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Muscle Weakness, Numb Extremities

celiacfreeman

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celiacfreeman Contributor
celiacfreeman
Posted

Anyone have this, my sister has these symptoms, but doesn't want to get

tested for some reason.

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plantime Contributor
plantime
Posted

I am having numbness and tingling in my feet and hands, muscle weakness and pain all over my body, no appetite, and forgetfulness. I thought it might be related to the Lipitor that I have been taking, but my doctor thinks it may be because of the new grains I have been eating. I have been eating rice flour, potato flour, xanthan gum, tapioca flour, garbanzo bean flour, and quinoa flour. I have also been using flax. Can eating these foods cause the problems I have been having? Bloodwork has ruled out viruses, bacterial infections, malabsorption, and allergic reaction. I go to a specialist this afternoon because my reflexes are very slow. Suggestions are very welcome!

dana-g Newbie
dana-g
Posted

Dessa, I've read that some people have a hard time with quinoa. You might try eliminating that one and see if it helps. By the way, I went to the doc and she said my liver is fine, looks like I may have the beginnings of a gall bladder problem. I'm seeing my new GI guy soon, thank goodness!

Thomas Apprentice
Thomas
Posted

Good luck

plantime Contributor
plantime
Posted

I am glad you're getting some answers! I just learned this afternoon that my liver problems are why my muscles feel so bad. When the liver heals, the muscles will feel better!

burdee Enthusiast
burdee
Posted

Hi Dessa:

I'd recommend you get a second opinion. The 1998 PDR lists as side effects for Lipitor: "abdominal pain, back pain, headache, joint pain, leg cramps" (which sounds like your 'pain all over (your) body') as well as "muscle aching or weakness" which you also mentioned. It's easy for doctors to blame something in your diet, because they know SOOO little about nutrition, rather than find a better drug than Lipitor for you. <_< You could even check a more recent Physician's Desk Reference for Prescription Drugs to see what side effects for Lipitor are NOW listed.

  • 2 weeks later...
merrell Newbie
merrell
Posted

hi,dessa, an alarm went off when i saw your symptoms. i agree with burdee, please check into the lipitor asap. my sister-in-law was having the same symptoms for quite a few years---many --many tests,many--many doctors until a new internist questioned lipitor and took her off it. all that suffering for so long and it was the lipitor. talk to your doctor again or get a second opinion. hope you improve.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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