Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating gluten-free Oats

hez

Recommended Posts

hez Enthusiast
hez
Posted

Well, I thought I would let everyone know how my experiment is working. I ordered gluten-free oats from the company in Wyoming. I have had oatmel for breakfast and oatmeal cookies. I have been eating them for almost a month. No reaction.

I am NOT recommending you eat oats. Eating oats is a personal decision that each of us makes after doing the proper research. I only wanted to share my experience. Please keep in mind that others have tried gluten-free oats (I think they were from Canada) and did NOT have a good experience.

Hez

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Just because you aren't having symptoms doesn't mean you aren't reacting.

hez Enthusiast
hez
Posted
  • Author

True. However, I usually am very sensitive. I will be doing bloodwork in the next month as well. I think my doc would also like to do another endo but we are in discussions about that.

Hez

KaitiUSA Enthusiast
KaitiUSA
Posted

Some people get intestinal damage from even pure and uncontaminated oats. You see, the protein in oats, avenin, is similar and some react to it so if you eat oats I would recommend getting a followup bloodtest or biopsy(whichever way you were diagnosed) to see if you are in fact doing damage.

hez Enthusiast
hez
Posted
  • Author

Kati,

You are so right! It was one of the many issues that came up when researching whether or not to try oats. Again, I am not advocating that everyone rush out and try oats. There are a ton of issues that you need to research and figure out with your doctor what is best.

Hez

chrissy Collaborator
chrissy
Posted

my kids don't seem to havae a problem with them either.

VydorScope Proficient
VydorScope
Posted

I think once truly gluten-free oats reach the public in decent quanties we will find out for sure how many ppl are bothered by oats. Ppl quote numbers from 10% to over 50% of ppl with celiac disease sposedly having a problem with oats... I tend to believe its closer to the 10% number and just an Oat Intolerence rahter then the protien being simular... the trouble is how do you know for sure if your one of them or not?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I have a little bit of oats almost everyday. As I test the cereal for my son on my lips to see how hot it is. When I say a dab of cereal its almost miniscule. I dont know if its hurting me. I dont feel any different. But maybe overalll that is why I dont feel very good. I am trying to keep my son gluten free.. the only gluten he eats is his oatmeal in the morning. otherwise he strictly stays to the diet.. and he will until we can prove he is safe, which I dont put much into the docs.

So I am not doing him any favors am I... sheesh.. sometimes you really have to write (or type) things to see in black and white what you are doing wrong.

DingoGirl Enthusiast
DingoGirl
Posted
I think once truly gluten-free oats reach the public in decent quanties we will find out for sure how many ppl are bothered by oats. Ppl quote numbers from 10% to over 50% of ppl with celiac disease sposedly having a problem with oats... I tend to believe its closer to the 10% number and just an Oat Intolerence rahter then the protien being simular... the trouble is how do you know for sure if your one of them or not?

Guess I'm about to find out.....in a moment of wistfulness and missing my morning oatmeal too much, I ordered them....will let you know how it goes!

tarnalberry Community Regular
tarnalberry
Posted
I think once truly gluten-free oats reach the public in decent quanties we will find out for sure how many ppl are bothered by oats. Ppl quote numbers from 10% to over 50% of ppl with celiac disease sposedly having a problem with oats... I tend to believe its closer to the 10% number and just an Oat Intolerence rahter then the protien being simular... the trouble is how do you know for sure if your one of them or not?

The studies I've referred to give a number that's around 10% (a bit under), and suggest that it's not an oat intolerance, but its a similarity in protein due to elevated serum antibodies and celiac-characteristic intestinal damage found on biopsy. (This was a study specifically aimed at looking at the oat question.)

chrissy Collaborator
chrissy
Posted

so..........is there anyone on here that eats oats and has actually had their Ttg levels tested?

hez Enthusiast
hez
Posted
  • Author

I have an appt with my gi doc in several weeks. I will let you know how this goes. It will be interesting to see the numbers. I also will enjoy the appt. I know my gi doc would like to do another endo. I think I would just prefer the blood test.

Hez

KellyR Apprentice
KellyR
Posted

My daughter has been eating the oats for about 3 months and has had no reactions. She had bloodwork done 2 weeks ago and her numbers actually look much better than they had in previous blood tests. She has been gluten free for 4 years and has her blood tests once a year. This was the best one yet!!!

chrissy Collaborator
chrissy
Posted

what is the brand of the oats your daughter is eating?

KellyR Apprentice
KellyR
Posted
what is the brand of the oats your daughter is eating?
My daughter is eating McCanns oatmeat for breakfast at least 5 days a week and also I have been making her cookies alot with it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,828
    • Most Online (within 30 mins)
      7,748
    Ramona Stuart
    Newest Member
    Ramona Stuart
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.