Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Raleigh-durham-ch Area?


queenofhearts

Recommended Posts

queenofhearts Explorer

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



olalisa Contributor

Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

queenofhearts Explorer
Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

  • 3 weeks later...
phakephur Apprentice

Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

queenofhearts Explorer
Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

No, but that's a great tip! Thanks! I have family in Durham so I get over there fairly often. Do you have any restaurants there that you trust?

Leah

olalisa Contributor
I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

That sounds like a plan! I've been out of town for the past 4 sundays, but we need to meet sometime soon. I'm ALL for trying baked goods :) PM me if you'd like to try to make a plan.

phakephur Apprentice

Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer
Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

Thanks for responding anyway! I was hoping for something cheap & unchainy, but that seems to be the holy grail... my quest continues!

Would you be interested in getting together for an all-gluten-free gathering sometime? I have one other taker... I'm learning to bake gluten-free & have some really tasty recipes. Do you eat sweets at all?

Leah

phakephur Apprentice

oh my god, all the time. I bet I've gained 20 lbs since going gluten free. I never appreciated how helpful a malabsorption disease was in controlling one's weight.

We could get some coffee over at Raleigh Whole Foods some time if you want.

Sarah

  • 2 weeks later...
itskt2u Newbie

I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

  • 5 months later...
SouthernCeliacGirl Newbie

Hello from Raleigh! I would love to have some local people to talk to about restaurants, recipes, coping, etc. I'm fairly new to this diet (about 5 months now) and would enjoy having some celiac friends that don't make jokes about me being a health nut all the time. It's really hard to explain to everyone about this disease because they think it is some diet 'fad'. If they only new how bad I have wanted a Papa John's pizza since August! :P

Any replies would be appreciated!

  • 2 weeks later...
Tippy Apprentice

Hi! Im actually from the Cary area, and only here during my breaks from school ^-^;; but its awesome to meet others from this area!

  • 5 months later...
geeze Rookie
Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

geeze Rookie

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

geeze Rookie

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

  • 1 month later...
Susan-in-NC Rookie

Hello! New Dx in Ral area. As of 6/11/2007. Work full time and trying to understand this a bit more. GP is willing to learn and be of assistance, GI guy not so much. I read on another thread "Dr. told me I had Celiac Sprue and to stop eating gluten" Had just about the same speech from my GI Dr. Very little help.

I would love to get together and "learn" a bit more.

Please feel free to contact me!

Susan

  • 4 months later...
vonne Newbie
I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

vonne Newbie

Hi, I'm from Scotland Co, NC, have been dealing with celiac for about a year. I would love to hear from you about your ways of dealing with it. I have a great Dr. in Pinehurst who has helped me.

Also it would be nice to share some recipes. Hope some of you will respond.

vonne

  • 3 weeks later...
Carol the Dabbler Apprentice

I'm in Indiana, but thought you folks in NC might be interested in the Open Original Shared Link. I know very little about the group, having run across their web site in the course of a Google search. I did email them recently, and the webmaster got right back to me with a thorough answer, so they really do exist! Apparently they meet a couple of times per year, but you have to be on their email list in order to get the notices.

  • 5 months later...
ttkling Newbie

Hi:

I know this is an old thread and hope it is not dead.

My wife and I just moved to the Clayton area and are looking for other gluten-free people. We have been cooking gluten-free for about 3-4 years now so have a bit of a handle on this, but are always experimenting with new recipes. So if others would like to get together that would be great. I PMed some of you because I did not know if anyone would check back on this thread.

Todd Klingbiel

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      325

      Terrible Neurological Symptoms

    2. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    3. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      325

      Terrible Neurological Symptoms

    4. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Schar's products contain wheat!

    5. - Scott Adams replied to Jmartes71's topic in Doctors
      5

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,614
    • Most Online (within 30 mins)
      7,748

    FilbyFam
    Newest Member
    FilbyFam
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
    • Scott Adams
      By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
    • Scott Adams
      I just want to mention that a colonoscopy would not be the test for celiac disease damage, was it an endoscopy? It is not unusual to do either or both tests as a long-term follow up, especially if you're having issues. I fully understand you not wanting to go through a gluten challenge, and would be curious why they would request that part of your follow up--perhaps they questioned your original diagnosis?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.