Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New & Confused


katrinamaria

Recommended Posts

katrinamaria Explorer

hi!

i'm new to celiac and am pretty overwhelmed! im in my first year of college and i'm struggling with the dining centers (they are not very understanding). right now i'm surviving on fruits, veggies & corn tortillas.... (i'm also a lifelong vegetarian) so i'm seriously craving a real meal!! and people around me have never heard of this and i'm embarrased to say anything cuz i get that look like i'm totally making this up or something...

any help you can give me about any of these things would be great!!!!

thanks soooo much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



schuyler Apprentice

I'm pretty new at this too, so I don't know too much (sorry). I have been eating lots of rice and veggies (I'm also a vegetarian). I also like rice patsa and tapioca bread. Have you found any stores that sell gluten-free free foods? That's where I'd start (I go to Raleys and a local health foods store. I know that Trader Joe's and Whole Foods also have gluten-free foods). There are some online stores that have lots of things. I'm sorry that I don't have more info, but I just learning.

I'm also sorry about the dining centers not being understanding. I live at home, but on days when I have lots of classes I make sure to bring my own snacks (my school won't guarantee that any of the foods there are gluten-free, so I just bring my own). Again, I wish I knew more but I'm sure that some of the more experienced members will jump in an give you some more (and better) advice.

Good luck!

Danielle

MySuicidalTurtle Enthusiast

I am in my third year of college (and a vegetarian, too) but was diagnosed at the end of my senior year in high school. You might want to try making your own food before eating in the cafeteria. Your school, by law, has to make it so that you can eat- either by cooking in your room or providing help with cooks at the school. Don't take eating less than a real meal and demand your school give you what you deserve and are paying for. Things get much easier as time goes on and you will find people who care and understand what you're going through. Good luck!

Kristina

katrinamaria Explorer

thanks for your help guys!

i'll try to check out some health food stores around here. that's a good idea (finding them out here on the prairie might be a challenge tho!:)hahaha)

and i'll have to rally my parents or something to talk to the dining center people...they are just stupid because they charge you extra if they have to make special food for you (already poor college students...hello?!)

thanks for the advice!

lorka150 Collaborator

hey, i hear ya! it is really hard to get diagnosed in unversity (or college as you crazy americans call it! ha).

anyway, let me know if you need simple recipes and 'cheaper' products... i'm willing to give you a hand, and i totally feel your frustrations.

:)

KaitiUSA Enthusiast

I know how you feel. It's hard at first but believe me it gets so much easier as time goes by. Once you know what to look for and find the good brands it is not hard at all. This site is great to come to for information about it. You will come to realize that the diet is not as restricted as it may seem at first.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    4. - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    5. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,717
    • Most Online (within 30 mins)
      7,748

    Lellymay
    Newest Member
    Lellymay
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.