Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Problems With Daughter....


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

My daughter has been having some new issues lately, and I have no clue what could be causing them. I took her off dairy, which did help with her tantrums. But now, she's been having potty accidents. She's been potty trained for nearly a year now, and never used to have accidents. Before 10am the other day, after a small cup of juice, she went to the bathroom 4 times...and she barely made it one time. This is totally new.

I looked up some symptoms for diabetes, and she has nearly all of them. She is still very tired all the time, and takes a 2-3 hour nap each day. She is also irritable, and is actually harder to deal with than my 2 year old. I've gone over everything in her diet, and I can't find any hidden gluten. We had her GI follow up last month, and blood work was all normal. I just don't know! I don't want to be one of those moms who always thinks something is wrong.....but she still isn't 100%, and these new potty accidents aren't normal. I thought maybe she could have a UTI, but she hasn't had a fever or any symptoms for that, and has never had one before.

The only family history of diabetes in my family or dh's, is gestational and adult onset diabetes. Could it just pop up randomly like that? And are there any other signs I should look out for? Do you think this could be a result of the type of food she eats? She does eat alot of carbs... like pasta, cereal, cookies, white rice, etc.

Thanks for any input you guys may have. She absolutely hates going to the doctor, so I wanted to get some advice before I put us both through the ordeal of a doctor visit!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sleepingbean Newbie

I would take her in to rule out Bladder Infection and ask about their thoughts on Diabetes. I know my own dd had a bladder infection and she didn't express pain or a fever right away. (never did have a fever).

Also, I would look at the amount of sugars she gets in a day and also protein. Personally, I get many common hypoglycemic symptoms if I am not eating a normal if not even high amount of protein and if she's eating a high carb/starch diet, that can really mess with the system if she's not getting a good protein blend in there.

Good luck!

mommida Enthusiast

Yes, you should bring her in. Check for the UTI, bladder infection, and Diabetes. Go ahead and "be that mom" who knows something's not right and does everything possible to take care of her children. A good Dr. should test for Diabetes for the connection to Celiac, for the symptoms being presented, and because untreated Diabetes in children goes from the vague symptoms to life threatening fast.

L.

Ursa Major Collaborator

How long has she been gluten free? While I agree that she should be tested for a bladder infection and diabetes, to be safe, it could also be that now other intolerances are showing up. I also agree that her diet may be too high in carbs. You might want to replace some of those carb foods with veggies and good protein sources.

As for the juice causing her to not make it, that would likely happen to me, too. If I eat too many salicylates (and juice is really bad), I get the same symptoms as a bladder infection, which is burning when urinating, and having trouble holding my urine, and running to the bathroom all the time.

Laura--G Rookie

I agree with the person who said you should go ahead and "be that mom." When my son was 3 he started going to the bathroom constantly. Then he started being very thirsty. He could put away more water than I could as an adult. I called his doctor on a Tuesday and her office said people always think their kids have Diabetes when they start going to the bathroom more and they could see him Friday. I hung up on her. I took him to the hospital and they diagnosed him with Type 1 Diabetes. You have to listen to yourself and protect your child. It's very possible that it's not Diabetes but if you feel something is wrong it's better to be safe than sorry.

Tony'sMom Rookie

My son was diagnosed at a very young age but his symptoms were excessive thirst ( he would crawl to the sink and cry for water), wetting through double diapers, extreme tiredness, irritability. Eventually it got to the point of vomiting and lethargy and large amounts of weight loss. I took him to an emergancy clinic because his doc at the time wouldn't see him. His sugars were over 700.

If you think your dd may have diabetes then please take her in. It's not something that you want to wait on. Good luck, I'll be thinking of you.

TCA Contributor

My husband developed diabetes while in college. I kept pushing him to go to the Dr., but he said he just wanted to get through finals first. He ended up being hospitalized the week before finals with sugars over 800. Follow your gut. If you're wrong, then great. If not, then you can get her the help she needs. His brother also has diabetes, but before that there is no family history at all. I'm a big believer in mother's intuition. It has diagnosed my kids more than once. good luck and keep us posted on how she's doing. I hope she's better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Lucy

My sons first symptom of diabetes was a yeast rash on his butt, that would not heal. Then he had the excessive thirst, and I mean excessive. Then he was also wetting thru his clothing at least 5 times a day (he was in diapers) and I would change his sheets at night. He was 2. He also threw the most obscene temper tantrums and vomitted. I went to several Dr.s and they all missed the diagnosis. He was almost comotose and lethargic by the time I showed up at my Dr.'s office and demanded that someone look at him, whether it was my OWN dr or not. It was not. It was a resident. SHe diagnosed him with diabetes within 2 minutes of walking in her office. SHe didn't even hesitate. He was in Pediatrics ICU for 3 days. SOOO the moral of the story is. Get her tested. Don't wait. If she doesn't have it. fine she doesn't. At least you know. It is a simple blood test. Better safe than sorry. My gut is she doesn't. She doesn't sound "excessively thirsty" but you never know.

Cam's Mom Contributor

Go to the Dr. ASAP! My daughter had a cold and wasn't bouncing back, drinking water constantly and peeing like a hundred times a day. We too did not want to be the hysterical parents and waited a few days - then suspecting a UTI we finally took her to the doc (after about 2 weeks) and within hours she was admitted to the hospital with a type 1 diabetes and blood sugar over 600 Should be around 80.

do not mess with this - diabetes is extermely easy to detect and diagnose and the doctors will know immediately with a simple finger prick and urine test. She canget very sick very quickly if you do not address this immediately so please do it tomorrow if you have not done it already.

I am sure you know that kids with celiac are more prone to type 1 diabetes and vice versa. I hope it is just a UTI but as my 6 year old says "better safe than sorry".

taweavmo3 Enthusiast

Just wanted to say thanks for all the great advice. This is the one place where I don't feel like I'm a neurotic mother, lol. I will take her in to have her checked, now that I know it can get serious so quickly. Funny, last year when we got our celiac diagnosis, I thought that would be the end of our problems! Now it seems like we do great for a few months, then something else pops up. I guess that's the nature of the disease though, what a bugger it can be! Thanks again everyone.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.