Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed


jillwyckoff

Recommended Posts

jillwyckoff Newbie

Hi friends,

Just recently diagnosed (12/30) and started my wonderful gluten-free diet on 1/1. I've researched till I'm blue in the face. I think I got a good grip on things. But I'm really hoping to find some "normal" in all this to grab onto.

First, "normal" in terms of everyday yummy foods. Since things change every day, and manufacturers keep dodging the bullet by saying "check every second" (okay, not so much in those words, but you know what I'm saying), can anyone recommend any normal foods (today) that are yummy. I'm looking specifically for snacks (gum, candybars, crackers, etc.) that I can get from the regular food store. I almost cried when I found out that Kozy Shack Rice Pudding was gluten-free (no lie). Just wondering if anyone can make me shed another tear over some other new "normal" food discovery.

Second, "normal" in regards to health. I'm exhausted. I'm still fuzzy headed. I'm still nausious off and on, and my mood swings are pathetic. They're driving me crazy, never mind everyone else. Is this all normal for a while? If so, how long. The only physical side effect I've noticed since going gluten-free is that my allergies have almost disappeared. This is amazing since I'm alergic to everything and have sneezed my way through life for the past 40+ years. I've used about 6 kleenex since the 1st of the year when I would normally use nearly 1/3 of a box each day. If this is from being gluten-free - I'm really excited!

Thirdly, "normal" in eating out and traveling. Anyone have any ideas of this? My husband and I love to eat out and I have no idea (other than protein burgers at In and Out) where to go. I'd love ideas if you have them.

I know there's got to be some "normal" to be found hidden in this crazy disease. I think it would make me a lot happier to find little pieces of normal than none at all.

I appreciate your help! Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

jillwyckoff:

Welcome to the site, this is a great place to get your questions answered!

First: "normal snacks" - There is a new potato snack called "Crunch Toons" they are kinda like Gold Fish crackers. I have not been able to find any crackers yet, but when I do I will let you know :) - Candy bars Hershey's, Snickers, mostly all of them EXCEPT the ones that have cookie or rice in them (i.e. twix, crunch, kit kat, etc.) Gum - I believe Wrigley's is gluten-free.

Second: I have been gluten-free since Sept and I still have some lingering sypmtoms too, I think sometimes it just takes awhile. ;)

Guest jhmom

OPPS... added post before I was through.. :D

Third: Eating out: I am not sure if these restaurants are in your area: Wendy's & Outback Steakhouse both have a gluten-free menu. The best thing to do is see if the restaurant has a website and if they don't post it there email them for confirmation.

I hope this helps, again welcome to the board.

wclemens Newbie

jillwyckoff, I'm so glad you are on the road to recovery, and that you've found this site. From your post, I can see that you are such a positive soul, and that you are making the best of a challenging situation. I've had Celiac since I was 8, and I'm 59 now so I've had many of the same challenges of which you write.

I believe you will begin to see real changes in being clear headed in your thinking with this diet, and yes, I also had so many allergic symptoms, which have gotten better as I've stuck to the diet. Mine presented as Asthma, which just keeps getting better and better as I learn which foods I can tolerate. Along with gluten, I have to stay away from milk, dairy, egg whites and yeast, but I feel really great now that I no longer ingest those foods. Your energy level will most likely increase, along with your stamina, perseverance, and patience.

About eating out--I can eat at Acapulco Mexican Restaurant, and always order chicken tacos, chicken tamales, and refried beans, all with no cheese. At fast food places I ask for the hamburger or chicken burger without the bun or cheese. At El Pollo Loco and Major Market I order chicken breasts, and at Boston Market I get turkey, meat loaf, and green beans. Meat, fish, chicken, turkey--these are the easiest things for me to order when I go out. I have to be especially careful of salad because sometimes they wash it in chemicals, then I have an asthma attack. Salad dressings and butter are also usually off limits because of added milk, so usually I carry a purse just for condiments and foods that I know are safe.

For example, Imperial Margarine, Kraft Mayonnaise, some fruit or nuts in case I get into a "pickle" and can't find anything suitable, maybe a dessert I know is safe, or whatever I think will work for me that particular day. I think one of the foremost lessons I've learned through the years is that I am responsible for my own well-being, and no one else really knows what I can eat or tolerate.

Since Celiac is genetic, some of my family members are now being tested, and already we have identified my new little grandson as gluten sensitive and allergic to milk and dairy. As time goes by, I predict that we will find that many other family members have the same thing we do, whether they are exhibiting symptoms or not.

I'll be wishing you Godspeed in your recovery! Welda

  • 8 years later...
Jjphr Newbie

Pop Chips are a delicious low cal, low fat snack! They are expensixe but worth it. My regular restaurant stops are chipotle, pei Wei, pf Changsha, Carrabbas, outback steakhouse, Kona grill, and cantina Laredo. They all have gluten-free menus. Good luck!

psawyer Proficient

This topic is more than eight years old. The original poster has not been back since 2004.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.