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Guest Floridian

By Guest Floridian
in Coping with Celiac Disease

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Guest Floridian
Guest Floridian
Posted

..

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tarnalberry Community Regular
tarnalberry
Posted

Welcome!

Feel free to ask lots of questions, and you'll find lots of useful information buried in our myriad posts.

Make sure that you've elminated all sources of gluten, including the tricky to find ones (like soy sauce, modified food starch, and so on), all sources of cross contamination (like shared collandars, cutting boards, and toasters), and all incidental exposures (like makeup, lotions, soaps, etc.).

Here's hoping you continue to feel better! :-)

mamaw Community Regular
mamaw
Posted

welcome

you will learn more from this group than any doctor can tell you.just be careful not to get glutened. when I first started I licked an envelope and had a communion wafer so I learned pretty fast after that... I think its the dumb things that gets us --- like the envelope!!!!

mamaw

TiffersAnn Apprentice
TiffersAnn
Posted

Good luck with all of this. Just keep in mind that it takes a good 3 months for gluten to leave your body, so you'll still feel 'weird' for a while. I've been gluten-free for 8 months now, and it's been the hardest thing I've ever had to maintain.

Lisa Mentor
Lisa
Posted

I cant do this , but could some one relay the Delfi List to her......that is a mega start for newbies.

Lisa

mamaw Community Regular
mamaw
Posted

Hi

I know it seems crazy that when you find out you have an intolerance to one thing another hundred jump on the wagon too. Diary has not been a big issue for me as I don't do milk but other things seem to keep popping up. I feel bad for the ones that cannot have diary, soy and so on it makes life more challenging. I did Bio- Set treattments to rid myself of other allergies to different things....I do eat cheese but I ration my intake and once in awhile I have ice cream, it seems if I eat diary at night I get a bit squeesy but not like some who get deathly ill.

Keep reading all you can about celiac and it will become second hand to you real soon.....I alway liked the saying that if you can't say an ingredient then don't eat it the product.......Back to basic foods......

You can use alot of progresso products off the store shelf....

mamaw

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      results from 13 day gluten challenge - does this mean I can't have celiac?

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      results from 13 day gluten challenge - does this mean I can't have celiac?

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    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
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