Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oeliac Disease And Lactose Intollerant


joalabbs

Recommended Posts

joalabbs Newbie

Hello all, I have three great kids. Two of them, Alex 11 & Abbey 8, have celiac disease. Alex has just recently been diagnosed as being lactose intollerant. He has many other issuses as well. He is very angry. I am hoping someone might have some suggestions on how to cheer the kid up, and what to feed him without hurting him. Thanks,

joalabbs


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

What kinds of foods does he like to eat? There are lots of great kid-friendly substitutes out there.

lonewolf Collaborator

I have an 11 year old son who has been off milk for his whole life and just recently we found out he is gluten intolerant. He has some behavioral issues, mostly attention problems rather than being "naughty" and a lot of negativity. He was very angry when he was told he couldn't have wheat/gluten anymore. It's been a few months and he's doing much better. The attention problems have been clearing up some and the anger has subsided. I notice a lot of negativity when he eats something questionable, like Easter candy that I didn't have a chance to check on before he devoured it.

We've tried cheering him up by doing things that aren't associated with food - going fishing, playing more baseball out in the yard, letting him have a few more turns on the computer, etc. And I've made a lot of special treats for him - more than usual. All my kids (I have 4) have enjoyed homemade cookies, brownies, cakes, etc. and it makes my son feel good that I make "special" food that everyone likes that really is for him. He's really into popcorn now too. We've been experimenting with different flavors and seasonings to put on it. Sugar, cinnamon, chocolate chips, garlic powder - he likes all of these.

Good luck!

kabowman Explorer

I have a 12YO son that is lactose intolerant but not gluten-free. He eats sorbets (you would have to check for ones that are gluten-free) for desert. That seems to have eased the "pain" of giving up a food he ate at every meal plus all the stuff in between. Hoping we don't have to go gluten-free yet too but I think that is coming...

And, like most of us, the longer he is LF, and he has something with regular milk, the more severe his symptoms which helps him stay away from milk products. He cannot even handle the hard cheeses (cheddar) like many people can BUT he is OK with lactaid milk so I am not worried about casien intolerance yet.

tarnalberry Community Regular

If he's just lactose intolerant (not casein intolerant), then he can use lactaid (the lactase enzyme) to still be able to have milk, unless he's REALLY REALLY intolerant. And in that case, there's still an awful lot of other foods out there he can have, you'll just have to start experimenting and trying a lot of new foods.

mmaccartney Explorer

We get chocolates from this place:

Open Original Shared Link

I live nearby and have spoken with the owners. They are quire serious about dairy free, and gluten free as well.

My children are allergic to milk, eggs, and all nuts. I can't have any milk or gluten and their under diagnosis for celiac, but are still gluten-free at this time. We haven't run into any issues with their candies yet.

Also, the allergy grocer has several good candies as well:

Open Original Shared Link

Their all expensive, but it's worth it for their smiles :)

  • 2 weeks later...
marja Newbie
Hello all, I have three great kids. Two of them, Alex 11 & Abbey 8, have celiac disease. Alex has just recently been diagnosed as being lactose intollerant. He has many other issuses as well. He is very angry. I am hoping someone might have some suggestions on how to cheer the kid up, and what to feed him without hurting him. Thanks,

joalabbs

There are so many things he still can eat. I've a 2 year old celiac and lactose intolerance and a 7 year old who has PDD NOS...for these children Gluten are also poisson and milk also so we try to keep him on the same stuff his brother gets and for everything i normally use milk in it i now use soya or goatmilk and there are really a lot of things you can make like that or buy. A lot of people has both the problems and the lactose intollerancy can be for a couple of years. I really hope so.

For my PDD son not eating gluten and milk worked out great for a lot of other things so when he noticed that he will find out himself that he is feeling much better!

Good luck


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.