Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Energy/tired Please Help


Jogi

Recommended Posts

Jogi Newbie

Hello I am new to these forums.

I have been diagnosed with celiac since I was a child. But only recently in the last year or so I have had times where I felt really tired. I could barely keep my eyes open.

I find myself trying to study for school and I have no energy and I can not concentrate. I have no idea what the cause of this is. I tried drinking coffee and still no luck. I take a multi vitamin everyday and drink lots of tea and eat healthy and I do not eat any food containing the substances which we are not allowed to eat.

Does anyone know how I can keep my energy levels up?

I went to the doctor and told him that at least once a month I am so tired I could sleep for days and he sais this is normal. He simply sent me home with nothing.

I have also been experiancing excess hair loss. I am a female with brown shoulder length hair. Does anyone know why this happens?? I wake up in the morning and I see hair everywhere. Please help me.

Thank you in advance for anyone who takes the time to answer my questions. Now I must go sleep as always feeling extremely tired.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

You might ask about getting a blood test to find out what your levels of testosterone and estrogen are. Don't let your doctor say no because of age, I'm 25 and have levels too low to be detected by the tests! Taking testosterone has keep me from needing a three hour nap every day! (Not to mention helping a bunch of other symptoms...) But particularly with the tiredness and hairloss, a hormone test could help.

lisabarella Apprentice

Are you anemic?

Guest jhmom

Hi Jogi:

If your doctor is not taking your fatigue and hair loss serious I would find another doctor. There are a number of things that could be causing your problems, and it needs to be checked into by blood work.

Have you had your thyroid levels checked? That could cause hair loss and fatigue. Do you have unexplained joint or muscle pain? There are a lot things that it could be, that is why it's so important to find a good doctor that will listen to you.

Several months after going gluten free I began to have unexplained EXTREME fatigue and could not do in a day what I once could (cleaning house, running errands, etc.). I went to my doctor and he ran some test after I explained to him what was going on. The test came back positive and I am currently being checked for Lupus, I am already being treated for Hypothyroidism so I knew it wasn't that.

Feel free to send me an email if you have any further questions..... Take care and I hope you find some energy soon!

Chaz Newbie

Anemia is a real possibility as celiac can interfere with iron absorption.This can really cause problems with low energy and sleepiness too.Is your doctor really familiar with celiac disease.Many are not and they tend to downplay symptoms like these.Bloodtests are probably a good idea.My doctors also checked for thyroid problems as mentioned above.I do construction work and I can vouch for the fact that anemia can really take a toll on your energy.

good luck

flagbabyds Collaborator

It could very welll be thyroid problems, you could also try and see a sleep doctor. in the fall i started to be so tired and i went to a sleep doctor and it turns out i have sleep apnea, you nver know, you could be ripping your hair out in you sleep.

OleSoftie Newbie

Hi Jogi,

You should be checked for iron deficiency anemia. I was extremely tired, and my doctor found that my iron levels were so low that I had to have a tranfusion of iron (not a blood tranfusion- just iron in solution). It really helped to boost my energy, and taking a daily iron supplement keeps me feeling good.

Good luck to you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kalo Rookie

Check out the thyroid info at about.com. There are many undiagnosed/undertreated thryoid people in the world. Most doctors don't have a clue. Also, do a search for the Broda Barnes Foundation. They have some good info. thyroid@yahoogroups.com is a good support group and place to ask questions. Get the right tests done (TSH, FT3 and FT4) and post to the group including lab ranges. F=free. Never hurts to get it checked out. Hugs, Carol B

Jogi Newbie

Thank you for the help :) I really apreciate it.

I have had blood tested before but this was for vitamins and he said everything was fine. I will go see the same doctor next week and get these tests done this is really getting worse.

Thank you for all your help.

Also I was wondering if any of you take daily pills or supplements to help with vitamin intake? I am curious if I should be taking something outside of eating healthy.

Thank you to all :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.