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Do I Need A Biopsy?

deena647

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deena647 Apprentice
deena647
Posted

Hello, I am so happy to have found this site. I was given a blood test after I went in for a yearly physical a few weeks ago and I told my DR. that I thought I had a wheat allergy. The blood test came back positive. I do have times when I feel great and other times I rack my brain trying to think of what I did wrong in my eating. My DR. has not said any more about further testing, do I need to get a biopsy or is the blood test good enough? I have so many questions and I am thankful to have found you all......Deena

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psawyer Proficient
psawyer
Posted

Welcome, Deena,

I am certainly not an expert on the blood tests--there are several. I was diagnosed by a biopsy almost six years ago. In those years, the blood tests have improved and it is now possible to make a clinical diagnosis based upon the results from a combination of tests for antibodies. I don't know the specifics, but I'm sure someone on here will step forward with them. A positive biopsy for damage to the villi is conclusive, but may not be necessary.

Search this board for Iga and Igg tests and you may find the answer, assuming you know which tests were run and what the results were.

Whether it is a wheat allergy, or celiac, you will find lots of help on here about following a wheat- and gluten-free diet.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I only had a blood test but my brother had both to become diagnosed Celiacs.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hello, I am so happy to have found this site. I was given a blood test after I went in for a yearly physical a few weeks ago and I told my DR. that I thought I had a wheat allergy. The blood test came back positive. I do have times when I feel great and other times I rack my brain trying to think of what I did wrong in my eating. My DR. has not said any more about further testing, do I need to get a biopsy or is the blood test good enough? I have so many questions and I am thankful to have found you all......Deena

If your doctor is satisfied with the diagnosis without putting you through the endo be thankful. Just make sure you avoid topical glutens as well as foods, check you toiletries, shampoos, lipsticks et al. The folks here are wonderfully helpful and welcome to the family.

fastcatkerry Newbie
fastcatkerry
Posted

How do they perform the biopsy for Celiac? My doctor has told me I have DH and now is talking about doing a biopsy to test further. Is it similar to a colonoskopy?

KaitiUSA Enthusiast
KaitiUSA
Posted

Biopsies can only rule celiac in but not out so if it comes back negative you may still have celiac.

There is a full celiac panel that should be run and it is very accurate:

EMA

IgG

IgA

tTG

Total Serum IgA

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    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
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    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
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