Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two More Questions


JerryK

Recommended Posts

JerryK Community Regular

First, anyone out there that had Enamel Hypoplasia or defects as one of the primary reason they

were diagnosed? If so, I'd like to hear about it.

Second, how is Celiac viewed by mainstream medicine? Are there those doctors out there that

view this as a "qwack" diagnoses? Will my doctor think I'm out of my mind if I bring this up?

Thanks,Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
First, anyone out there that had Enamel Hypoplasia or defects as one of the primary reason they

were diagnosed? If so, I'd like to hear about it.

Second, how is Celiac viewed by mainstream medicine? Are there those doctors out there that

view this as a "qwack" diagnoses? Will my doctor think I'm out of my mind if I bring this up?

Thanks,Jerry

to answer the second question: depends entirely on your doctor. really. some doctors know about it, some don't. I brought it up to my doctor (with relatively weak evidence - weaker than yours), but she respected me and my observations about myself and my analytic abilty, so was willing to run the tests without being obviously skeptical. some have had experiences like mine. others here have had trouble with their doctor. it depends on your doctor and your relationship with your doctor. there's no way to know without you asking. (if it makes you feel any better, I hemmed and hawed for weeks over the same fear.)

jenvan Collaborator

Hmm, I don't know about Enamel Hypoplasia specifically, but quite a few Celiacs from here have complained about high tooth decay and related issues. My dentist blames Celiac for my own dental issues and she said at my appt last week that my teeth and gums have definitely improved since I was diagnosed. Go figure !

Guest cassidy

Enamel wasn't the primary reason I was diagnosed, but it made my mouth drop open and I couldn't deny it any longer. My mom was diagnosed last September, but she has DH so her symptoms are different than mine. She read me an article and was trying to tell me to get tested. I didn't think much until the enamel part. My morlars came in with holes in them and they needed a protective coating. A few years ago I developed divets in the middle of my bottom front teeth. They had to fill them in and told me not to brush so hard. I did some research and couldn't find another applicable reason for me having this problem.

I don't know about your doctor, but mine willingly tested me. When my results came back negative I had been doing so much better being gluten-free for 3 weeks, he said the test isn't always accurate and agreed with my diagnosis.

I work with doctors and it is sad to say that most of them don't know much about celiac. They always say, how did you find out, were you losing weight? I try to educate them. I don't think any of them see it as a quack diagnosis, I just think most of them are clueless.

If your doctor thinks you are crazy, then I would find another doctor.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.