Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time For School....how Do I Choose One?


debbie-doodles

Recommended Posts

debbie-doodles Contributor

My daughter who has celiac is 3 and a half. I want to get her in a preschool in the fall. then next year it will be time for pre-kindergarten and then kindergarten. I am PETRIFIED to put her in a public school. here in Arizona the kindergartens have about 30-35 kids to one teacher. No way could one teacher keep a close enough eye on my daughter. I looked into private schools but they run $350-600/month and we can't pay that. charter schools still have about 25-30 kids with one teacher and one assistant in each classroom. How many parents have school-age children? And are they in public or private schools? Does anyone homeschool their kids until they are older and can watch out better for themselves? Any ideas would be helpful. I'm at my wits end.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dietcokehead Rookie

I have never considered not putting my son in the school we had planned for him before he was diagnosed. It's the public school in our neighborhood. Teachers are used to dealing with all sorts of allergies, special needs, etc. Your daughter will be well aware by the time she is ready for kindergarten that she shouldnt eat anything that is not sent from home or approved by mommy. I honestly wouldnt let Celiac have anything to do with your school choice, unless there are other issues that come into your decision as well. (other disabilities, etc). Schools are required to make accomodations for kids with Celiac under the Americans with Disabilities Act.

I hope you find something you are comfortable with!

Annie (teacher and mommy to Jack) :)

mommida Enthusiast

We researched public schools in the area. We bought a house in the preffered school district, and it was a nightmare! The No Child Left behind law is a loophole nightmare. The lunchroom setting is a gluten mess. My children know what they can and can not eat and cross contamination was a major issue. Behaviour problems because of some children being bored staying at the classroom pace and other children with special needs being "mainstreamed" when they need and deserve more attention is another problem we encountered. (FYI a "special needs" child, who will never be identified as such, will not be punished (for lack of a better word) for any type of unappropriate behavior if they do not understand what they have done is wrong.) {Don't believe me? Read the Law.}

If you want to go to a private school, start doing your research and get in contact with those schools. There are scholarships available. They may even let you donate your time to earn credit hours for tuition.

Homeschooling is becoming very popular. I will try and dig up my notes and web site addresses for you. In our state churches have become "MASTER" program sites for homeschoolers. They work as a meeting place for the children and hire professionals for areas of study and trade teaching resources with each other. (Interesting enough- I contacted this group because of Celiac. I think at least 8 of the children have Celiac and chose homeschooling partly because of the gluten free diet. They helped me start the gluten free diet and invited me to join the co-op. The co-op has an abundance of gluten free product lines and they steared me toward the better tasting foods.)

Good luck with your decision.

Laura

You might want to try www.greatschools.net

mommida Enthusiast

I was just looking over the www.greatschools.net site and I think it has some links to helpful articles for you.

Laura

flagbabyds Collaborator

With a public school i would suggest a 504 plan, this alerts the teacher about what the problem is, and under law is required to keep your daughter safe at all times, you can put whatever you need on it regarding the celiac, i am able to eat in class, even w/ teachers who ban it. and other stuff like that, that is the best way to have the teacher know what the celiac is, and that he/she has to take care of your daughter, under law.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748

    BJ OConnor
    Newest Member
    BJ OConnor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.