Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Returned From Doctor's Appy. With Questions

AnnieMarie

Recommended Posts

AnnieMarie Apprentice
AnnieMarie
Posted

I had my 6 month appt. with my rheumatoligist;I won't get into that. Well upon getting home I was looking over my labs and my ALK PHOPHATASE was flagged at 35 normal range 42-125 for my lab.

What would cause this?

I have been having some indigestion and was given protonix. HE also refeered me back to the GI. I don't know my appt. as of yet.

I really get annoyed when Dr.'s let you leave and do not discuss your entire lab work. I realize this may not be his field of expertise but he could offer an explaination.

Has someone else tested for this ??

The low reading has me stumped.

Thank you,

Annie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BRUMI1968 Collaborator
BRUMI1968
Posted

At some point, I printed out blood chemistry definitions from a website called: www.carbonbased.com/definitions.htm.

I don't know if they are still around or not. Here's what it says for ALK Phosphatase:

Produced in the cells of bone and the liver with some activity in the kidney, intestine, and plancenta, it is mostly found in an alkaline state with a pH of 9. Increased levels are seen extensively as a tumor marker, in bone injury, pregnancy, or skeletal growth (elevated readings). Growing children have normally higher levels of this enzyme. D3ecreased levels are sometimes found in hypadrenia, protein deficiency, malnutrition, and a number of vitamin deficiencies.

Normal adult range 20-125 Optimal 72.5

this reading puts yours in "normal", but it still seems low. Anyway, that's that. I'm going of to see if this website still exists.

AnnieMarie Apprentice
AnnieMarie
Posted
  • Author

Thanks Bully,

I will check out the site you posted.

I am also being treated for lupus/scleroderma so I have a lot going on.

I thought each lab had it's own range and each evaluation might be different according to that particular labs criteria. I say this because mine was deffinately flagged as low.

Thanks again for the info and the site. I don't use the message board as frequently as I should because I thought I had the gluten thing under control. However I am always here for recipes.

Thanks again I am gratefull for the info.

Annie

BRUMI1968 Collaborator
BRUMI1968
Posted

I scoped the site and couldn't find the same data. I suggest googling blood test definitions or blood count or something...someone must have something online about it.

AnnieMarie Apprentice
AnnieMarie
Posted
  • Author

I also checked that URL and found nothing.

I googled around and found only one site that had about the same info. that you posted. There just does not seem to be a lot of info. on low levles out there.

Annie

kbtoyssni Contributor
kbtoyssni
Posted

Why don't you give your doctor a call and ask her (orl eave a message for her to call you back)? My doctor is very good at calling me back as soon as she can.

penguin Community Regular
penguin
Posted

Here's the info bully4you was looking for:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skbird Contributor
skbird
Posted

Hi - mine has been low each time it was tested the past few years. I have been able to find little about it - sometimes it has something to do with B12 deficiency, but that doesn't seem to be the case with me. I did find some info that it might have to do with acidity of the body, so I might be slightly acidic. My rheumatologist was interested in it but couldn't find any info to make any sense so we finally dropped it. I am not being treated by a rheumy now - all my tests minus my ANA come back negative.

I would love to know what it means, but it doesn't seem to leap out at me, either.

Stephanie

AnnieMarie Apprentice
AnnieMarie
Posted
  • Author

Stephanie my rhuemy picked up on mine as well. My ANA is always positive and SCL-70 too. My Complement 3 is usually low, but this has nothing to do woth the ALk.... test.

I have found some info. on this and celiac is one of the reasons as well as b12 and other things. Chelse offered a very informative URL, thanks for that!

The reason I want to pursue this is that constant buzzing type feeling that is happeneing in my feet. It is really disturbing to me when I get that electric type shock buzz throught the right hand side of my face.

I have been eating out a lot more often. So who knows? I will just have to wait to see the GI I guess.

Thanks for all the replies.

AnnieMarie

skbird Contributor
skbird
Posted

Actually, my complement 3 was low one time, not significantly, but flagged, but the next time it was fine. Alk Phos is always low, has been down to 22. My ANA has a nucleolar pattern which is indicated in scleroderma but nothing else checks out (thankfully!) so I've been dismissed. My ANA goes from 160-320.

I was having some weird joint pains in my right hand and sometimes my feet but it appeared to be just some weird phenomenon. But I'll keep it in mind for the future. I do take turmeric and my rheumy was pleased - he's East Indian and said lots of research is coming out about how great turmeric is for autoimmune and cancer, and that he thinks that the reaon autoimmune diseases are lower in India is because people eat so much curry, which has a lot of turmeric in it. Anyway, it's supposed to help with inflammation so it may be something you want to look into. Scleroderma is especially being seen as improved by turmeric, also cystic fibrosis.

Anyway, take care -

Stephanie

BRUMI1968 Collaborator
BRUMI1968
Posted

My doc had me on turmeric as well - for ITP, another autoimmune disease.

Interestingly, the combination turmeric, ashwaganda, zinc, and boswellia has shown to be a potent arthritis pain medication in dogs and humans. The symptoms decrease even if the actual problems stay the same. It may not have been R. Arthritis...I can't recall. I'll try to look it up again to check my facts.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.