and didn't make a sound, lol.

AndreaB Contributor
AndreaB
Posted
Andrea...a relaxing weekend sounds nice...but even better would be a blazing hot weekend with me working in the yard......playing with Bear and sweating out toxins. B)

Oh.....and eating plenty of ice cream. :P

I dont think it will be hot enough though...I'm still wearing turtlenecks to work. :(

Relaxing doesn't necessarily mean laying around. If working in the yard is relaxing (and it is to some) then go for it. Somehow I don't think it's quite hot enough for you either......Donna's not complaining yet. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Yeah, I've sort of been feeling sexy these day myself. :lol:

Yeah.....me too....my new cell phone ringer is set to "SEXY BACK". :lol:

Denise laughs when it goes off during my testing...she laughs and sort of rolls her eyes. :rolleyes:

I always forget to turn it off. :ph34r:

That's why we all make a good group here...each person has their part...I can remember stuff like that for you and you can find out why my ART and BioSET said different things. :lol:

:lol::lol:

Yeah....I know this one too!!! The answer is sort of "swimming" around in my head right now. :wacko: Please be patient while I try to get things together here.... :lol:

Not to worry if you can't remember exactly. I'm having an off day too. But the next time that chocolate ice cream calls tell it to wait. :lol: (psst...j/k)

Donna....you're cracking me up tonight. :lol:

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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