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J-DUB

By J-DUB
in Coping with Celiac Disease

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J-DUB Newbie
J-DUB
Posted

I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl

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Guest Elizabeth19
Guest Elizabeth19
Posted
I'm new to this forum, never posted, but have read a lot of posts and really feel like I could benefit from this forum and help everyone at the same time. I was diagnosed with celiac in 1995 and gluten free since. It was a tough lifestyle to get adjusted to while going through middle and highschool, but I dealt with it because the consequences were too severe. I stay active going to the gym consistently and play sports all the time. I usually have a lot of energy, but recently I've been completely drained even with no activity. I've been eating lots of fruits and veggies and went to my DR. and he gave be a vitamin B shot(for energy), but I still feel tired most of the time. I push myself to go to the gym but I get lightheaded after 10 min and leave. Its tough because I just turned 21 and have played sports my entire life, not to mention that all my friends are out having a good time and I feel like I can only keep my eyes open til 10:00. If anyone can help I would appreciate it. GO HEAT!!!!

-JOHN in Ft. Lauderdale, Fl

I WAS JUST DIAGNOSED LIKE A MONTH AGO AND IM 18 AND ITS SORTA DIFFICULT AT TIMES.

PS- GO PISTONS

Lisa Mentor
Lisa
Posted

Hey John, good to meet you----

We all have alot of ups and down as we travel through Celiacland. Since you have been gluten free for ll years, I would suggest that you get a full blood work-up to see where you are are regards to your nutrients in and out of your body.

And are you taking in as many calories as you are burning. When your body tells you to slow down, it's telling you something. Look into that.

If you have other questions there are a bunch of people her that most likely will have the answer for you.

Lisa

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board....if you have any questions let me know...I am here to help:)

inquirer Newbie
inquirer
Posted

Have you had your thyroid checked?

J-DUB Newbie
J-DUB
Posted
  • Author

I never had that tested...What will it detect and what kind of test is it?

inquirer Newbie
inquirer
Posted

It's a blood test that will check for thyroid hormones. Celiacs suffer from autoimmune diseases and hypothyroid is very common. Some symptoms are lack of energy, intolerance to cold, brittle hair, etc.

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Becka85 Newbie
Becka85
Posted

I'm 20 and I've been having the same kind of problem as you. I can sleep for 12-14 hours and still be exhausted a couple of hours after getting up. I have no energy to do anything and no appetite so I have to force myself to eat full meals. I've had this off and on for about a year and I think it may be due to hidden gluten in my diet. I've been rotating my diet to prevent further intolerances from developing but I think there is gluten in one of the new products I tried. I went back to eating food that I knew was 100% safe and I feel much better. It takes a few days to get your energy back though. Have you changed your diet recently? Or are the ingredients different in a product that you've been eating for awhile?

J-DUB Newbie
J-DUB
Posted
  • Author

I'm always lookin for new foods to try or new ways to cook different things so maybe something new I tried had something in it. I'm extremely cautious when I try new foods but have been surprised before. The crazy thing is that I've been gluten free for 11 years and never had a reaction like this (if what I'm experiencing is from gluten).

sandeehier Newbie
sandeehier
Posted

Maybe if the tests don't cost too much, or if your insurance will pay for them, you could get a blood test for hypothyroid AND to check for gliadin antibodies, to see if you've been exposed to hidden gluten.

Good luck and I hope you feel better!

loraleena Contributor
loraleena
Posted

Hi welcome. I suggest you get your thryoid checked also. Make sure they don't just do tsh(it is extremelyinaccurate) There is a whole panel that should include T3, T3 free, T4 free, thyroglobulin antibodies, and thyroperoxidase antibodies (these show hashimotos). Also you should get your adrenals tested as well. Also I would look into hypoglycemia. If you eat lots of carbs your blood sugar could be crashing and causing fatigue. Good luck.

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    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
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      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
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      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
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