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Question For You Veterans...


JerryK

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JerryK Community Regular

How long does it take before you notice you've eaten something with Gluten?

An example, yesterday I ate an Apple Fritter for breakfast and about 7PM, I got

sick. So...2 hours, 4 hours, etc...anyone?


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Mango04 Enthusiast

For me it can be an instantaneous reaction, or it can take hours, or days. I don't know why it varies like that, but it does. If you got sick at 7pm it very well could have been from your breakfast.

kabowman Explorer

My gluten reactions start, mild gas, about 2-3 hours later. However, about 5 hours later I am in horrible pain with cramping, horrible gas, and D and the next day I have brain fog - which could either be the glutening or the meds I take to get by. My system then takes days - up to a week - before I can even consider that I am back to normal.

Funny because my dairy, soy, corn, etc. reactions tend to hit within 15-30 minutes which is one way I can tell a glutening apart from the rest.

jerseyangel Proficient

A gluten reaction for me is fairly predictable. It starts about 2 hours after the ingestion. The first signs are stomach rumbling and gas that lead to D.

JerryK Community Regular
A gluten reaction for me is fairly predictable. It starts about 2 hours after the ingestion. The first signs are stomach rumbling and gas that lead to D.

Interesting this matches my symptoms exactly. I also feel kinda and groggy for a couple hours after

eating something glutened. But I can certainly relate to the rumbling tummy and follow on symptoms...

jerseyangel Proficient
Interesting this matches my symptoms exactly. I also feel kinda and groggy for a couple hours after

eating something glutened. But I can certainly relate to the rumbling tummy and follow on symptoms...

The groggyness (?) is probably a combination of fatigue and brain fog--I get that, too. The rumbling stomach is the dead giveaway for me because that is the only time that it happens.

tarnalberry Community Regular

Dizziness/brain fog can start as early as 15-30 minutes. Stomach noises can start in 1-2 hours. Intestinal cramping and slight diahhreah starts in 8-12 hours, usually. Fatigue starts in 12-24 hours. Severity varies greatly from episode to episode.


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JerryK Community Regular
Dizziness/brain fog can start as early as 15-30 minutes. Stomach noises can start in 1-2 hours. Intestinal cramping and slight diahhreah starts in 8-12 hours, usually. Fatigue starts in 12-24 hours. Severity varies greatly from episode to episode.

This fits so well with my symptoms it is uncanny. I've had this on and off for like..ever. I never knew I wasn't "normal".

jerseyangel Proficient

It's not that it's normal, it's just that we learn to live with the symptoms. It happens over time, in some cases, and after a while we forget what "normal" actually feels like.

tarnalberry Community Regular

exactly. I didn't know it wasn't normal either. my doc pretty much said "yep, you get so used to something, it becomes 'normal' for you. you don't even think of mentioning it. but it's not 'normal' for people in general. so we'll test you."

you may not have had celiac all your life - it can be triggered at any time. but you do need to get tested now.

ravenwoodglass Mentor
This fits so well with my symptoms it is uncanny. I've had this on and off for like..ever. I never knew I wasn't "normal".

I thought it was normal too until the off and on symptoms became part of my daily existance. Then it was at least 10 years before I was diagnosed. I get dizzy within a few minutes, then the tummy rumbles and gas, then I get GERD symptoms, the next day joint and muscle pain arrive along with a truely vile depression that will hit along with obsessive thoughts of every horrible thing you could imagine. The depression only lasts 1 to 2 days but it is overwhelming while it is there. Finally 1 to 3 days later I get violent D. It takes about 2 weeks for me before the joint and muscle pain and fatigue and brain fog are gone.

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    • knitty kitty
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    • trents
      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
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