Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seemingly Endless Appitite?


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

Is this a symptom of celiac??? The Dr's have thrown around the idea of testing my 1 year old for celiac but haven't yet. He's only in the 5th percentile for weight but eats NON STOP... more than most school age children it seems!! He's short too, has chronic constipation issues, reflux, very gassy, is very irritable, and is not digesting much of the food he eats (it comes out whole), he was anemic at his 9 month check up too. The Drs told me that children with celiac don't want to eat cause their tummy's are uncomfy so since Matthew has a HUGE appitite he must not have celiac??? I am confused!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast
Is this a symptom of celiac??? The Dr's have thrown around the idea of testing my 1 year old for celiac but haven't yet. He's only in the 5th percentile for weight but eats NON STOP... more than most school age children it seems!! He's short too, has chronic constipation issues, reflux, very gassy, is very irritable, and is not digesting much of the food he eats (it comes out whole), he was anemic at his 9 month check up too. The Drs told me that children with celiac don't want to eat cause their tummy's are uncomfy so since Matthew has a HUGE appitite he must not have celiac??? I am confused!!

All the things you have listed are symptoms for Celiac. If I have been glutened I feel BURNING hunger pains. My daughter was eating more food than I was and she was only 10 months old!

L.

penguin Community Regular

With celiac, you're malnourished. You're not absorbing any food, so your body thinks its starving, ergo-massive appetite.

It's very much a symptom of celiac, or at the very least malnutrition.

Fiddle-Faddle Community Regular

Is your one-year-old still getting any breast milk, or is he already weaned? For some reason, besides for being more easily digested than any other milk (including ALL formulas), the proteins and fats in breast milk go directly to bone and brain growth rather than fat. He may be thirsty, too. One year-olds can't always tell the difference between hunger and thirst--make sure he's washing all that food down!

If his food is coming out the other end whole, then he's not chewing his food and he shouldn't be eating that kind of food. Run it through the blender first with some liquid!

If you've only recently weaned him, you can still probably relacte by pumping. It sounds like an awful pain in the patootie, but I bet you'll see a HUGE diffrence.

penguin Community Regular
If his food is coming out the other end whole, then he's not chewing his food and he shouldn't be eating that kind of food. Run it through the blender first with some liquid!

It's also a sign that food isn't being digested at all, if it's chewed but comes out looking like the chewed state. Any grown up celiac with a full set of teeth that's ever eaten a salad on a bad day can tell you that :ph34r:

sarahelizabeth Contributor

He weaned himself from breastmilk at 9 months. At that time we thought he had a dairy allergy so it turned out for the best. He had allergy testing done and came back negative for everything except peanut (but that is a whole otehr story) He was only Alimentum up until his birthday 2 weeks ago and is now on whole milk.

Our GI Dr said that it **can** be normal for kids his age to have foods come out whole because they lack the teeth for good chewing. He said if his poops still look like that in a year then he would send him for further testing. He told me not to worry about it and not to change his diet. He said the same thing about the reflux... can be "normal" up to age 2 so wanted to wait another year before any testing. So now we just have to sit back and wait a year :(

Fiddle-Faddle Community Regular
So now we just have to sit back and wait a year :(

You don't HAVE to do anything you don't want to do! You are in charge of what goes in your son's mouth, not your doctor!

If he has a problem chewing his food, then it can't possibly be good for his intestinal tract (with or without celiac) to have unchewed food passing through it! His stomach is probably producing extra acid to try to break down the unchewed food. If he has reflux, there ARE measures to lessen it (my daughter had reflux, too). you're probably already doing them, but just in case: keep him upright as much as possible, especially after eating. If he's tired, hold him with his head on your shoulder and rock him, and then just hold him til he wakes up, or else let him sleep in a toddler car seat. Feed him HALF as much--but twice as often.

You might want to go back to the Alimentum and see if he has an easier time digesting it. If you MUST do cow's milk, please get Organic--all the things we nursing moms were told we CAN'T take and still nurse our babies, like antibiotics and hormones are in the diets of America's dairy cows. They are on constant antibiotics and recombinant bovine growth hormone, and they eat pesticide-laden feed, too. Organic milk is ridiculously expensive--but worth it in the long run.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenyonsmommy Rookie

My son is 2, just diagnosed by biopsy last month. He eats non-stop. he wakes me up at 5 am every morning with a go-gurt that he has grabbed from the fridge. he eats it, has some water and goes back to sleep. When he is awake, he is constantly hungry. he's only been gluten free for about 3 weeks, he's gained almost 4 pounds. Before he was Dx, his poop was almost white and smelled horrible, he was getting no nourishment what so ever. I think he may have gotten used to the non stop eating then, and its just continuing now. Not to mention that he feels 10x better.

By the way, I also just trained him to grab a diaper when he comes in with his go-gurt, that way i dont have to get up. 5 am is way too early for me.

e&j0304 Enthusiast

Endless appetite was the main problem that we had with my dd. She would eat ALL the time and was also very tiny. Only 18lbs and 27inches at a year old. She should have been 40lbs at least. She was so malnourished before we figured out that gluten was the problem that her hair was falling out in clumps and she was actually bald in spots on her head. She was about 2.5 years at that point.

She is now almost 3.5 years old and is doing VERY well. Her hair is growing in, she is happy and thriving in every way. She is of normal weight although she is still short. She is still an above average eater, I would say, but I think that as someone else mentioned, she was used to eating such huge amounts of food and I think that stuck with her. What we are not dealing with now is the total obsession about when she could eat next, melt downs about being hungry (after just eating something) and lack of ability to just function in a normal social setting because she was so miserably hungry.

I would advice you to try the diet. It can't hurt and it may be the best thing you could ever do for your child. I thank God every day that we were able to help my dd with the simple dietary change.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,188
    • Most Online (within 30 mins)
      7,748

    Leeila
    Newest Member
    Leeila
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...