Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At Last, I'm Feeling Better!


judy04

Recommended Posts

judy04 Rookie

Hi everyone,

I just wanted to share my good news. I have been gluten-free

since Nov.1, 2003 and this is the day that I have been waiting,

praying for. I feel better, I have no pain, nausea, gas, or brain

fog. I saw the Gastro Doc last week. He told me that my biopsy

was negative, my villi are not damaged, but my IgA had been 74.

He had told me previously that I had only a wheat allergy, now

he is leaning towards Celiac Sprue, saying "I can't prove you

have it and can't prove you don't!" He recommended that I

try some gluten, pizza or spaghetti, since I have been gluten-free

and dairy free since last year. I took his advice and ate 4 slices

of white bread in 3 days. At the end of the 3rd day my eyes

started to bother me, burning and itching. It was then I determined

that I would be Gluten Free for the rest of my life. I just wanted

to share this with you, because I feel like I have come back

from Hell and I never want to be that sick again! I just want all

of you who are new to this disease to know that there is a light at the

end of the tunnel.I have also lost 8 lbs after I gave up red meat.

At the present time I eat brown rice, potatoes, veggies, gluten-free pancakes.

fruit, goat's milk, and lots of water.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Judy,

I am glad you are feeling better and hope you continue to do so!

Take care

YankeeDB Contributor

Thanks for posting this. It is encouraging for those of us who are earlier on the road to recovery! Best wishes.

angel-jd1 Community Regular

It is good to her positive stories from people, lets the newbies know that there is hope and it can be done!! Thanks for sharing your positive story!! Keep up the good work.

-Jessica :rolleyes:

dana-g Newbie

Congratulations, Judy! Keep up the good (gluten-free) work!

kalo Rookie

Congratulations Judy. That is wonderful news. How long did it take after you went gluten-free before you started noticing improvement? Keep up the good work and thanks for the encouragement. Hugs, Carol B (who is waiting for airborn to pick up my stool sample)

judy04 Rookie

Kalo,

It took me 3-4 months before I could feel a difference

because I kept getting sick, I finally stopped eating

dairy and tomatoes. Hope you soon find answers

and keep coming to this board, it has been a

godsend for me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kalo Rookie

Thanks Judy. When my doctor put me on this diet and decided to test me I asked him how long before I knew I was on the right track. He said 3 weeks. But then a gal on one of my groups told me she knew several people who took 3 months before they new. So, I'm lookinig to enterolabs which I've done on my own to tell me for sure. I've been on this for 2 weeks but I know I've had some miss haps eating out. When it comes back positive which I'm hoping it does I will have to get realy strict and totally figure this out. No I don't feel better yet but I wasn't expecting to. Keep us posted on how you are doing. Definately ENCOUREGING (spell?). Hugs, Carol B

(stool test was picked up this afternoon. YEA! I don't think I've ever been this excited and I've been through a lot of different diagnosis)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748

    Hcon74
    Newest Member
    Hcon74
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.