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Muscle Weakness, Numb Extremities

celiacfreeman

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celiacfreeman Contributor
celiacfreeman
Posted

Anyone have this, my sister has these symptoms, but doesn't want to get

tested for some reason.

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plantime Contributor
plantime
Posted

I am having numbness and tingling in my feet and hands, muscle weakness and pain all over my body, no appetite, and forgetfulness. I thought it might be related to the Lipitor that I have been taking, but my doctor thinks it may be because of the new grains I have been eating. I have been eating rice flour, potato flour, xanthan gum, tapioca flour, garbanzo bean flour, and quinoa flour. I have also been using flax. Can eating these foods cause the problems I have been having? Bloodwork has ruled out viruses, bacterial infections, malabsorption, and allergic reaction. I go to a specialist this afternoon because my reflexes are very slow. Suggestions are very welcome!

dana-g Newbie
dana-g
Posted

Dessa, I've read that some people have a hard time with quinoa. You might try eliminating that one and see if it helps. By the way, I went to the doc and she said my liver is fine, looks like I may have the beginnings of a gall bladder problem. I'm seeing my new GI guy soon, thank goodness!

Thomas Apprentice
Thomas
Posted

Good luck

plantime Contributor
plantime
Posted

I am glad you're getting some answers! I just learned this afternoon that my liver problems are why my muscles feel so bad. When the liver heals, the muscles will feel better!

burdee Enthusiast
burdee
Posted

Hi Dessa:

I'd recommend you get a second opinion. The 1998 PDR lists as side effects for Lipitor: "abdominal pain, back pain, headache, joint pain, leg cramps" (which sounds like your 'pain all over (your) body') as well as "muscle aching or weakness" which you also mentioned. It's easy for doctors to blame something in your diet, because they know SOOO little about nutrition, rather than find a better drug than Lipitor for you. <_< You could even check a more recent Physician's Desk Reference for Prescription Drugs to see what side effects for Lipitor are NOW listed.

  • 2 weeks later...
merrell Newbie
merrell
Posted

hi,dessa, an alarm went off when i saw your symptoms. i agree with burdee, please check into the lipitor asap. my sister-in-law was having the same symptoms for quite a few years---many --many tests,many--many doctors until a new internist questioned lipitor and took her off it. all that suffering for so long and it was the lipitor. talk to your doctor again or get a second opinion. hope you improve.

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    • trents
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      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
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    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

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      Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend beyond typical IBS. The negative home test is not reliable, particularly given your concern about sample contamination and the fact that you were likely not consuming sufficient gluten at the time for the test to be accurate, which is a common issue. While probiotics like Bifidobacterium Infantis can support gut health, they cannot resolve an autoimmune response to gluten or heal intestinal damage caused by Celiac Disease. Your declining blood test results, even if still "in range," further indicate a trend that needs a doctor's investigation. Please do not hesitate to seek a specialist; a formal diagnosis is the first step toward getting the correct treatment, allowing your body to heal, and finally addressing your weight and overall health concerns. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
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