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How Long Does It Take Your Symptons To Kick In After Eating Gluten?


HillaryT

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HillaryT Newbie

hello all,

so i was wondering when your symptoms start after having eaten gluten. i will admit at times i do cheat. mostly when i am drunk or something and really have no self control, and am sitting across from someone eating a piece of toast smothered with butter for example. (bread is my major weakness...when i was younger my family used to call me the bread queen! <_< ) so for me it used to take a few days. when i first found out about it i used to test it out alittle to see. i had counted 4 days, which i always thought was kinda odd. the other night though i had cookie dough ice cream though. i literally ate like 2 of those measly chunks of cookie dough, but then the very next day and for 2 after i was constipated. which is odd for me too, bc i normally get it the reverse.

anyway, this whole thing is odd for me, because i was never totally diagnosed with celiac. when i first went to the doctor (this is going back exactly a year now) they gave me a blood test and said i def had celiac, that my numbers were so high and blah blah. then when i went back for the endonoscopy after having ate bread and what not all week they said it was negative. then i got a stool sample taken and that was negative too. i do feel better not eating gluten, but still not 100%. so i guess back to my original question. when do your symptoms appear and can you describe them for me? thanks guys.


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Guest schmenge

In my case (everybody is different) within about 45 minutes to a hour I'll have some combination of bloating, cramping, flatulence and/or diarrhea (although that part usually comes a little later).

aikiducky Apprentice

In my case, about 5-6 hours. First I get bloated and gassy ...or even before that i can get really irritable and moody... then tired, and loose yucky stools, followed by several days of constipation, depression and fatique. To keep it short. :)

It's logical that you're not 100%, you're never going to BE 100% if you keep cheating! :blink:

Pauliina

Ashley Enthusiast

In my worse case, which was yesterday, twenty-thirty-five minutes. Yesterday after lunch, I went to fourth block and about 25 minutes after lunch I got this terrible cramp in the mid-driff. It was very sharp and prolonging. Fatigue, constipation/diarrhea, and especially moody swings also come along. I realized cheating wasn't an option if I wanted to get better. Just keep sticking to it, first 3 months is horrible, but, it gets easy as it goes. Hope to hear things improve!

-Ash

KaitiUSA Enthusiast

I know pretty much immediately which I consider to be good so I don't play the guessing game of what it was. My main symptoms usually last a good 2 weeks.

DingoGirl Enthusiast

Wow - most people, from what I"m reading, seem to feel it rather quickly, and mine is 12 to 13 hours later. And then, the most painful D for half the day. Then, it's over after that. Just some gas but nothing horrendous like before, when eating half a bag of pretzels a day (before dx)..... :blink:

codetalker Contributor

I know within a couple of minutes. Symptoms last 2-3 weeks.


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jerseyangel Proficient

My symptoms start in about 2 hours. It lasts anywhere from 5-10 days. (Knock wood, I think as time goes on, it's closer to 5 now)

Guest cassidy

It happens about 3 bites in for me. I get these squeaky noises coming from in there. They then stomach pain starts after about 1/2 hour and lasts for about 5-6 hours. The D starts about 45 mintues later and lasts for a day. As the stomach pain is going away the headache starts which lasts for about a day. Starting around the time of the headache my heart pounds, I feel gittery and anxious, nauseous and generally hungover. Those feelings usually last for 3-5 days.

If you had a positive blood test then you probably do have Celiac. I understand you also had some negative results but one positive is all you need. My blood test came back negative, however my response to the diet was amazing. I felt great for a month after going gluten-free and then didn't feel so good. I had a stool test and they found all sorts of nasty stuff. I had no good bacteria, a bad bacteria, an amoeba and candida overgrowth. So, if you don't feel great on the diet, there may be other things going on, or it could be because of the damage you keep doing from each of your tests.

I think that you need to do whatever you need to convince yourself 100% that you have Celiac - whether it is tests from a doctor or food tests. Then, once you convince yourself, I think you will be less likely to cheat. I have never been tempted to cheat because I know it will make me feel crappy. You may be tempted to cheat because you are testing yourself and not quite sure it will have consequences.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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