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Hi Im Newwwwww 2 This Site

nilam

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nilam Newbie
nilam
Posted

hi every1 in new 2 this site.. im 20 yrs old from uk, n 4 the past year ive lost so much weight n become so weak!.. its onli till last week a diff doc suggested ive got celiac n avoid nethin with gluten.. n its literally been been 2days since ive changed my diet n ive noticed tht my stomach isnt churning as much as how it wud, n i dnt feel like im bein chokd 2 death!.. sooo pretty much think ive got this... im havin my endscopy on monday!...n im scared :( in the past year ive lost so much weight n beme so thin.... i wana b nice n healthy agen.. but at least i no im not alone...

well guys i thort id introduce myself!..

tcc

:rolleyes:

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Guest nini
Guest nini
Posted

if you are having the endoscopy you really shouldn't be off of gluten yet. You need to be consuming gluten in order for the test to be valid. Also, have they done bloodwork yet? There are five tests on the Celiac panel that need to be done before the endoscopy. And when they do the biopsy they need to take a minimum of 6-8 samples.

If you are feeling better on the diet after just two days though, it is highly likely that even if your tests come back negative or inconclusive that you are still gluten intolerant.

gavinsdaddy Rookie
gavinsdaddy
Posted

Welcome to the group

rosiline Newbie
rosiline
Posted

if you are having the endoscopy you really shouldn't be off of gluten yet. You need to be consuming gluten in order for the test to be valid. Also, have they done bloodwork yet? There are five tests on the Celiac panel that need to be done before the endoscopy. And when they do the biopsy they need to take a minimum of 6-8 samples.

If you are feeling better on the diet after just two days though, it is highly likely that even if your tests come back negative or inconclusive that you are still gluten intolerant.

mouse Enthusiast
mouse
Posted

Hi. Welcome to the forum. There are a great bunch of people here that will help guide you through the learning curves. I also lost a lot of weight (53 pounds) and did not gain any of it back. But, I am 64 and that might have something to do with it.

Ursa Major Collaborator
Ursa Major
Posted

Hi Nilam, and welcome to the group. I agree with everything Nini says. You should be eating gluten for the testing, and should have had your bloodwork done before the endoscopy. But your fast positive response to the diet is pretty good evidence that your problem is celiac disease.

Would you mind writing in regular English? I have had great trouble reading your post (and I am sure a few others who are 'a little older' would appreciate it, too). Thanks!

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the family :D Let me know if you have any questions I would be happy to help

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    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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    • SamAlvi
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