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Are There Threads About Supplements And Nutrition

eleep

By eleep
in Coping with Celiac Disease

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eleep Enthusiast
eleep
Posted

I know I've seen threads about supplements and such, but haven't been able to turn the most useful ones I remember up when I do a search.

Basically, I'm looking to find out what kinds of nutrients I should be supplementing while I'm still healing -- I've recently realized I need to be doing sublingual b-complex -- which has evened out a lot of the last of my jitteriness. I'm doing oral multi-vitamins with iron, extra calcium, fish oil and a good probiotic. However, I'm not always sure how much of this stuff is getting absorbed -- the multi has enough b-complex, but the sublingual is what's made the real difference.

My university infirmary did some initial bloodwork on nutrient levels -- they covered potassium, calcium, folate, iron, beta carotene and B12 -- however, I've just realized that there's a lot they simply didn't test for -- I think I had a really serious niacin deficiency, for instance. I'm a graduate student with a really lousy student health plan, so I'd prefer not to shell out for more tests right now if I can avoid it.

I'm also working on the food angle -- but, again, I don't know exactly what I'll be absorbing

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VydorScope Proficient
VydorScope
Posted

We just take a daily multi vit form "Natures Made" wich is gluten-free and DF. That plus good quailty yogurt (Cascade, Stonyfield farms, etc) for probotics is about all *I* personaly think most ppl need. I have to take an additional calcium suplment (1200 IU a day +forget how much VitD) Cuase of bone loss, but most ppl wont need that.

Guest cassidy
Guest cassidy
Posted

digestive enzymes might be helpful. If you are concerned about how much you are absorbing, they help you break down your food so it is easier to digest, maybe they would help you get more nutrients out.

Lister Rising Star
Lister
Posted

i use centrum advanced forumula so much crap in it

edit-- o just make sure you dont get chewables-they contain gluten

DEE BAERTSCH Newbie
DEE BAERTSCH
Posted

NOW, liquid multi, available at www.nowfoods.com, is gluten, dairy, yeast, egg free. It is very hard to find a liquid multivitamin that is gluten & dairy free, but this is one. Have they checked your vitamin D levels? Most celiacs are vitamin D deficient; it was key for me to eleminate my muscle & joint aches. Good Luck!

Dee

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
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