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Is This Celiac Disease?

anxietydoc101

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anxietydoc101 Newbie
anxietydoc101
Posted

Back in February I was diagnosed with suspected Giardia infection. I was treated with Flagyl and ever since have been disaccharide intolerant (both milk sugar and sucrose). My stomach and colon have been gassy and loose stools. I took Culturelle for a while but it gave me more gassiness. I have also affected by a urinary tract infection treated by Keflex and then Macrobid. It's been impossible to know what to eat. I did see a gastrointestinal doctor who told me my epitherlium has been temporarily trashed but I could go back to my normal diet (minus dairy) but I'm still having trouble with sugars. This is supposed to be temporary (6 months to a year) but I'm not sure how to eat and how to approach proper nutrition. Any suggestions would be greatly appreciated. Thank you so much.

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StrongerToday Enthusiast
StrongerToday
Posted

I would suggest keeping your diet as simple as possible and keeping a food log so you can see which foods are triggering reactions.

You may also want to look into Candida Overgrowth, when you're on that high of anti-biotics it can create havoc on the good bacteria in your system and the candida (which feeds on sugar) takes over. My dr. put me on Diflucan for a month (one pill every other day) to kill off the bacteria, and I'm still taking probiotics too.

natalunia Rookie
natalunia
Posted

Sometimes Giardia can be very resistant. My daughter (adopted from Russia) had it when we brought her home and the doctors at Texas Children's used Alinia on her. Alinia is newer than Flagyl and is much stronger. It usually kills the Giardia in one course.

I would get tested for Giardia again. It tends to go in cycles, so you may test negative sometimes when you really have Giardia. If you get treated with Alinia or another course of Flagyl and still have problems, then I might start suspecting Celiac... JMHO

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    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

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      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
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      By SamAlvi · Posted

      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
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      Small Bowel Resection 12 inches

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    • Ello
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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