Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow Disney Is Great!


lisaemu

Recommended Posts

lisaemu Contributor

I've gone to Disneyworld dozens of times (my brother works for them), and am going in 3 weeks. Im nervous because this is my first time going since having to be gluten free. I've heard great reviews of how accomodating they are, and I called them today and wow! The lady was really helpful and knowledable (she even mentioned cross contaimination issues) and she sent me an email with a lot of helpful stuff. If anyone needs the number or is interested in their response, let me know. Ill report back on how the vacation goes in a few weeks! :)

  • 4 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katie O'Rourke Rookie
I've gone to Disneyworld dozens of times (my brother works for them), and am going in 3 weeks. Im nervous because this is my first time going since having to be gluten free. I've heard great reviews of how accomodating they are, and I called them today and wow! The lady was really helpful and knowledable (she even mentioned cross contaimination issues) and she sent me an email with a lot of helpful stuff. If anyone needs the number or is interested in their response, let me know. Ill report back on how the vacation goes in a few weeks! :)

Hi. I am in England and am plannign to visit the one in Florida nxt year and am having a biit of a panic sorting it out. Would be really great and really helpful if you could send me any info you have. Ive only been diagnosed 2 years and am now 21, so still getting used to it. Am really hoping to go though, but am worried I'll have to book all the restaurants in advance before I leave, which can be expensive if youre calling internationally. Ive heard that the hotels and kiosks are not much good, but that some of the restaurants are great, as long as you book in advance.

Could you possibly forward me the email? Would be ever so grateful, thanks :)

mbg98 Contributor

We went to disney about a month a go, I ate so well! The resteraunts were FANTASTIC! the chefs came out and sat with me and went over my menu options and if I didn't want anything from that menu they would fix me something. I even had great desserts! The chef at our hotel made me a delicious breakfast every morning, he makes the best gluten-free panckaces. I got a list of all the quick service places in the parks that served gluten-free foods and what I could and couldnt have, let me know if you would have any intrest in those lists. Anyway, you will not have a single problem in Disney the food and ways they accomodate you are amazing! not to mention you can have all the Mcdonalds fries you want bieng they have carts through out the parks that only serve the fries and these are gluten-free! There is even a place in Magic Kingdom that has gluten-free pizza!!

Good luck and let me know if you want those lists.

dionnek Enthusiast

How was the vacation? Where did you stay and eat? I'm interested in learning all I can before we go in October (have heard a lot of good things about the restaurants and parks being gluten-free, but not so much about the hotels - now wondering if we should stay at a non-dinsey hotel for cheaper?).

nothungry Contributor

I'm planning my disney trip right now...I would love to hear more about your dining! We are staying on site.

astyanax Rookie

i was just there a few weeks ago, my mom and i go every year. when you make reservations at a restaurant include that you are gluten free. we were also able to get gluten free food when we went to a restaurant (the brown derby in MGM) without a reservation (they even had gluten-free rolls!).

i stayed at the grand floridian and their room service was really great about cooking gluten-free. you can also contact disney (i did it through the main website) and get gluten-free lists for each of the parks. things like hot dogs and burgers are gluten-free. at the quick service counters, ask for a manager. i found at the quick service counters it took awhile to get the gluten-free food but they do try and a manager will understand the cross contamination issues. the popcorn carts in all the parks are gluten free and i never had it, but apparently there's a gluten free brownie sold in epcot. a few places will do gluten-free pizza as well (i never did that though cos of the time it takes).

disney will also let you bring in food.

hope this helps! it's a great place for dietary needs. it's one of the reasons my mom and i keep going back.

2kids4me Contributor

We went to Disneyland (California) last year. It was GREAT! There is a fellow by the name of "Chef Chris", he manages all the chefs on the Disney land site - he can tell you where to eat, what to ask for etc. You can get his number from Disneyland Hotel or a travel agent should be able to find it, if oyuleave message - he gets back to you quickly, have pen ready to write stuff down.

I was advised to call him before we arrived in Disneyland to get current information about the restaurants and to let him know when we would arrive. My first impression of Chef Chris was that this guy was intelligent, funny, and he or any of the Disneyland chefs would be more than capable of handling our dietary needs.

We ate at many restaurants in Disneyland and had no problems at all. At the sit down locations, the chef would come to the table, visit with the children, take their order and then deliver it personally. It was a bit scary at some self serve outlets where you place an order and then pick it up at a window, but my fears were unfounded as the message about "gluten free" was easily conveyed to the kitchen and the request was handled with a knowledgable smile. I am used to a puzzled look and "You don't want a bun??" response I get back home in Calgary! In Tomorrowland, Red Rocket's Pizza Port was very busy with pizza and pasta on the menu ...all I had to say was: "Chef Chris told me you could make rice pasta..." and the chef nodded with a smile and then apologized that it may take 8 to 10 minutes for it to cook. I watched as he used a new spoon and added sauce from a new tub (no contamination possible) and added some carrots on the side. This place was a zoo while he did all this!! Chef Chris says that what looks busy to us is normal for them.

Kathryn is my "canary in the coal mine" when it comes to gluten and I know within hours if she has received hidden gluten; both children remained healthy and happy during our trip. The chefs at Disneyland gave us what we had dreamed about - for 5 days we were just like everybody else. We could walk into any restaurant, simply ask for gluten free; no confused waiters, harried chefs, or added expense for "special food". I have insulin dependent diabetes just like Matthew and we found that diabetes posed no problem; we were provided with a list of carbohydrate values for the various items so that we could follow our diet requirements. The kids LOVED the food and asked for autographs from each chef.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.