Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Raleigh-durham-ch Area?


queenofhearts

Recommended Posts

queenofhearts Explorer

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



olalisa Contributor

Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

queenofhearts Explorer
Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

  • 3 weeks later...
phakephur Apprentice

Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

queenofhearts Explorer
Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

No, but that's a great tip! Thanks! I have family in Durham so I get over there fairly often. Do you have any restaurants there that you trust?

Leah

olalisa Contributor
I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

That sounds like a plan! I've been out of town for the past 4 sundays, but we need to meet sometime soon. I'm ALL for trying baked goods :) PM me if you'd like to try to make a plan.

phakephur Apprentice

Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer
Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

Thanks for responding anyway! I was hoping for something cheap & unchainy, but that seems to be the holy grail... my quest continues!

Would you be interested in getting together for an all-gluten-free gathering sometime? I have one other taker... I'm learning to bake gluten-free & have some really tasty recipes. Do you eat sweets at all?

Leah

phakephur Apprentice

oh my god, all the time. I bet I've gained 20 lbs since going gluten free. I never appreciated how helpful a malabsorption disease was in controlling one's weight.

We could get some coffee over at Raleigh Whole Foods some time if you want.

Sarah

  • 2 weeks later...
itskt2u Newbie

I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

  • 5 months later...
SouthernCeliacGirl Newbie

Hello from Raleigh! I would love to have some local people to talk to about restaurants, recipes, coping, etc. I'm fairly new to this diet (about 5 months now) and would enjoy having some celiac friends that don't make jokes about me being a health nut all the time. It's really hard to explain to everyone about this disease because they think it is some diet 'fad'. If they only new how bad I have wanted a Papa John's pizza since August! :P

Any replies would be appreciated!

  • 2 weeks later...
Tippy Apprentice

Hi! Im actually from the Cary area, and only here during my breaks from school ^-^;; but its awesome to meet others from this area!

  • 5 months later...
geeze Rookie
Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

geeze Rookie

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

geeze Rookie

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

  • 1 month later...
Susan-in-NC Rookie

Hello! New Dx in Ral area. As of 6/11/2007. Work full time and trying to understand this a bit more. GP is willing to learn and be of assistance, GI guy not so much. I read on another thread "Dr. told me I had Celiac Sprue and to stop eating gluten" Had just about the same speech from my GI Dr. Very little help.

I would love to get together and "learn" a bit more.

Please feel free to contact me!

Susan

  • 4 months later...
vonne Newbie
I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

vonne Newbie

Hi, I'm from Scotland Co, NC, have been dealing with celiac for about a year. I would love to hear from you about your ways of dealing with it. I have a great Dr. in Pinehurst who has helped me.

Also it would be nice to share some recipes. Hope some of you will respond.

vonne

  • 3 weeks later...
Carol the Dabbler Apprentice

I'm in Indiana, but thought you folks in NC might be interested in the Open Original Shared Link. I know very little about the group, having run across their web site in the course of a Google search. I did email them recently, and the webmaster got right back to me with a thorough answer, so they really do exist! Apparently they meet a couple of times per year, but you have to be on their email list in order to get the notices.

  • 5 months later...
ttkling Newbie

Hi:

I know this is an old thread and hope it is not dead.

My wife and I just moved to the Clayton area and are looking for other gluten-free people. We have been cooking gluten-free for about 3-4 years now so have a bit of a handle on this, but are always experimenting with new recipes. So if others would like to get together that would be great. I PMed some of you because I did not know if anyone would check back on this thread.

Todd Klingbiel

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,671
    • Most Online (within 30 mins)
      7,748

    brad Mccarroll
    Newest Member
    brad Mccarroll
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.