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Skin Breakout Worse


tigerwillie

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tigerwillie Newbie

My husband was diagnosed with DH about 17 years ago and was able to control the skin breakouts with medication and consuming very little gluten. He was diagnosed with Celiac disease about a year ago and has been gluten free ever since. However, the skin breakouts have continually gotten worse. Any suggestions about what might help or what may be causing this?


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CarlaB Enthusiast

Sorry, I don't know. But a diagnosis of dh is a diagnosis of celiac, so he should have been told to be gluten-free back then!

Eating a little gluten, is eating gluten, so I would imagine it's just gotten worse as time has gone on and will clear as the gluten works its way out of his system. His body may just be taking the chance to eliminate its stores of gluten under the skin now that it's not constantly getting a fresh supply of it ... just my guess.

Ursa Major Collaborator

DH can persist for one to two years after going completely gluten free, as the deposits under the skin which cause DH take that long to clear.

Carla's theory seems to make sense. But maybe it's just 'his time' to have a bad outbreak. Take heart, it will get better sooner or later. Stick to a 100% gluten-free diet, and it will clear up eventually.

sharikay Rookie

On this web site there is an article on iodine and skin eruptions. Does your husband eat alot of salt? :huh: Good luck.

  • 2 weeks later...
Idahogirl Apprentice

I stopped using iodized salt, and I've noticed that I have no DH reaction from gluten, even when there is a GI reaction (the iodine is the only thing I can think of).

Lisa

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    • trents
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    • lizzie42
      When I originally posted I hadn't talked to the pediatrician yet and didn't realize about the budosinide. Now I feel pretty confident. I was concerned that all of the tests didn't come back positive - that seemed kind of ambiguous to me. I didn't realize that was common. Do a lot of people on here have a positive tTG but negative other tests? I thought the EMA was pretty "gold standard."  And yes I do now wonder about the asthma! I hope being gluten free will improve that! 
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    • lizzie42
      These are my sons results. My daughter was high positive on everything and maxed out the tests in addition to being anemic, bad rash, etc.  Yes, he has been eating mostly gluten free (not completely). He was also on a high dose of budosinide at the time of testing due to some asthma and sickness. I didn't realize that affects the results.  This test along with my daughter being so sick with it prompted the pediatrician to diagnose him. We can always do a gluten challenge in the future. We will do that with our 1 year old. We will have her eat school lunch when she goes to prek and then test after a couple months. 
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