Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 2 Yr Old Daughter Has Dh

Deepster

By Deepster
in Dermatitis Herpetiformis

Recommended Posts

Deepster Newbie
Deepster
Posted

She was just diagnosed this week. We've known she had Celiac's since August and tried our best to be immediately gluten free.

I understand it may take a year or longer for all the gluten (the oatmeal, pancakes, cheerios, etc) that we unknowingly fed her before being diagnosed to exit her system. She's itching like mad now. Buttocks, hips, elbows, armpits, back of her neck.

The dermatologist spoke about Dapsone and I've read the posts here, as well as other medical sites I could find. I have to say, I'm a little apprehensive about giving it to a 2 year old with the side effects it can produce. I read posts here about the tetracycline and vitamin B3 combo.

Any advice about Dapsone for my little one? Would you feel safe with it? Would it be a last resort? We have an appt on Thursday so we should know more then....thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

I'm posting mainly to bump.

Check all the houshold hygeine products for hidden gluten and keep a food journal to find out if there are other sensitivities. Check the controversial food lists, most of the time they don't contain gluten but a damaged gut reacts badly. Have you also been casein free?

L.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,505
    • Most Online (within 30 mins)
      7,748
    Debbie8888
    Newest Member
    Debbie8888
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same billion that absorb nutrients from our food.  Damaged villa can't absorb nutrients, vitamins and minerals well.  If we don't get sufficient nutrients, our body can't function properly.  We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening digestive symptoms. Talk to your doctor or dietician about taking vitamin and mineral supplements while healing.  The gluten free diet can be low in nutrients, especially if you eat gluten free facsimile processed foods.  Gluten containing breads have vitamins added to them to replace those lost in processing.  Gluten free facsimile foods usually are not enriched nor fortified with vitamins.   Taking a B Complex, Benfotiamine, Vitamin D, and magnesium help the digestive tract heal, lowers histamine, and regulates the immune system.  
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      What are some symptoms people have experienced when someone has cooked toast? Also, pasta? I've been diagnosed with celiac disease 5 years ago but sometimes symptoms then other times no symptoms its weird.?  so neurological   is brain fog, off balance, pins and needles, inflammation, also if eat it's like high inflammation then the villas affected!  Has anyone experienced this because I'm really starting to get confused but have diagnosis from blood test also endoscopy but it's just an ache. 
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Kan-101

      By Fabrizio · Posted

      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
×
×
  • Create New...