Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Help...

Ronnie

Recommended Posts

Ronnie Apprentice
Ronnie
Posted

I've been gluten free for about two months now, i immedietly went gluten free when i found out i had Celiac Disease. And right away started feeling better, sleeping better, and even my depression felt under control.

But now two months later i feel just as sick as i was before the past two weeks or so.

I'm right back to not sleeping and being exhausted.

I just don't understand what's happening, and i'm starting to get discouraged!

Anyone have any advice or suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mart Contributor
mart
Posted

Ronnie, fear not, you're not alone. My son started to feel better too right after he started the diet. And now, almost 9 months into the diet, his stomach hurts often when he eats. We're totally gluten-free (we don't even eat out). I don't know what this is. It's so frustrating.

Anyway, maybe you're still healing and may have periods where you just don't feel well. Hang in there.

DingoGirl Enthusiast
DingoGirl
Posted

The exact thing happened to me, and I can't tell you how many times I've read this same scenario on this board. I felt unbelievably fantastic for the first 3 - 4 weeks, and just plummetted (I do also have an inordinate amount of stress in my life currently, but still...). Fear not, you will feel better! I have been on the upswing the last few weeks and am doing so much better. It really does take time, hang in there, there are peaks and valleys in the initial healing phase, I think. It took our bodies a long time to get this way, it isn't an overnight cure. I must also tell you that I had to go on an antidepressant again - first Wellbutrin, a disaster for me, and then Effexor, which has helped enormously. One day, I hope to be free of all meds of that sort, but it will take time.

The other thing I didn't know at the beginning is that I was dairy-intolerant, as many Celiacs are - at least initially. The tips of the villi manufacure lactase, and if you have no villi, as I do not, there is no lactase. My stomach, after ingesting dairy, stuck out and ached as if I were six months pregnant. Celiacs may be able to eat dairy again after intestinal healing, FYI. But, removing dairy helped enormously also.

Just keep at it and make sure you've eliminated ALL gluten - from products you use to hidden gluten in foods. It will get better!!

Blessings -

Susan

ravenwoodglass Mentor
ravenwoodglass
Posted
I've been gluten free for about two months now, i immedietly went gluten free when i found out i had Celiac Disease. And right away started feeling better, sleeping better, and even my depression felt under control.

But now two months later i feel just as sick as i was before the past two weeks or so.

I'm right back to not sleeping and being exhausted.

I just don't understand what's happening, and i'm starting to get discouraged!

Anyone have any advice or suggestions?

It can take awhile and there are some ups and downs for most of us dont lose heart. Are you taking gluten-free vitamins, you may want to if your not and a sublingual gluten-free B12 can help a great deal with energy levels and fatigue. Make sure your toiletries are gluten-free and watch out for cross contamination. I hope you feel better soon.

schuyler Apprentice
schuyler
Posted

I'm going through the same thing right now. I felt great for about a month and now I feel horrible. I'm trying to do everything right, so I don't know what's wrong. I think that the healing process just takes time.

-Danielle

Ronnie Apprentice
Ronnie
Posted
  • Author

I've got a quick question.

If i've been glutened can i get sick after eating something that's gluten

free? Because i've just realized some things i'm not allowed but had no

idea. I've just cut them out of my diet. But yesterday was the last day i consumed

it. But today after eating a gluten free meal i'm wicked sick. I had to make a dash to the

bathroom.

I seemed to be alright till i ate supper, but i know there was no gluten in my supper!

jerseyangel Proficient
jerseyangel
Posted

Hi Ronnie--Yes, it usually takes a period of time for a reaction to run it's course. The time varies with the individual. For instance, recently I was glutened through CC--a product that was marked gluten-free, but was somehow contaminated. I was sick with D, nausea, cramping, etc. for about 5 days. I ate nothing with gluten (after the inital slip-up), but the reaction continued for several days.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ronnie Apprentice
Ronnie
Posted
  • Author
Hi Ronnie--Yes, it usually takes a period of time for a reaction to run it's course. The time varies with the individual. For instance, recently I was glutened through CC--a product that was marked gluten-free, but was somehow contaminated. I was sick with D, nausea, cramping, etc. for about 5 days. I ate nothing with gluten (after the inital slip-up), but the reaction continued for several days.

Thanks so much! At least now i know where i stand...

It's so confusing sometimes. :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,826
    • Most Online (within 30 mins)
      7,748
    Martis
    Newest Member
    Martis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.