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Raleigh-durham-ch Area?

queenofhearts

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queenofhearts Explorer
queenofhearts
Posted

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

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olalisa Contributor
olalisa
Posted

Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

queenofhearts Explorer
queenofhearts
Posted
  • Author
Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

  • 3 weeks later...
phakephur Apprentice
phakephur
Posted

Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

queenofhearts Explorer
queenofhearts
Posted
  • Author
Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

No, but that's a great tip! Thanks! I have family in Durham so I get over there fairly often. Do you have any restaurants there that you trust?

Leah

olalisa Contributor
olalisa
Posted
I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

That sounds like a plan! I've been out of town for the past 4 sundays, but we need to meet sometime soon. I'm ALL for trying baked goods :) PM me if you'd like to try to make a plan.

phakephur Apprentice
phakephur
Posted

Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

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queenofhearts Explorer
queenofhearts
Posted
  • Author
Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

Thanks for responding anyway! I was hoping for something cheap & unchainy, but that seems to be the holy grail... my quest continues!

Would you be interested in getting together for an all-gluten-free gathering sometime? I have one other taker... I'm learning to bake gluten-free & have some really tasty recipes. Do you eat sweets at all?

Leah

phakephur Apprentice
phakephur
Posted

oh my god, all the time. I bet I've gained 20 lbs since going gluten free. I never appreciated how helpful a malabsorption disease was in controlling one's weight.

We could get some coffee over at Raleigh Whole Foods some time if you want.

Sarah

  • 2 weeks later...
itskt2u Newbie
itskt2u
Posted

I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

  • 5 months later...
SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted

Hello from Raleigh! I would love to have some local people to talk to about restaurants, recipes, coping, etc. I'm fairly new to this diet (about 5 months now) and would enjoy having some celiac friends that don't make jokes about me being a health nut all the time. It's really hard to explain to everyone about this disease because they think it is some diet 'fad'. If they only new how bad I have wanted a Papa John's pizza since August! :P

Any replies would be appreciated!

  • 2 weeks later...
Tippy Apprentice
Tippy
Posted

Hi! Im actually from the Cary area, and only here during my breaks from school ^-^;; but its awesome to meet others from this area!

  • 5 months later...
geeze Rookie
geeze
Posted
Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

geeze Rookie
geeze
Posted

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

geeze Rookie
geeze
Posted

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

  • 1 month later...
Susan-in-NC Rookie
Susan-in-NC
Posted

Hello! New Dx in Ral area. As of 6/11/2007. Work full time and trying to understand this a bit more. GP is willing to learn and be of assistance, GI guy not so much. I read on another thread "Dr. told me I had Celiac Sprue and to stop eating gluten" Had just about the same speech from my GI Dr. Very little help.

I would love to get together and "learn" a bit more.

Please feel free to contact me!

Susan

  • 4 months later...
vonne Newbie
vonne
Posted
I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

vonne Newbie
vonne
Posted

Hi, I'm from Scotland Co, NC, have been dealing with celiac for about a year. I would love to hear from you about your ways of dealing with it. I have a great Dr. in Pinehurst who has helped me.

Also it would be nice to share some recipes. Hope some of you will respond.

vonne

  • 3 weeks later...
Carol the Dabbler Apprentice
Carol the Dabbler
Posted

I'm in Indiana, but thought you folks in NC might be interested in the Open Original Shared Link. I know very little about the group, having run across their web site in the course of a Google search. I did email them recently, and the webmaster got right back to me with a thorough answer, so they really do exist! Apparently they meet a couple of times per year, but you have to be on their email list in order to get the notices.

  • 5 months later...
ttkling Newbie
ttkling
Posted

Hi:

I know this is an old thread and hope it is not dead.

My wife and I just moved to the Clayton area and are looking for other gluten-free people. We have been cooking gluten-free for about 3-4 years now so have a bit of a handle on this, but are always experimenting with new recipes. So if others would like to get together that would be great. I PMed some of you because I did not know if anyone would check back on this thread.

Todd Klingbiel

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    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Concerning GP advice

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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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    • cristiana
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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