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4yr Old Boy, Autism, Nosebleeds, Soy, Wheat Allergies.

mikepattonsgirl

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mikepattonsgirl Newbie
mikepattonsgirl
Posted

Ohhh please help me!!!!

I am starting to freak out/lose hope!

Firstly, I'm really not like crying or anything like that, just a drama queen I guess :)

My lil one...I don't know what to do at this point! He's been wheat free for about 2 years, not 100%, but he hasn't had wheat in about a year. Then a year ago we realized he was allergic to Soy. He's had almost daily bloody noses since a year old, which the dr brushed off as nothing, now I've determined it means he's eaten something he's allergic too. I watch him like a hawk. All he is eating right now is banana's, and lays potato chips, he's autistic so getting him to eat fruits is like fate worse then death....

Today we got some rice krispies which I read he can eat, and has in the past, and gave him his rice milk with it.

Okay, now, here's the tricky part. Ohhhh I really hope you all have some input!!! So, we got Red Robin for take out, we don't go out to eat because it's just not fair to Caleb, and we don't let him have mcdonalds fries of course, but I didn't think it would hurt him to give him french fries from red robin, and literally within 10 minutes his nose started bleeding ssoooo bad. I don't know if it's from fries, rice krispies or what. I mean, it bled a few days ago, that day I didn't feed him anything different, I don't know if he's eating stuff when i'm not looking, but he's really good about that. It's sad, he'll pick up an oreo at someone else's house and sit and smell it, like he knows he can't eat it. Poor lil guy :(

Anyway, oh yeah!

During the day he's totally fine, then at night he's SOOOO congested, just sounds like a ton of phlegm, and he coughs and coughs, and last night he was coughing then he gagged and vomited and couldn't breathe, and I turned him over and was doing everything I could. I just don't get it...I don't know if these are all coincedences, or if he's eaten something, or if there's something worse...We did just change climates, moved from Utah to washington, which we did last year, we spend time down there and here.

I don't think I left anything out, of course I will take him to an allergenist tomorrow, or asap, but does anyone else have anything like this?

Thanks in advance..

Kelly :)

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Oh, you've got it tough!

I'm not familiar with Red Robin, but I'm somewhat familiar with autism (one of my kids has Asperger's), and I'm learning about celiac/wheat allergy/gluten intolerance. Stay with this board--the people here probably know more than any of the doctors, I'm not kidding.

Okay. If it's gluten your little guy has a problem with, then Rice Krispies are a definite no-no--they contain barley malt, which tastes great, but contains gluten. Many autistic kids have problems with gluten and casein. Look up Lisa Lewis (Special Diets for Special Kids--fantastic book) if you haven't already, or check this site out: Open Original Shared Link. I would not trust amy husband to leave "forbidden" food alone, let alone a 4-year-old. If he can't eat it, don't bring it in the house, at least for now!

You also need to be very, very careful how many vaccines you give your little guy, and which ones. For example, the flu shot contains thimerosal, which is 50% ethyl mercury, which is definitely linked with autism no matter what the pharmaceutical giants say. The MMR may also be involved. It IS possible to obtain a measles-only vaccine, wait a year, obtain a mumps-only vaccine, wait a year, and obtain a rubella-only vaccine. While my child didn't react to the MMR that I could tell, I have talked to way too many moms whose kids DID react terribly--and then developed full-blown autism. (My sister-in-law's sister-in-law actually has video from the day before and the day after, and it looks like two totally different children.)

If he's having trouble breathing just at night, could whatever you wash the sheets in be an allergy source? Fabric softener, maybe? Or could he be allergic to down pillows? (Or conversely, polyester pillows?) If you just moved, could paint fumes, new flooring or carpeting, or vinyl shades be emitting something he's allergic to? Or were there animals in the house before?

Any possiblity he picks his nose, and that might be causeing the nosebleeds, or at least exacerbates the situation?

Do you mind if I ask how severely autistic your little guy is? Is Washington good with early intervention services?

Good luck--let us know how things are going, okay?

Girl Ninja Newbie
Girl Ninja
Posted

I don't have any experience with autism, but I am a pro at feeding picky kids. He should be able to have Fruity Pebbles or Cocoa Pebbles from Post. I know they're gluten free, but you'll have to check for soy.

If it was the fries it would be hard to pinpoint the problem. Their fryer could have been contaminated with anything.

Good luck to you guys.

mommida Enthusiast
mommida
Posted

I just wanted to add to the other posts. My son used to vomit phlegm before he went on a gluten free diet. I have heard others say gluten ingestion has caused them to have severe congestion, wheezing and asthma.

It sounds like you are looking for a gluten free, casein free, and soy free diet. (You can find links to this diet and autism here at celiac.com, I think it is under other or misc connections.)

L.

Tony'sMom Rookie
Tony'sMom
Posted

Hello Kelly.

I'm sorry to hear that your son isn't feeling so well. I have son with autism and years ago I tried the gluten-free/CF diet. I didn't do a good job at it and gave up after seeing no benefit. I'm now going to try again since I have another son who has celiac. Give Gluten-free Casein-free.com a look- they should have some good resources about the diet there. I second the Special Diets for Special Kids book- it's great.

As for the congestion- my son with celiac gets horribly congested when he gets glutened. He also has a million other allergies that make it bad. Has your son been evalutated for Asthma? That was the only clue that we had that Tony had asthma- a night time cough that never went away.

I hope you can get this all figured out soon and that your son feels better.

Good luck!

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