Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Raleigh-durham-ch Area?

queenofhearts

Recommended Posts

queenofhearts Explorer
queenofhearts
Posted

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


olalisa Contributor
olalisa
Posted

Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

queenofhearts Explorer
queenofhearts
Posted
  • Author
Hey Queen! I live in Apex. Go to church in Raleigh. We should definitely chat :)

I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

  • 3 weeks later...
phakephur Apprentice
phakephur
Posted

Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

queenofhearts Explorer
queenofhearts
Posted
  • Author
Hi Leah,

I live in Durham. Have you checked out the EarthFare at Brier Creek? They have a lot of gluten-free products I haven't seen at Whole Foods.

Sarah

No, but that's a great tip! Thanks! I have family in Durham so I get over there fairly often. Do you have any restaurants there that you trust?

Leah

olalisa Contributor
olalisa
Posted
I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday?

Leah

That sounds like a plan! I've been out of town for the past 4 sundays, but we need to meet sometime soon. I'm ALL for trying baked goods :) PM me if you'd like to try to make a plan.

phakephur Apprentice
phakephur
Posted

Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


queenofhearts Explorer
queenofhearts
Posted
  • Author
Hi Leah,

I'm not a good resource for that since I don't eat in restaurants at all. Durham has the usual stuff though - Outback, PF Changs, etc. Nana's and Magnolia Grill are a bit fancier so you might find accomodation there.

Sarah

Thanks for responding anyway! I was hoping for something cheap & unchainy, but that seems to be the holy grail... my quest continues!

Would you be interested in getting together for an all-gluten-free gathering sometime? I have one other taker... I'm learning to bake gluten-free & have some really tasty recipes. Do you eat sweets at all?

Leah

phakephur Apprentice
phakephur
Posted

oh my god, all the time. I bet I've gained 20 lbs since going gluten free. I never appreciated how helpful a malabsorption disease was in controlling one's weight.

We could get some coffee over at Raleigh Whole Foods some time if you want.

Sarah

  • 2 weeks later...
itskt2u Newbie
itskt2u
Posted

I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

  • 5 months later...
SouthernCeliacGirl Newbie
SouthernCeliacGirl
Posted

Hello from Raleigh! I would love to have some local people to talk to about restaurants, recipes, coping, etc. I'm fairly new to this diet (about 5 months now) and would enjoy having some celiac friends that don't make jokes about me being a health nut all the time. It's really hard to explain to everyone about this disease because they think it is some diet 'fad'. If they only new how bad I have wanted a Papa John's pizza since August! :P

Any replies would be appreciated!

  • 2 weeks later...
Tippy Apprentice
Tippy
Posted

Hi! Im actually from the Cary area, and only here during my breaks from school ^-^;; but its awesome to meet others from this area!

  • 5 months later...
geeze Rookie
geeze
Posted
Anybody from the Triangle? I'm in Raleigh & would love to know some local connections.

Leah

geeze Rookie
geeze
Posted

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

geeze Rookie
geeze
Posted

Hi Leah. I am from Durham, was diagnosed in late April of this year and would love to be able to vocally communicate with someone in the area. While I do type well, I am not what you can call computer literate and am not sure I can get back to this site. I also do not know where to go from here, email, phone number, whatever. If you know how to get back to me, I would love to know of a support group in the area. Thanks. Gladys

  • 1 month later...
Susan-in-NC Rookie
Susan-in-NC
Posted

Hello! New Dx in Ral area. As of 6/11/2007. Work full time and trying to understand this a bit more. GP is willing to learn and be of assistance, GI guy not so much. I read on another thread "Dr. told me I had Celiac Sprue and to stop eating gluten" Had just about the same speech from my GI Dr. Very little help.

I would love to get together and "learn" a bit more.

Please feel free to contact me!

Susan

  • 4 months later...
vonne Newbie
vonne
Posted
I am an hour south of the triangle, in Moore County. I go to Chapel Hill and Durham to see some of my doctors. Please Triangle people, tell me if you have a decent celiac doctor in the area? My current GI doesn't seem to know much about celiac and I don't feel I am getting the follow-up care I need. I am about to see a new one at Duke. Also would like to have local real live other celiac friends; I have met only one other celiac in my county. Been gluten-free 5 months; learning gluten-free cooking; my teenage son also has celiac. I have a stone mill and make my own gluten-free flour. Also the oriental and eastern food store on Rosemary Street in Chapel Hill is a good resource for garbanzo flour, tapioca starch etc (cheaper than Whole Foods on these).

Katie

vonne Newbie
vonne
Posted

Hi, I'm from Scotland Co, NC, have been dealing with celiac for about a year. I would love to hear from you about your ways of dealing with it. I have a great Dr. in Pinehurst who has helped me.

Also it would be nice to share some recipes. Hope some of you will respond.

vonne

  • 3 weeks later...
Carol the Dabbler Apprentice
Carol the Dabbler
Posted

I'm in Indiana, but thought you folks in NC might be interested in the Open Original Shared Link. I know very little about the group, having run across their web site in the course of a Google search. I did email them recently, and the webmaster got right back to me with a thorough answer, so they really do exist! Apparently they meet a couple of times per year, but you have to be on their email list in order to get the notices.

  • 5 months later...
ttkling Newbie
ttkling
Posted

Hi:

I know this is an old thread and hope it is not dead.

My wife and I just moved to the Clayton area and are looking for other gluten-free people. We have been cooking gluten-free for about 3-4 years now so have a bit of a handle on this, but are always experimenting with new recipes. So if others would like to get together that would be great. I PMed some of you because I did not know if anyone would check back on this thread.

Todd Klingbiel

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Sheila G.
      - Sheila G. replied to Sheila G.'s topic in Related Issues & Disorders
      7

      No red meat

      I did talk to the nurse and she asked who told me no red meat. I explained the person who called with the results of my blood work. That was last week. She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week. I have not received a call yet. I will call them back Monday as a reminder...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality...
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,904
    • Most Online (within 30 mins)
      7,748
    KellyMarie
    Newest Member
    KellyMarie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Sheila G.
      No red meat

      By Sheila G. · Posted

      I did talk to the nurse and she asked who told me no red meat.  I explained the person who called with the results of my blood work.  That was last week.  She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week.  I have not received a call yet.  I will call them back Monday as a reminder.
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.