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Need Help In Dallas

dianezman

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dianezman Newbie
dianezman
Posted

My daughter's problems constantly get worse. Doctors dont seem to think there is too much to worry about.

She has severe reaction to gluten.... severe weight gain 3-5 pounds a day, not being able to stay awake, focus problems, severe lack of energy. Has been hospitalized 3 times for being severely impacted. Does anyone know someone in the Dallas area to help. She was tested last summer, results came back negative but she was also gluten free for two weeks prior to the test. Her symptoms improve when she is gluten free. She is 13, and around other children... when offered regular food like sweets has problems saying no and then we go through all the problems again.

I really need a doctor that I can take her too that will give us some guidance.

If anyone can help, you will be an awnser to my prayers.

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celiacgirls Apprentice
celiacgirls
Posted
My daughter's problems constantly get worse. Doctors dont seem to think there is too much to worry about.

She has severe reaction to gluten.... severe weight gain 3-5 pounds a day, not being able to stay awake, focus problems, severe lack of energy. Has been hospitalized 3 times for being severely impacted. Does anyone know someone in the Dallas area to help. She was tested last summer, results came back negative but she was also gluten free for two weeks prior to the test. Her symptoms improve when she is gluten free. She is 13, and around other children... when offered regular food like sweets has problems saying no and then we go through all the problems again.

I really need a doctor that I can take her too that will give us some guidance.

If anyone can help, you will be an awnser to my prayers.

You could try Enterolab. It is a stool test you do at home. It is more sensitive than the standard blood tests. You can find it at www.enterolab.com. It is in Plano, I believe, but it is just for testing. That is how my 8 year old daughter got her diagnosis. Her symptoms were not as severe as your daughters but she was tested 4 or 5 times since she was 1 and they were all negative. She felt better being gluten free but having the results from Enterolab made me realize we needed to be very strict with it.

Or you could just have her do the diet. Some doctors diagnose gluten intolerance based on the diet alone. Since she is a teenager, you will have to work with her to get her to buy into it. Maybe the lab results would convince her. I make sure I have lots of gluten-free sweets and "junk" food around so my girls do have lots of treats and don't feel like there is nothing they can have.

If you do use Enterolab, ask them for a doctor in the area who supports their testing. A lot of doctors are skeptical of them and celiac disease in general, I think. My daughter's GI said she didn't think my daughter needed to do the gluten-free diet even though we have a family history of biopsied celiac in my grandmother, my daughter feels better eating gluten-free, and we had the Enterolab results.

dianezman Newbie
dianezman
Posted
  • Author

thanks so much, I will look them up. I think my son has it to... just that his symptoms aren't so severe as my daughters. I can not thank you, and anyone else that helps us enough. We are so discouraged, and scared for our daughter. She is started to fight depression over it. Again, thank you!!!!!!!!!!!!! :D

KayJay Enthusiast
KayJay
Posted

We go to Dr. Baker he is in Carrolton off Josey Lane. I think he is very informative about Celiac and he might be able to help you too. He is a great ped. GI doctor. PM me if you are interested and I will give you his office number. I am not sure if I am allowed to post it on here.

Good luck

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